Numbers Follow-up

For those who have followed the results of my 2004 six month clinical trial, all remains normal. PSA, <0.1 & T, 526.1. Dr. Robert Amato was simply amazing with his research on metastatic prostate cancer. God Bless his Soul.

I wish all success in kicking this bastard.

Gourd Dancer

[tom67inMA]

...so why isn't everybody getting this treatment?

[Hidden in reply to tom67inMA]

Tom simple answer is that it does not appear to work for many. The people in my trial cohort with complete responses all had something in common. Chemo as soon as Mets diagnosed..... talking within three months. I was six weeks.

I asked same question to a room full of Oncology Professors at a major medical school recently. Essentially, since my guy was world renown in his research, he was given permission to exceed SOC. SOC was changed to an Ultra SOC for research. The trial did not have the total results effect change. The cohort ranged from Gleason 7 to 10.... frankly those on their last legs could not physically withstand the treatment.

My guy told me early on that researchers found out how the kill cancer. However not without killing the patient. He thought that he had the doses and combinations down for a person before the ravishes of the disease and without co-morbidity. I fit that description; most did not.

GD

[tom67inMA in reply to Hidden]

I feared it was an "all or nothing" situation where you kill or cure the patient. The medical establishment is happier with mediocre results that kill fewer patients.

[Schwah]

What Exactly did you get? And why did you decide to get testosterone replacement?

Schwah

[Hidden in reply to Schwah]

Dr A stopped Lupron injections in February 2010 to verify his findings. My T was <5.0. After a year, T never came back. And to orove his point and to help me feel better .... testosterone makes one feel better.... I started 4mg of Androgel twice a week. I still use the Androgel or my T drops back to <5.0.

My treatment killed my ability to produce testosterone

GD

[Schwah in reply to Hidden]

And what cancer treatment protocol did you use? It apparently worked well.

Schwah

[Daddyishealing in reply to Schwah]

Hey. I am sorry I have not been on here as I've been focused on my own health. My dad is stable and ill update my info on his treatment. Ty all just knowing you are out there gourd helps. I missed the initial post on your treatment. Can you post a link to initial explanation /post. Congrats and many many many many more successful besutiful years to all

[Hidden in reply to Daddyishealing]

Thank you very much for your kind words. Multiple postings in archives of this site and Google under Gourd Dancer Advanced Prostate Cancer. If you are having diffuculty funding, then I will post again.

GD

[Hidden in reply to Schwah]

Schwah, it was a clinical trial in 2004 that went beyond SOC limits. Unless there is a researcher continuing the protocol, it is no longer available. Community Oncologists just do not have the flexibility of Academic Oncologists. Research and Trials are tightly regulated in an effort to due no harm. Besides it did not work for everyone or even a majority due to primarily scope of disease. I was most fortunate in my time as a guinea pig....... as explained to me recently by the head of a major medical school, this was what may be considered Ultra Standard of Care given by a world class researcher that is not the norm,

Research continues to go on in looking for a cure that will help the majority, until then research aimed at longevity for the majority remains the focus.

GD

[addicted2cycling in reply to Hidden]

Fantastic reading your post.

Another "GUINEA PIG" here but of my own accord as an individual experiment with no blessings from anywhere. Treatment of my Gleason 10 along with a cocktail of drugs injected in 2015 with initial good results but jump in PSA now happening. Scan will be in early Feb. to check for spread/mets. Not letting my 2015 orchiectomy or the Gleason 10 get me down. Part of "outside the box protocol" is my Cypionate bi-weekly T injections that has allowed active life like today's 71 mile bicycle ride after Tuesday's 41 miler, Monday's 41 miler and last Saturday's 177 miler. Not sure what new direction will be if something shows up but your protocol sounds interesting and since I'm far from having even 1 foot below the surface maybe I would fair better than the majority of others.

If results are not good from the scan maybe I could contact you????

[erjlg3]

So great to hear Gourd Dancer!! Thanks for the update. So happy you are doing good!! Wishing you all of the VERY BEST!

Jackie