I feel I have to chronicle this somewhat serendipitous side effect of ADT etc. Along with losing most of my sparce body hair.....i unexpectedly have also become an-odorous. I have no detectable body odour. I have to think this a return to prepubescent physiology. No matter how nervous or anxious I might become no BO....anyone?
Can we assume this an inverse T marker.....I think so.
Many guys report this
Clinically important?..or interest
I've ignored it, kidding around about the household water i'm saving with my SO....but maybe there's more to it than rotating my unlaundering t shirts til stiff.
Only to those in confined spaces with you.
Another weird thing is that now I have ideal body weight....And people who know me comment " You lost weight. .you look good...you look so much younger"
I think "only if if you knew" and smile.
No more old goat in the house. Feet don't stink, but with the amount of neuropothy treatments and Xtandi have left me with I can't feel them either.
Losing weight is unusual. Most gain weight particularly around the waist with ADT! But losing underarm , leg and chest hair has happened to me too.
Gained about 25lbs 6months after starting adt
I’m on a weight loss program . Down from 250 to 233 . Goal 200. Smaller portions, daily workouts. No junk food .
I need to start the same.... doc keeps emphasizing smaller portions
Joeguy
That’s right and I’ve started using an app to record what I eat so I don’t consume more than allotted calories to lose the desired weight plus I record calories used up on workouts so I know Net calorie intake each day. It sounds tedious but it works and it’s rewarding to see the weight come off! I got tired of looking like a slob and feeling like shit due to carrying excess fat!!
U can do it!
Anyone have an idea how one would manage to LOSE weight on ADT ( barring intense exercise and scrupulous dieting).... is this common ....?? Can understand why one might grow back scalp hair but unclear as to why body hair is lost....
Tommy...every man is little bit woman..and mostly man....every woman is little bit man but mostly woman...as men have high levels of testosterone and very low levels of estrogen...and it is opposite in case of women.
Women have long thick hairs on their scalp...when on ADT it makes us more like women hormonally and therefore ,we also develop more scalp hair ,and more fat deposition.
Even our temperament changes...Men on ADT (low testosterone) become less hostile/aggressive and more in touch with emotions. In other words, we develop some of our feminine side and become sensitive and tender emotionally.
OH CRAP!!! Feminine side, sensitive and tender emotionally.. . .Am I gay now???? Am I going to want to watch the bachelor, Dancing with the Stars, Glow?
I’m way ahead of you . I already watch the bachelor and AGT ,and cry often when the little kids sing .. can’t wait for DWTS...... haha , got to go with the flow.....
Hey Scott, Do you also walk around singing "I feel pretty", while putting your dainties away, in a much more organized process?
Hmm...
AJ
Hell no! I’m a macho guy even without t or balls .. I do appreciate nice high thread count sheets and feather pillows though .. nothing against the crossdresser ,just not my thing . Peace😂
Getting “ In touch” with our feminine side... 😂
Me. too. No BO. Lost much of my underarm hair
Same here, and skin is quite dry. Hardly need to take a shower but once a week just to get the scalp hair to lay down. I actually feel quite content with life, and the past year since my diagnosis has been the happiest.
Strangely, even though I sense the end is near, I am happy too 
Cannot say, like you, that this is the happiest I have been, though.
The happiest I have been was 10/10, now I am 8/10. Not too bad, eh ??
What is 10/10 and 8/10 ?
Ditto!
I'll explain, Lulu700.
On a scale of 1-10, where 1 is bad and 10 is fantastic in terms of "happiness", I now come in at 8/10, whereas prior to being detected with prostate cancer (18 months back), I was at 10/10 levels.
I don't smoke at all, having quit the habit approx 32 years back.
The levels I have indicated are realistic not exaggerated.
I am naturally a happy kind of person. Love to have fun and enjoy life.
Cheers, Lulu700, enjoy life !!!
I didn’t understand ,Now I do . But 8 out of ten ain’t bad by any standards . I was an overly optimistic guy until APC rang my bell . You’ve been under this gun like I have ...I’m happy mostly recently but I’ve put my sweet wife through some hell with my negative emotions over the past five years . I see being happy 8/10 as a great accomplishment brother.... Take care ..
I agree, Lulu700. 8/10 is simply superb.
