I saw a post recently about people waking up at night a lot, and I have the same issue. I wake up many times a night to either go to the bathroom or because of the hot flashes from Lupron/Zytega. Also going through RT. Turning the light on in the bathroom would wake me up more where it is harder to go to sleep, and sometimes wake my wife up. We found a toilet seat at Lowes with a nightlight (blue light). We love it because I do not have to put a light on, and can get to sleep easier. People laughed when we bought it but it is very useful.
Not Sleeping Well: I saw a post... - Advanced Prostate...
Not Sleeping Well
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Billy_Boe
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Ha ha, I love it. Lowes, is it battery operated or do you plug it into a socket? I use a night light but sometimes I feel like I could use more light.
It is battery powered. We ended up buying a couple of them. Even our kids think they are cool.
Yeah I have those , motion activated various to choose an effects. Turn my toilet into mini swimming pool .... and yes the dreaded tootsie roll staring back at me!
Some would suggest that even that minimal light (any light!) from the seat is enough to trigger the brain into thinking "daylight" and turning off melatonin production by the pineal gland. That is the rationale for avoiding light sources (especially blue) before bed and maintaining maximal dark during the night.
Is this true? And how much difference does it really make, any way? I can't say. But I can say that after I pulled it off for a few weeks, it was too difficult for me to care enough to maintain and I gave up altogether. (Back to watching TV and computer screens right up til bedtime, which I know is unwise.)
in reply to noahware
😂
Yea , I can wake up a lot at night as well. Mostly to pee but because of assorted pains caused by skeletal bone joint deformations caused by my mets. I can “ go “ 6 - 8 or more times a night sometimes.
I keep one of those wide mouth orange juice jugs beside my bed and all I have to do is roll over , grab it ... use it ... and put it back. After a while, you hardly ( if ever ) wake up much ... it’s quick , easy, and sanitary .. and you go right back to full sleep quickly ( plus your wife loves it as it reduces toilet area cleanup 50% ) Dump it the next morning, rinse it out ... put a glug of isopropyl alcohol in it and it’s ready for the next night. ( keep the lid on tight and try not to knock it over at night reaching for it )
Pain wise ... those time delay morphine capsules, instead of the plain norco tablets makes for a much longer pain relieved nights sleep.
This is just what I do, your mileage will vary.
💪💪💪👍👍👍😁😁😁
Just don't forget what's in the orange juice jug.
Ewwwwwwwww Yayahahahaya yayahahahaya yikes
Good one.
I sleep in a waterbed and in my condition just getting out of bed is challenging and takes a bit ( bad if you have to go NOW ) ... worse I sleep hooked up to a apap hose and “ two “ masks. If I had to “ unhook “ everything and then manage to climb out of the water bed it would be disastrous yayahahahaya Innovation is the key there. I can tell you that when your joints are as messed up as mine are and when you run adt - Zometa hot sweats then chills at night .... nothing beats the comfort of a well heated water bed. Very comfy outright , like sleeping on a heated hot pad , leave the ceiling fan on and just covering or uncovering fixes the adt sweats or chills. Since I sleep on a apap, those have built in analytics to tell you about the sleep quality of your nights sleep. With my set up, I generally sleep with a ahi ( apnea hypoxia index ) of less than one .... better than a newborn baby in other words. For me a good nights sleep in criticality important. I used to wake up to 150 times a night , never achieving rem sleep .... ahi of 85. A good night sleep helps meet the new day.
Peace buddy ... hope you manage to avoid “ the bug “ 💪💪💪
I too sleep in a water bed.... it's called depends..............
Good Luck, Good Health and Good Humor.
j-o-h-n Saturday 04/04/2020 4:55 PM DST
Well depends is a whole lot like my waterbed. Depends has that gel pak in the bottom to soak things up ....
My waterbed has been there over twenty years .... the water has turned to a kind of green gel now too. .... nice waveless effect. The custom body shaped depression in the middle is real comfy.
You do have to keep the temp up reliably... if you let it get low / cold .... the gel starts moving around and keeps you up at night.
😂😂😂😂😂
I guess you got the sleep number water bed.... number H20.....
😂😂😂😂😂
Good Luck, Good Health and Good Humor.
j-o-h-n Tuesday 04/07/2020 4:41 PM DST
I figure that if this virus things lasts too long and food gets low, we can cut the bed open and cook the green stuff ..... yummmmmmy 😱
Not a bad idea.... maybe cut up and peel some apples place them in and freeze the green stuff. Could be called Smello....
Good Luck, Good Health and Good Humor.
j-o-h-n Tuesday 04/07/2020 9:36 PM DST
Thank you Kaliber for your regime, greatly appreciated!
