New Test Question: 18F-DCFPYL PET/ST and Ga 68

[Fox2018]

Hello-

Does anyone in the USA have experience with either of these two tests? If yes, where did you have it done?

Mike

[tango65]

I already had 4. Two were done at UCLA , they charge $ 2800. One was done at UCSF and the other in Munich.

There are clinical trials:

clinicaltrials.gov/ct2/resu...

clinicaltrials.gov/ct2/resu...

I read that the studies done at NIH may not have fees. I do not know how much they charge in other centers.

[Fox2018 in reply to tango65]

Thanks!

Mike

[tango65 in reply to Fox2018]

There are places that are recruiting, including NIH, according to the links. I know UCLA and Stanford are recruiting. I will have one done at Ucla by the end of the month.

Best of luck.

[AlanMeyer in reply to tango65]

My treatment in clinical trials at NCI was 100% free. Free (and extensive) diagnostic testing, free treatment, free hospital stay, free treatment of side effects, free follow-up, even free parking at the clinic. And the docs and staff were very impressive.

Alan

[Tall_Allen]

The big trial ended. You can try NIH or Johns Hopkins to see if they are still recruiting.

[Fox2018 in reply to Tall_Allen]

Thanks!

[jdm3 in reply to Fox2018]

I had the 18-F DCFPYL at Johns Hopkins in 2017. At the time it was through a trial run by Dr. Ken Pienta. In order to get the JH scan I needed bone and CAT scans within the previous six months for comparison. I don't know if that is still the case.

[FSB12 in reply to Fox2018]

My husband had one at Hopkins (same requirements as jdm3) in June 2019 but I think that they ended the trial. He was told that he just made it in. But these things do seem to change so calling makes sense.

[Break60]

I had axumin in Savannah and PSMA in UCSF. Both free .

[Fox2018]

OK - thanks!

[pupcat]

I had the 18F-DCFPYL scan done for trial at NIH which found mets to two pelvic lymph nodes and one rib, then same scan again for trial at Johns Hopkins Hosp which found same mets and included high intensity radiation to mets. The treatment did nothing for my PSA which was 5+ at the time. I later went to Mayo Clinic, Rochester, MN. My PSA by then was 11+. Their C-11 Choline scan showed I was widely metastatic through spine, ribs, pelvis, etc. Dr. Kwon sent me home to Cincinnati to get Lupron + Taxotere chemo which I just finished. I feel lousy due to the combo of side effects but my PSA is 0.025.

So, the 18F-DCFPYL scan only complicated my life. Maybe not all my cancer puts out PSMA, I don't know, but it obviously won't work for all of us.

Mike