I hope I stay this way. I think worst case, I will fall to 6/10, when severe pain takes over all day. But, it could be worse. I hope not. Lets see
Mama Mia! Pain? Pain is the enemy amigo . When I go into severe pain happiness goes out the freaking window. I try not to think of worst case scenario .Its like thinking about doomsday .. All that matters is that we are here today .. As long as the sun rises there is Hope for good .. Peace brother 🎢
Oddly, I'm happier now than before diagnosis. It's probably due to a combination of prednisone, celebrex, and no longer worrying about stupid stuff. Had a bit of depression before, but cancer treatment seems to have cured that.
Amazing stopping worrying about stupid stuff.. Great job!😎
Excellent, Tom67inMA, way to go !!!
10-4 is another ten code used in communications , means same as roger that and / .or OK .
dunno what you are smoking but I want some of that .... I'm just not finding much happiness in any of this crap , I could use a break ya ahay ahaya ahah ah a
OG kush brother... works for me... breaks up the dulldrums on this Mad Chemical project of ours. Take care ..
I like that idea .... soon as this Jack Herrer - white widow cookie wears off in a few hours , i’ll Try some OG . I might find a few crumbs of that lying around here someplace yayahahaha yayahahahaya.
Thank you brother... we got this ... literally yayahahaha.
Hahaha😂
In all of our lifespans we are closer to the end than we are to the beginning .. I thought that I was done in the first round ...I don’t make lite of death dear Sir . Nor do I fear it ..You are still here . As I am..Kicking and breathing the air . I for one am happy that you are .. keep rolling ... physicality is not what makes us human , it is our character and spirit . I hope today is a good one for you .. Peace overseas ..😂
All kidding aside .... it’s great to have a thread like this where so many like minded brothers chime in ... lightheartedly sharing their different takes on a common life altering - life consuming medical affliction. We truly are “ ALL bozos on this buss “ ( Firesign Theatre 1971 ... Google “ meaning of we’re all bozos on this buss “ for specifics if you aren’t familiar with it ) .... I believe that you can’t really appreciate this fully without being one of us. It’s good to get on here and smoke ‘n joke ... B.S. and vent now and then ( in between all the dreary serious chit here ) . It feels like it’s a good thing ... who gets this more than “ we “ do ? We all need this ...
Btw: if you use cannabis as part of your treatment regimen .. I highly recommend all of the Firesign Theatre CDs .. especially ... how can you be in two places at one time , the further adventures of Nick Danger third eye and We’re all bozos on this buss ... all from around 1970 or so. The more medicated the better when listening. The full content of each album should be available free on YouTube. If you want some absorbing , brain numbing fun ... give it a try. These have been out of print probably for 40 plus years but are still as hysterically funny as ever.
No one ... it’s just us chickens ... out here .. Take care brother ..
With that attitude ,you win Sir .. 🥳👏
True.
It is a silver lining. Some of my friends frequently call me Benjamin Button due to my more teenage-like lanky body and smooth skin. And lack of BO is nice, particularly during long travel! I also have virtually no anxiety attacks now which I think is a bit T-related but I give most of the kudos there to my daily meditation and weekly therapist that I adopted when this journey began. Peace. ✌️
Smart man! Taking care of yourself .
Took 2 years to grow back underarm hair, all 12 and 13 for each side.
Notice no eyebrows? Or just some to the middle part of the eyebrows.
How about not having to shave 2 weeks after chemo started?
Dry skin too. Still present on my forearms and legs.
FYI, 2 years after chemo I have now have some underarm odor.
Sweat glands (the oil part) and hair just take a hit.
But ... with ADT your hair grows back. Noticeable a year later.
Six months after stopping ADT it falls back out again.
That's my story. Hope that helps getting perspective on the process.
I wish you less to deal with.
If you are reading this, you are a survivor.
Wish you the best.
Nose hair..no more ear or nose hair....hows that for unexpected consequences....And to be truthful not focusing on sex...almost continuously is great for productivity.
Mine is strange, ican be outside in the heat and seat my ass off and no smell. During my short stint called sleep sweat only when i dream. The sheets smell after that. Cant pinpoint it but it smells. If i dont dream i dont smell.
Since we're wandering into a somnabulistic netherworld...tell me....do your dreams include hostile aliens or being stranded in an unidentified new england airport frantically searching for a non existent gate on an already departed aircraft connecting with a Chicago carrier with homicidal safety practices..those have been on my psychodramatic rotation of late.
Well, I worry that I'm the one that doesn't smell the body order but everyone else does. When I work hard outside, I sure do sweat. I thought that I lost my ability to smell. Don't know. All I do know, is that ice cream tastes better. Life is good.
Me too
I’ve experienced the same phenomenon. My wife confirms it. 😎. With all of the bad side effects of ADT (plus chemo) it’s nice to have a good side effect.
