IGRT started

[Pizzle123]

Hi everyone on HU, I haven't posted for some time but I regularly read post so just an update on my situation. Back in June when I had my first shot of Eligard my PSA had risen to 200, 3 months later my PSA was at 12 and I had my second shot of Eligard and now into December started IGRT at the ICON cancer centre in Cairns north Queensland. I had gold seeds inserted on the 4th of November. Just finished my first week of radiation and have a meeting with my Oncologist next week. Everything seems to be going ok atm except yesterday I had a fair amount of discomfort when urinating which has disappeared this morning. I will be having 39 sessions of radiation with 5 done already.

Cheers all Regards Glenn

[Danielgreer]

Hi Pizzle123, great that your PSA dropped significantly. Good luck with your RT!

[Tall_Allen]

Did you have a bone scan?

[Pizzle123 in reply to Tall_Allen]

Hi TA not sure what answer you are looking for, I know I've had more scans of my carcass than I can remember the last being a PET PSMA back in about May this year, a MRI previous to that and multiple others previous to that. The PET scan showed the primary pca and 2 small metasties in the iliac glands???

[Tall_Allen in reply to Pizzle123]

I suggest you discuss a shorter regimen of IMRT (20-25 treatments) followed by a brachytherapy boost to the prostate and two years of Eligard. I assume the IMRT includes all the pelvic lymph nodes up through the common iliacs, with a boost dose to the known metastases. This usually has much better results than IMRT alone, but I don't know if you can get it in Cairns.

pcnrv.blogspot.com/2017/03/...

[Pizzle123 in reply to Tall_Allen]

Thanks for info Allen I will see my oncologist next week and pass this info on and see what she thinks about your idea. sorry for the late reply as I've been in Cairns for the week and haven't had access to a PC to check my email.

cheers Glenn

[tookiemaster]

I will finish 8 weeks of IMRT/IGRT next week. I had some discomfort urinating early on and my rad onc suggested cranberry juice, the 100% pure cranberry stuff that is super sour. Don't know if you can get it there though. I add several packs of Splenda to it to sweeten it up a bit. I take about 3 ounces twice a day. Cost about $6 a quart here. I still have some discomfort but it has not gotten worse. At least it isn't painful to pee. But I do urinate often, every 1 to 1.5 hours. And sometimes flow is very low and it takes a minute or so to get it to start then. Rad onc prescribed Tamulosin which helps the flow. Appears I am not able to fully empty my bladder any more. Hope this gets better after treatment is over.

[Pizzle123 in reply to tookiemaster]

Thank you for your input, sounds like that might be worth trying as Thursday night I had the same thing happen when urinating. I could liken it to pissing razors. I have some ural to try but I will try anything to lessen the pain.

Thanks again Glenn

[j-o-h-n]

The frigin kaka never stops.............Geezamacripe....Mate

Good Luck, Good Health and Good Humor.

j-o-h-n Saturday 12/07/2019 1:26 PM EST - Day of Infamy

[db1966]

Good luck. Keep me posted on your progress. I’m starting IGRT in the new year. I had a 212 psa 4 years ago and 0.8 today.

[Pizzle123 in reply to db1966]

Hi Dermotpat, I will keep you up to date on my progress. The main thing to remember is a full bladder and an empty bowel. I've never drank so much water in my life and never pissed so much in my life. It's hard when you are driving in the country and you have to pee and there is no toilets in sight lol, so you either pull up and pee wherever or tie a knot in it. The other thing is don't stress about it. It is painless and only takes a few minutes to do.

regards Glenn