💪💪💪✌️✌️
I’ve been on the midnight pee train five years now. I relate to all you say . We are the same ...I’ve got to get that led seat light . For the same reasons. Be well and hang in there ..✌️
monte1111 in reply to
I finally found a supply of toilet paper and am now an official toilet paper hoarder. I learned my lesson and am running to my nearest Lowe's before there is a toilet seat shortage.
lavis in reply to
You can order them on Amazon.
They now have re-chargeable one's and they are great.
in reply to lavis
I’ve a three pac on order .😊
Kaliber in reply to
Ok ...... uh ...... . wait ........ what ?? ..... is that a three pak of toilet seats ....or toilet paper from Amazon ....
Lupron fooooooooog ....🦠
in reply to Kaliber
They got here next day . Toilet seat led colored lights . No more fumbling in the dark .. Whoo hoo !
Kaliber in reply to
You must have a fancy house needing three seats .... I dunno if I’d want more light in my bathroom, especially around the toilet .... shriveled hose = bad aim = dark is good yayahahahaya
😁😁😁😁
This study compared reading on an iPad (which is heavily blue-light) before sleep to reading paper books with reflected light. In a very small study (12 young adults), the iPad kept people awake longer.
However, irradiance and duration have effects too. Briefly seeing a dimly lit toilet seat which you are then sitting upon may not be enough to reset your internal clock:
ncbi.nlm.nih.gov/pmc/articl...
The bottom line is if it works for you. Also, I think it must look cool.
Yes....these simple herbs do work for a lot of people...why no melatonin in the list..Melatonin works well for many.
Get a backlit kindle and some good books loaded. Reading will calm your mind after waking and you'll sleep like a teenager. From experience. Good luck.
Bill_Boe....... don't pee on your toe............ Seriously, besides the night light... tells us more about your history/bio..... all info is voluntary. Thanks....
BTW I used to tie it in a knot.... those days are way way over....
Good Luck, Good Health and Good Humor.
j-o-h-n Saturday 04/04/2020 12:15 AM DST
My solution to the nighttime pee trips is to keep my eyes closed and sit to pee. After 10 years I have the route down pat. A worse problem I have is when peeing in a urinal I have to watch out that I don't backsplash and pee on my leg. I had an infection from the catheter at the opening and it tries to heal up, partial blocking flow. I had to have two treatments in the urologist's office and one in the hospital to stop the healing. I refused to have a third treatment in the office.
That works for me. I know the path and just peek my eyes open and sit to pee. My wife says I fall back asleep before I hit the pillow.
Schwah
Been a long time since I've had to worry about backsplash. Ever have those contests to see who could pee the farthest? (That's a funny word.) Always fun in the snow. Of course I had an advantage with my 13 inch hose. Now my 3 incher just dribbles. I suggest you sit and then close your eyes. You may be a perfect candidate for a flashing led toilet seat. Anyone who has forgot to put the toilet seat down knows why women grumble so much. And I guess, when they gotta go, they gotta go.
New too. I’m a sitter at 1am
in reply to toml77
Peeing down the leg with APC is par for the coarse. Damed now tiny penis must be handled with care in aiming . I didn’t pee for almost two years . Foley and tubes . Now every single time I pee without pain . I Thank god that I’m peeing at all .
Good to see you back up and writing those did bits of wisdim, oh crappola I am from Georgia and even my spell check is not that smart....Blue Skies,,,,,Sky King and Penny (woof)
in reply to pilot52
My spl ck turns my slang into gibberish .. it world wide .
I heard a pair of vise grips works just fine.
Lucky you ... after adt , now tweezers ( mink covered tweezers of course ) are too big yayahahahaya. 😂😂😂
Yeah but not the ones made in China.......
Good Luck, Good Health and Good Humor.
j-o-h-n Saturday 04/04/2020 2:15 PM DST
Ewwwwwwwwwwwwww .... definitely it 😂😂😂😂😂. Not NYC either ....
Bragger ... yayahahahaya 😂😂😂😂
Not bragging, just saying I was a model in an Italian sausage manufacturing company... The Spicey Ones.....
Good Luck, Good Health and Good Humor.
j-o-h-n Saturday 04/04/2020 2:18 PM DST
For me, a bite of cannabis cookie works best. After 15 years of getting my sleep in dibs and drabs of 1 to three hours, I now either sleep all night uninterrupted, or I get up once to pee and then sleep the rest of the night. It really does seem like a miracle . And since a number of studies have determined that cannabis is helpful against prostate cancer... what's not to like?
Cannabis cookies worked for me as well ... but now I’m on the “ Kaiser opiates contract “ and they don’t allow anything not prescribed and cannabis is the first thing on their banned list. They dap me randomly and even grab an extra vial of bold from my monthly bloodwork as part of their surveillance program. They are very hardcore with me. If I break the contract they automatically cancel your opiate prescriptions and can bounce you out of their coverage if they want.
