ADT plus EBR ... WHAT SUPPLEMENTS, VITAMINS, MINERALS TO TAKE ?

[Nous]

Based upon your personal experience ... what vitamins, supplements, minerals ... do you recommend that one should take ... when they are undergoing androgen deprivation therapy plus external beam radiation; VMAT ?

[Tall_Allen]

Never take any supplements with radiation. You may be interfering with what the radiation is trying to achieve.

[Nous in reply to Tall_Allen]

thanks Tall_Allen

[RonnyBaby in reply to Nous]

I'm in full agreement with Tall_Allen - don't supplement during radiation - it will have an adverse affect.

After radiation, (depends on the dose) don't be surprised after a certain amount of time, fatigue occurs. I had a large dose (79 Gy) and about 1/2 way thru - I started to feel it - it increased after completion and took me a few months to fully recover my strength.

I'm sure that you'll discover what supplements you could take in due course. There are a few that do help - but avoid thinking that a supplement or two will be the silver bullet because there isn't sufficient evidence for many OTCs (and suspect quality of many of them) to spend precious dollars on.

I was guilty of 'overdosing' on supplements. I have it narrowed down to about 5 that I continue to take regularly. You will discover which ones - after doing some additional research and reading - there is some help - later on - but NOT now ....

[Hidden in reply to RonnyBaby]

I pro Claim that taking 50 mgs vitamin C IV’s twice weekly during my first year and throughout imrt helped me into a clear status from a deadly APC wrapped around my urology .

[RonnyBaby in reply to Hidden]

I won't debate the merits of IV Vit C - it was offered to me by a naturopath. I've seen some articulated position(s) about different forms and dosing and timing of Vit C, but I'm not convinced enough to go there - that extra - mile - that special method of administration etc .... I will state that I take Vitamin C every day. I have also read that 'excess' Vitamin C gets 'shed' (or if you have 2 much - you'll turn orange and rant as if you were a Tasmanian devil - just joking)

With all due respect (and I know you are a remarkable survivor) I would personally not advise a PCa patient to go that way - with any assured expectations that it would be life altering.

Of course, it's only an opinion.

I am reluctant, at this point in time (with this particular 'poster') to itemize what I do take - after reading and participating in this forum for a few years myself.

What I have chosen as supplements, they ALL came from within these forums. I read the supporting evidence and concluded that it was better than what I thought I knew (and was consuming).

I would encourage any PCa patient to look into the archives and discover what 'might help' in the battle. Of course, asking questions is a good thing - considering that supplementation could negate some forms of treatments - depends on the timing and potential interactions. particularly when it comes to radiation.

I'm not sure if you saw the recent one about Dukoral, for example ? I got my script from the 'doc' - he was as surprised as I was when he read about the 'study'.

Best regards, of course ....

[Nous in reply to RonnyBaby]

thanks RonnyBaby

[Hidden in reply to Nous]

My prostate cancer specialist and RO both told me no mega dosing vitamins while in 8 weeks imrt . He also told me I’d never get wood again after imrt . He said that RT was the nail in my coffin for Ed . I’m happy he was wrong on several accounts . . I’ve got night wood each night . I did high dose vitamin c twice weekly during imrt and my first year and a half under treatments . Under prescription from Dr Michael Uzick naturalpathic oncologist md . Genesis medicine Tucson Az . I also followed his strict holistic diet and complete nutrient plan . But now I cheat at Tim’s .. After imrt and double adt I went into undetectable mode and have stayed here over four years now .. I know that this plan saved me for now and helped pushed the APC away . Western MD’s don’t believe much in diet or nutrition. My uro gave 36 months to live and said that there was nothing that I could do to change my death sentence . Uzick said “ Thats Bs”! Did the flip .. I say heal yourself with professional advice ... you won’t find a lot of support here for natural ways . Most are caught up only on the conventional western med .. Zinc, lycopene , d-3, k-2,Meriva which is tumeric ,Hono pure , Ahcc mushroom complex . , melato and naltrexone prior to bed . I took citrus pectin and a few others that I halted in remission . If you’re serious about it . Find a nat md . For a few hundred $ they can set you on a path . I was 53 When I made the radical change from the SAD ...... I went into osteopenia from adt now im taking calcium , boron , strontium magnesium and the mo gives me prolia . No signs of cancer but taken down my joints by antibiotic overuse and double adt . If you push the pc away you must face cardio and osteo issues ... eat you veggies ,drop animal protein, or not? It’s your life . Good luck Nous ! ✌️

