Follow up at Duke !!: not sure who... - Advanced Prostate...

Advanced Prostate Cancer

21,019 members26,198 posts

Follow up at Duke !!

warrior22 profile image
20 Replies

not sure who, maybe Tall Allen, recommended Dr. Andrew Armstrong at Duke. He was charming, not rushed at all, had reviewed all our care up to this , our second opinion. He confirmed that PSMA PET is now SOC and would have been indicated prior to ADT. Also referenced the STAMPEDE info and affirmed that zytiga in addition to ADT is recommended. We were only started on ADT one year ago. Zytiga now for the last 6 weeks so appreciate his knowledge and uplifting guidance.

GREAT referral and well worth the 6 hour drive !!!!!

Written by
warrior22 profile image
warrior22
To view profiles and participate in discussions please or .
Read more about...
20 Replies
Zengal79 profile image
Zengal79

Glad that you’re feeling confident in your care now and treatment plan. Try to get out there and live your best life! Best wishes on the journey.

Tall_Allen profile image
Tall_Allen

Glad it worked out.

tn12 profile image
tn12 in reply to Tall_Allen

Hi TA, are you able to recommend an oncologist in the Toronto area? We are in Ottawa. My husband had his RP in Dec 2021. Looking for a 2nd opinion when to start radiation & ADT. Many thanks

Tall_Allen profile image
Tall_Allen in reply to tn12

I can recommend Andrew Loblaw at Sunnybrook.

tn12 profile image
tn12 in reply to Tall_Allen

Thank you, I'll check him out

tn12 profile image
tn12 in reply to Tall_Allen

He met with Dr Loblaw this week, thanks again for the recommendation. He concurs with local RO, will wait until 0.1 for further treatment. He said a psma pet scan at 0.2 is only 20% accurate.

tn12 profile image
tn12 in reply to tn12

Hi TA, after 24 months post RP PSA was 0.02. yesterday's PSA is 0.04. do you think he should initiate radiation now or wait closer to 0.1 as RO suggested. I'm starting to worry.

It is good to get the word from a pro ..😎👏👏👏👏

Loudlibrarian profile image
Loudlibrarian

He’s wonderful. We consulted with him too. Pluvicto was next for my husband and he called us on a Friday evening when the supply issue occurred in March to discuss next step. I’m always thankful for Docs who take the time to call and write outside of office hours. Glad you’ve connected with him. It’s a 4.5 drive for us and worth it!

warrior22 profile image
warrior22 in reply to Loudlibrarian

worth every mile.

RayF profile image
RayF in reply to Loudlibrarian

I'm with Dr George at Duke, I'm fortunate its only 90 minutes away. I have scans in May, I check out the Duke Gardens when there is time between bloods, scans and the Dr appt.

Newdiag-NC profile image
Newdiag-NC in reply to RayF

Hi Ray!

Our drive to see Dr. George at Duke is also 90 minutes. Wonder if we’ve crossed paths!😁

Sherry

RayF profile image
RayF in reply to Newdiag-NC

Possible! I'm in Winston Salem, going there 4 times a year is not bad.

RayF profile image
RayF in reply to Newdiag-NC

Hello Sherry, my appt. last week started at 7 am with the blood draw and IV. That was so early I went a day early and got a hotel. My son called and said the Durham Bulls were playing baseball that night, so I saw the game. Highly recommended if you all are into baseball. AAA minor league affiliated with Tampa Bay. Legit talent.I had a Dexa scan, CT with contrast, bone scan with contrast. No new mets, very happy with the results. PSA .04 after 4.5 years, I feel quite fortunate.

Kaliber profile image
Kaliber

that’s great, good news is always good to hear on the group.

❤️❤️❤️

SimplyT profile image
SimplyT

He is wonderful person and extremely knowledgeable. He is my MO and I’m currently involved with the Duke Champ trial. Excellent service from Dr Armstrong and the staff at Duke.

warrior22 profile image
warrior22 in reply to SimplyT

Love Dr Armstrong too

jmarsh profile image
jmarsh

That's my doc too! I have been on Lupron and zytiga for about 9 months. He recommended it to start for at least 4 weeks prior to radiation. That's what we did. So far, so good. I tolerate the drugs pretty well. Moderate hot flashes, but tolerable. About zero libido. Tiny testicles now. Testosterone <10. He said they added Zytiga (Abiraterone) immediately after the Stampede results were published in fall 2021. He said it improved the recurrence rate from about 50% to 20%.

warrior22 profile image
warrior22 in reply to jmarsh

loved him !!!! So calm and articulate. 🌺🌺

j-o-h-n profile image
j-o-h-n

Good Marriage................................. now ask him if he makes house calls?.........

j-o-h-n <===<<< Senior management is about to spike my spikes....

Good Luck, Good Health and Good Humor.

j-o-h-n Friday 04/14/2023 7:16 PM DST

You may also like...

Hyperthermia Follow Up

he'll probably opt for more hyperthermia vs additional ADT because the side effects are so awful...

Follow up on Salvage RT

SBRT Treatment Follow Up

removed, my PSA tripled, in 6 months, from .8 to 2.50. Pet scan showed four tumors in my bones....

radiation proctitis follow up

PSA rising…..Duke Champ?

psa increased from.01 to.27 after 15 months of Zytiga. Test today showed it at .67. Unfortunately,...