Kaliber, I had no idea hospitals and the plans were that strict ... sounds like a police state at Kaiser
Kaiser is on a real opioid trip. They look for reasons to NOT subscribe.
I think the state of California has a big hand in it too. Kaiser will only give you 7 Vicodin’s in a bottle after walk-in outpatient day surgery and it’s not renewable. They give me 100s and 100s of Vicodin’s and 100s of dilaudid ..... the state makes them monitor me for opiates abuse ( prescribed levels of opioids present in bloodwork, no drugs on the banned list and they also can make me bring in the jar to count them now and then ) ... plus I have to keep a fresh Narcan OD kit at home too. Far as I understand only patients that are hospice, palliative and stage four can receive opiates like that from Kaiser ... basically just the croakers like me.
My wife has seriously debilitating osteoarthritis and used to get Vicodin‘s every month .... Kaiser quit handing them out .... and now tell her to exercise away the pain yayahahahaya talking about draconian.
Knowledgeable people know how to get high-grade pain meds right off of Amazon.com ... so it’s no biggie. Since I’m dap tested I can’t use them ... my wife can tho. She won’t touch mine ... won’t take them out of the mouth of a croaking husband she says ....
Go figure yayahahahaya
💪💪💪👍👍
Yes, the State is putting the screws to Kaiser no doubt. I agree about Amazon too.
My insurance is thru OPM federal government... cannabis is still illegal federally. That’s my guess ....
in reply to Brianbcollins
Mmm 🍪
I use a urine bottle next to my bed with a small torch nearby so am able to go back to sleep with out much trouble. People have laughed at me too, but feel it is the best thing for me as sliced bread!!
Ok. I'm not touching urine bottles, torches and sliced bread. All in the same two sentences. I hope torch is an across the pond word for flashlight. I guarantee you, most of the people on this site should not be anywhere near a torch.
We have a night light too! My husband definitely doesn’t sleep well, rarely has. He suffers from sleep apnea and tried using the machine but he also gets a blocked nose from various allergies, so it is a lose-lose situation. He does sleep better if he doesn’t drink too much alcohol the night before, if that helps... he also seems to sleep better if he has had simple food rather than anything too rich. Last but not least, he sleeps his best if he has physically worked hard during the day and is super-tired. I find if he wakes up for more than an hour, it helps if I make him a hot milk (& malt) drink. He sleeps like a baby for hours after that! 😀
You are super. My wife wouldn't even get me a beer out of the refrigerator.
in reply to Doggedness
Nice
I use a pitcher next to my bed so I don't have to walk to the bathroom. It expedites the process so I can get back to sleep right away. No lights Make sure you store it close but out of the way
My father has the EXACT same issues, and is on the same meds. He gets a "prescription strength" melatonin that has helped from Dr. Geo Espinosa's line. He's a STELLAR and very personable MD, Urologist that specializes in Men's Health. I urge ALL men to follow his blog and to get his newsletter.
Be well and God Bless!
I'm just getting started on Eligard (in my 2nd week and taking Bicalutamide for another week) and so far I only need to get up once for a pee if I stop eating and drinking after 6pm although I take a drink when I get up to pee. This method seems to cut out the night time overheating. There's enough light in the house to allow for a pee without putting the light on.
Hey all. I finally feel I have some experience that may be helpful to write. Low dose estrogen patch (.1mg) changed my life. Thanks to you guys I knew to ask my urologist about it. After a year of Lupron and horrid sleep peeing and sweating and taking a long time to get back to sleep I was exhausted all the time. I also started melatonin which seems to help too. Taking 20 mg while reading, often these posts, before sleep is my current routine. I used to get up to pee and/or just wake to sweat 5-6 times a night. Now I get up to pee 1- 2 times and go right back to sleep. I still get an occasional flash now, but I no longer have to carry a towel around to mop up.
Had the same issues when I started ADT. Thought if I could just get into deep REM sleep I might get through most of the night; or at least better quality rest if only for a short period. Last year my MO prescribed 50mg Trazodone to be taken 1 hr before bed w/ 3mg Melatonin. No one likes to take more meds, including and especially me, but gave it a try.
I only took the Rx 1-2x evenings per week for a couple months, and now I get through the night waking only 1x to pee, and sometime not at all, even though I rarely use the meds any more. Sleeping through all the mild hot flashes, but still wake up for the occasional sweat lodge episodes. Could be just coincidence, and time or something else caused/helped with resolution, but might be worth a try.
I got tored of fighting it. I take some pills for it. I nevet sleep longer than 4 hrs.