[Nous in reply to Hidden]

thank-you Whimpy-p

[Shooter1]

Wait on supplements until treatments finished and blood tests done. Then you will see what you need. Talk to dr's and read posts here to see what we use. Best of luck on your journey.

[Nous in reply to Shooter1]

thanks Shooter1

[Kevinski65 in reply to Shooter1]

I've taken many combinations of supplements. I'm on Lupron and Xtandi. The supplements I take when I can afford them. I sometimes fill empty capsules with stuff from the spice rack. I'm 8.5 years out, stage 4 M1, 31 PSA at diagnosis. Gleason 9. My PSA is 0.2 and bone mets gone , I had 3. My right lung had tree in bud but a-acytl- Cysteine seemed to ameliorate that. I've taken many combinations ever since NIH relaxed restrictions on supplements. Whole body zyflamend is one I take. There is no proof that any of these do or did anything. I'm still here so I will still supplement when I can.

[Nous in reply to Kevinski65]

thank-you Kevinski65

[Don_1213]

Exercise. HEAVY duty exercise. I have frequently posted a link here to a talk given by a leading oncologist about sarcopenia and ADT. It will be the best use of 20 minutes you can possibly find: youtu.be/TGEAiU5SnCU(Not working as expected?)

Start tomorrow. Forget the supplements, vitamins, magic elixers. Exercise. I wish I had seen this before I started ADT (even though I did continue my 3 times a week at the gym - it wasn't really enough. And Covid inactivity just topped it off.)

[Nous in reply to Don_1213]

thank-you Don_1213

[Hidden in reply to Don_1213]

Thanks . This video is me .. sarcopenia was first rapidly followed by osteopenia .

[dhccpa]

I hear and read about all kinds of supplements that supposedly either enhance radiation or mitigate the side effects. One is intravenous Vitamin C (IV-C). I've never done radiation myself, though, since I'm metastatic.

[Nous in reply to dhccpa]

thank-you dhccpa

[Magnus1964]

After radiation there are some supplements you should be taking, vitamin D3, and with xtandi Niacinamide.

[Nous in reply to Magnus1964]

thank-you Magnus1964

[j-o-h-n]

Greetings,

Tell us your bio please. Age? Location? Treatment(s)? Treatment center(s)? Scores Psa/Gleason? Medications? Doctor's name(s)? Thank You!!!

All info is voluntary, but it helps us help you and helps us too. If you do respond copy and paste it in your home page for your use and for other members’ reference.

Good Luck, Good Health and Good Humor.

j-o-h-n Sunday 10/18/2020 6:12 PM DST

[Nous in reply to j-o-h-n]

thanks j-o-h-n

[j-o-h-n in reply to Nous]

No. Thank you for your quick and comprehensive reply. The only supplements I would recommend is Chocolate chip ice cream (two scoops) and plenty of laughter....

BTW you look like you're doing great......... keep doing whatcha doing...

Good Luck, Good Health and Good Humor.

j-o-h-n Wednesday10/21/2020 2:16 PM DST

[SPEEDYX in reply to j-o-h-n]

Please stop prescribing...your not a doctor...and your laughter is not the best medicine!!!

[j-o-h-n in reply to SPEEDYX]

I use to be Proctologist and I was this close [.........................................] to becoming a Gynecologist.

Good Luck, Good Health and Good Humor.

j-o-h-n Wednesday10/21/2020 2:40 PM DST

[SPEEDYX in reply to j-o-h-n]

😂...you definitely know your ins and outs than!!!

