Thanksgiving: Just to wish all you... - Advanced Prostate...

Advanced Prostate Cancer

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Thanksgiving

16starsky profile image
14 Replies

Just to wish all you 'Yankee doodle dandys on this site a very happy Thanksgiving, from a 'Limey' that is very thankful that I found this site, with its wealth of knowledge from people like TA, Nal, DonP, and MANY others that take the time to research and post all of your findings, for people like me that need it in plain English Thankyou all, and enjoy your special day

Kim in the UK.

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16starsky profile image
16starsky
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14 Replies
Jimhoy profile image
Jimhoy

As a Red Sox fan, we consider a Yankee to be a the same as a quickie only by yourself!!!!

16starsky profile image
16starsky in reply to Jimhoy

OOhh!

Jimhoy profile image
Jimhoy in reply to 16starsky

Back at you for a happy thanksgiving to you and yours!. Sure it’s just another workday at your home in the UK.

My comment was towards any rival team member on the site.

Hope all is well as can be as we prepare for the x-mas countdown!

Be well

Jc

16starsky profile image
16starsky in reply to Jimhoy

I only work Sundays now. Worked full time for many years. Yes we don't have thanksgiving here as you know, Hope you enjoyed yours.

I follow a footie team in the UK ( you call it Soccer, I believe, ) and yes we have a similar rude name for rival supporters especially Man Unt fans !

Yes wont be long till Crimble , but my birthday before that. Also my hubbie has his 3 monthly PSA test on the 13th so keeping our fingers crossed for a low reading (standing at 1.9 at the mo)

Take care

Kim

Jimhoy profile image
Jimhoy in reply to 16starsky

Is that 3 months since the actual time of his 3 month depot.? Or 6month total injection period and 3 mo waiting?!

16starsky profile image
16starsky in reply to Jimhoy

He has a Lupron jab every 3months,on a Fri then on the following Mon we go to the Hospital for the results from the Oncologist. So we only have to wait over the weekend to find out what's happening.

Its stressful enough waiting 3 days , I could not possibly wait 3months I think the stress would do me in.

So praying the results are good, or our Chrimbo will be ruined !!!

Jimhoy profile image
Jimhoy in reply to 16starsky

I guess I just don’t understand!!!

First, Lupron will cause an initial spike in your PSA #’s. Getting a blood test that fast after a deposit, is not sensible to me!!!

Secondly, I got my 3mo Eligard deposit (same as lupron, different delivery sys))I don’t get tested for @ 3 to 6mo’s afterwards. Even @ 6mo’s out, I am ALWAYS full blown ADT. PSA <0.1 and T 18 (may as well be zero). My last test I was @9mo’s and my T was 103 and PSA was now 0.1 (lost the < less than symble).

So getting it checked directly AFTER a subsequent deposit tell you nothing!!

Lupron does not cure cancer. It chemically castrates the man where testosterone is produced. The cancer feeds on the testosterone and thusly, dies. Radiation or removal kills the bulk of them little bastards!

STOP

Initial response above. I went back and re-read your post!

Not the way My regiment went but, kind of makes sense if;

you get your PSA and T tested (prior) to your next Lupron deposit and get r

The results days later!!!! I am just above a novice at all this, but can still find wrong with that being so close timing. I think they do it that way for the old 30day shots!!

Read how my treatment went above and you’ll see what I mean!

My only thought is that would help out an Unsupported theory of mine that if no PSA is detected, postpone the next depot!!! Stop overdosing if the patient. If he is in ADT hold off on the drugs!!!!

Jc

16starsky profile image
16starsky in reply to Jimhoy

My husband is on Lupron for life. We are also on hr NHS here in the UK, and this is how it has been since we started all this over a year ago. Ive never thought to question the protocol, Just told this is how it is, but I will question this when we see the OC in Dec.

I know how Lupron works, maybe the Drs over here do things differently, maybe a bit behind the times ?Who knows.

Husband cannot have prostrate removed as it had gone to the bones at diagnosis. So they do not take it out in theUK, He has had chemo and some radiation treatment as in the STAMPEDE trial, but until his PSA goes up to 5.00 the OC will not intervene. ( I did question this as well ) and what told by the OC ' I will step in at the first sign of progression'. We in the UK obviously don't treat it as aggressively as they do in the USA.

We will use the NHS until options run out, then planning looking at LU-177 treatment privately

He is very well in his self, and no symptoms just the occasional hot sweat.

I'm going on the UK prostrate cancer web site now to ask the question you have posed ! Will let you know the response I get.

Thankyou for your concern

Kim

16starsky profile image
16starsky in reply to 16starsky

Ive been told by the people in the know at Prostrateuk that you only get PSA flare the first time it is given, so if you are on it continuously it does not matter when you have your blood taken. To be honest as long as his PSA continues to drop, or stay the same then I am happy.

My hubbie is stage 4 G9 PSA 320, now 1.9,

I suppose if we were being treated privately then we would get more of a say in the treatment that we are getting, but happy with it at the moment. If things change for the worse then look at other options, once we leave the NHS there is no going back.

As we have paid high taxes all our working lives, then we will stick with them at the present time, and put our trust in them.

Luckily Clints OC is youngish, and ontop of his game. not afraid to ask questions of him.

Once again thanks for your concern, enjoy your weekend

Kim

16starsky profile image
16starsky in reply to Jimhoy

Sorry, replied to myself (hit the wrong button) my reply is either above or below this post to you.

j-o-h-n profile image
j-o-h-n in reply to Jimhoy

As a Yankee fan....I want you to meet Dick...Dick is a Red Sox Fan.... Don't be a Dick....

Good Luck, Good Health and Good Humor.

j-o-h-n Friday 11/29.2019 4:32 PM EST

Jimhoy profile image
Jimhoy in reply to j-o-h-n

Better than being a spankee fan named Rick. That’s Rick with a silent “P”!!!!

j-o-h-n profile image
j-o-h-n in reply to Jimhoy

Oh i got it............ you mean Ripck.........

Good Luck, Good Health and Good Humor.

j-o-h-n Friday 11/29.2019 5:07 PM EST

Great luck for us to have you here ..

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