Sleep apnea is a silent disease that causes kidneys to be more active while sleeping. There is no way to know you have it until you get tested. Treatment often reduces the number of bathroom trips. Sleep apnea causes many other health issues. Get tested.
in reply to ron_bucher
I think you are right. I got tested for sleep apnea prior to a-fib ablation surgery. I was found to have sleep apnea and was issued a CPAP machine with a full face mask. One clue was that 99% of my a-fib episodes occurred while sleeping and sleep apnea is very much correlated to a-fib problems. In using that CPAP machine I've found that I can sometimes go the whole night without getting up to pee. Of course, taking the mask off and putting it back on is a hassle so that discourages bathroom trips too. I didn't fit the typical sleep apnea profile of being overweight and a loud snorer.
ron_bucher in reply to
My wife is a dentist who began screening and treating sleep apnea 10+ years ago. I did not fit the profile, but I was #1 guinea pig for her take home device she uses with her patients for screening. Some mild to moderate cases can be treated with an oral appliance. I've used CPAP and/or oral appliance since getting diagnosed. When every cell in the body is robbed of oxygen, negative health effects are cumulative and could be unlimited.
in reply to ron_bucher
I'm wondering why my GP or conventional (not EP) cardiologist never had me tested. I've complained of fatigue for years. Guess I just didn't look the part.
ron_bucher in reply to
A vast majority of doctors are late to the table in recognizing sleep apnea and testing patients. I suspect the main reason is that immediate symptoms are invisible, so patients rarely or never complain about sleep. US doctors have historically been trained to treat symptoms, not to prevent problems. It might be the most under-diagnosed medical problem. It might take decades to kill some people, but it does it in stealth mode. If you believe in the value of PSA tests, testing for sleep apnea can be as valuable or more.
Half a bottle of Jack Daniels works well. So long as you don't have to get up before noon.
Joking aside, alcohol exacerbates sleep apnea and other sleep problems.
Three old geezers sitting on a park bench talking about their issues when making number 1 and number 2 in their nursing homes. Finally Howard says he has no trouble with his number 1 since every morning at 6 AM it's like a roaring river and at 7 AM his number 2 is like a mighty mud slide....however unfortunately they don't get him out of bed until 10 AM.....
Good Luck, Good Health and Good Humor.
j-o-h-n Saturday 04/04/2020 2:02 PM DST
What I did was I went to home depot and got a small round battery operated push light, very lightly spray painted it red, (WWII submariners used red light to get their eyes accustomed to the dark before going top side at night) this is supposed to not mess with your body clock, then used this to light the toilet area...worked
As a submariner, gotta say this is a good idea.
in reply to 900312611
Aircraft carriers use red lights in the hangar deck out of concern for those pesky Russian or Chinese subs.
Twist a garden hose onto your honker........and let it empty right into the toilet.....A Rubber or Plastic one, it doesn't matter...But make sure to color coordinate it so it will blend in with all your rugs throughout your house.........
Good Luck, Good Health and Good Humor.
j-o-h-n Saturday 04/04/2020 5:05 PM DST
Ambien!!!!!!!
Well the hot flashes wake me up every night , we’ll did. Now with this virus, I just stay up all night and work on my novel, and I’ve never had a 9 to 5 job, so it comes naturally, no drugs! Just Vicodin to ease the pain in my bones, and give me a mild endorphin high. It’s not addictive like the other more potent stuff they wanted to give me. I was supposed to be dead a year ago according to RWJ. Love my new oncologist, but miss my balls! Yeah I’m a bachelor so I can do this kind of thing. It works for me ! Good luck my friend, this is a great site, with tremendous info and great people. But I’m writing all the time, so when I take a break, it’s usually not on cyber land!
It’s kinda good to keep the differences in medical terminology in mind when speaking of opiates .. not having them right can confuse your medical support crew and not convey your thoughts properly.
Addiction is a mental disease , not caused by physical dependence directly. People can be addicted to many things like drugs, sex, watches , buying things and lots of others.
Dependency is what happens with long term opiate use. All people that take opiates for an extended period of time build up extra opioid receptors , physically, in their brain. As time passes more and more receptors grow which causes “ tolerance “ which seems like “ loss of potency “ ... basically your body wanting more opioids to satisfy the additional receptors. The higher the dosage of opiates the larger amount of hungry receptors grow begging to be fed. It’s an endless cycle with opiates. Hydrocodone ( Vicodin’s) is equal 1 / 1 potency with morphine. morphine causes more of a physical buzz / high tho. All opiates cause dependency due to receptor growth ... and many personality types become addicted to opiate use as well.
Trying to get by keeping your dosage levels low is a good thing with opiates.
Peace brother ✌️✌️✌️
I choose scotch and1mg of Xanax at 5 in the morning, then sleep till 1 or 2 pm. I’m a bachelor, can do these things! It works I just got up at 2:15 pm after getting 9 hours of deep sleep! Not one hot flash! And I get them bad, some lasting 15 plus minutes! My last psa went from below zero to 1, think my manjunk is pissed at me! Lol
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