[j-o-h-n in reply to SPEEDYX]

Not only that.... you should have joined me and my fellow doctors at lunch.... We never ate the bread and butter on the table......(lots of crude humor too)

Good Luck, Good Health and Good Humor.

j-o-h-n Wednesday10/21/2020 2:49 PM DST

[SPEEDYX in reply to j-o-h-n]

That is why the nurses are the real doctors...so says my sister in law..oncology nurse for 40 years

[j-o-h-n in reply to SPEEDYX]

She definately deserves a medal.............🥇

Good Luck, Good Health and Good Humor.

j-o-h-n Wednesday10/21/2020 4:41 PM DST

[SPEEDYX in reply to j-o-h-n]

She gets my 2nd and 3rd opinions...she knows a chemist very well and he attends all the conferences on new drugs coming...he says in 5 to 10 years PC will be treatable like diabetes

[j-o-h-n in reply to SPEEDYX]

Let's hold out for 10 more....but if I have to post with you.... never mind....👀

Good Luck, Good Health and Good Humor.

j-o-h-n Wednesday10/21/2020 5:01 PM DST

[SPEEDYX in reply to j-o-h-n]

That might kill us before time

[j-o-h-n in reply to SPEEDYX]

suicide.........

Good Luck, Good Health and Good Humor.

j-o-h-n Wednesday10/21/2020 5:05 PM DST

[SPEEDYX in reply to j-o-h-n]

Laugh till we drop

[j-o-h-n in reply to SPEEDYX]

That's the way to go..................

Good Luck, Good Health and Good Humor.

j-o-h-n Wednesday10/21/2020 5:17 PM DST

[j-o-h-n in reply to j-o-h-n]

Oops pardon me.....first after sex........ then laughing.......then don't pay the check.....then check out.......

Good Luck, Good Health and Good Humor.

j-o-h-n Wednesday10/21/2020 5:20 PM DST

[SPEEDYX in reply to j-o-h-n]

Last 3 on your bucket list

[j-o-h-n in reply to SPEEDYX]

No bucket list....... empty beer can......

Good Luck, Good Health and Good Humor.

j-o-h-n Wednesday10/21/2020 5:26 PM DST

[Nous in reply to j-o-h-n]

love your sense of humour j-o-h-n ... never lose it cuz it really helps !

[j-o-h-n in reply to Nous]

Thanks...... it sure does.... I do stand up at funerals....

Good Luck, Good Health and Good Humor.

j-o-h-n Thursday 11/05/2020 9:33 PM EST

[Nous in reply to j-o-h-n]

ha ha ,,, good one ... thanks for making me laugh and smile

[j-o-h-n in reply to Nous]

It was a pleasure................................................ all yours...........

Good Luck, Good Health and Good Humor.

j-o-h-n Thursday 11/05/2020 9:44 PM EST

[j-o-h-n in reply to Nous]

Now to get serious for a moment..... Howya doing?

Good Luck, Good Health and Good Humor.

j-o-h-n Thursday 11/05/2020 9:49 PM EST

[Nous in reply to j-o-h-n]

thanks for asking j-o-h-n ... am doing great ... how about yourself ?

[j-o-h-n in reply to Nous]

I'm a complainer..... so I hide under my humor.... I could be better.... In the Bahamas, lying on the beach, drinking a pina colada, watching all the women walking by while my wife is up in the hotel room sleeping....

Health wise I'm fighting my Pca and my Lung ca....So far live is better than getting poked in the eye with a stick...... I'm located in NYC and fortunate enough to have two great M.O.s at MSK.....

I'm glad to hear you're doing great..... and hopefully will always be doing great.

Gonna go out shopping at BJs. So I'll see ya later. Keep laughing...

Good Luck, Good Health and Good Humor.

j-o-h-n Saturday 11/07/2020 3:02 PM EST

[Nous in reply to j-o-h-n]

great attitude j-o-h-n ... my urologist trained at MSK ... am in Canada

[SPEEDYX]

You mean empty Ouzo bottles