😀😀😀 yep no body odor, no eye brows, under arm hair but worst of all I lost my mustache that I’ve had for 50 years 😢😢😜😜😜
My mustache never came back either. I look like a high school kid trying to grow a stache. My eyebrows never grew back. I must look peculiar. Little girls and boys, and some adults have begun to hold the door open for me. The world turned upside down.
Hahaha😂
No mustache Dammmit!
Havent bought deoderant since 3month of adt...2 yrs ago....but oh what id give for that rock solid teenage boner.....
The only good side effects,an not having to shave everyday
Epocrine sweat glands in the armpits and groin are hormone-regulated. No hormone, no epocrine sweat. Epocrine sweat attracts bacteria which cause the smell. Enjoy your BO holiday, brother.
If you want to know where your body odor went, try smelling your urine.
I wonder what the poor coyotes think when they smell when I pee outdoors ?
That's what they are howling at now!
They know something is wrong ... 😂😂😂
How are you guys doing now?
Went to Elton John concert last night, and hiked around Tetons last week as a way of blowing off latest scans. Progression of mets, now in ribs and skull. PSA jumped from 4.8 to 7.5 in a month. Waiting for clinical trial. But still no pain. Back to Hawaii at end of month.
Son of a gun! Hiking Tetons and EJ in concert . You know how to live .. Aloha ...
Far less body hair. More hair on head. Go figure. No BO. Dry skin. To those who experience few or mild side effects, GREAT!! good for you. Very lucky.
YES! I Noticed the same thing!!
Second best effect of ADT and only pleasant side effect.
Same here .. no b.o. ,no underarm hair ... dry skin ... but the b.o. is replaced with xtandi odor. It’s in my arm pits , oozes out of my pores during my frequent drenching sweat spells, in what’s left in my groin area, oozes out the back all the time .... and in my pee and fecal material. Dunno if others can detect it but I’m swimming in it ... in my armpits it gets gooey sticky sometimes. Unlike some here that have a new slim body ... my weight jumped nearly 50 pounds almost instantly and I’m on a strict keto diet. Puffy feet , face all the time. I have a truckload of other adt side effects not mentioned here too.
I can also smell and taste the cancer ... dunno if others do this. A chemically plasticizer sorta odor - flavor that dominates the air around me ( in my nose ) the food I eat etc. it’s one of the things that led to my diagnosis.
The cancer smell and the xtandi odor combine into something different ... but often very pronounced at times.
Whoa😂
Yep, no body hair, eyebrows, etc. Hair seems thicker on head. Folks have told me I do look younger. Lost about 1 1/2" in height from Osteoporosis. Only body odor is from my left armpit. Go figure. Used to have a really nice beard, but that is also a thing of the past.
Wel... I think I would trade the no smell, no body hair, all the goodies mentioned for the good old boner mentioned once. WTF is why we are here, and of course to learn. Also, I don't really wanna be like a woman Just kidding!!
So roll on the good side effects and roll of the bad. I seem to have mild to none of any. The wonder of my ADT is it just a jelly pellet of fish oil
Love you all stay "alive and well" (that's my business name).
Alan NZ
Oh and one other thing! I what 10 stone or about 65 Kilo what was in my 20's. Today I am 65kilo in my 70's. I have been up to 75 Kilo. The weight is never the problem for me It was vanity the way I looked fitted (didn't fit my clothes) ;(
The reason is...
Now I drink 6 to 8 carrot/celery/apple/lemon juice per day. I eat potatoes and salmon with steamed veggies and almost a loaf of wholemeal bread snack on nuts, as a typical day -90% cocoa chocolate, Cashew nut porridge/mixed with semolina or Weetabix for breakie too. Oh, love sardines on toast with heaps of garlic. Love them dried and then mussy green peas.
Guaranteed to lose weight..
No dairy
No alcohol
No cake an or biscuits
No added sugar
No other drink other than than the juice and Alkaline water at about 3 liters a day
No meat except for fish and not big fish
Try to eat what is natural and organic...
I cycle 30 mins everyday lift my own body weight 200 to 300 times a day and then its just normal odd jobs.
I meditate 20/40 mins a day
If it is in a can, a packet or jar it's most likely processed.... probably not too good eh!... Now hey, this is only me and my ADT I feel fantastic look awesome. Always get great comments.
Love your life, Love your body tell yourself it's in perfect health. I take the minimum meds.
Love Ya... Seeya
Alan
I have been on Firmagon for seventeen months now.
My weight is about the same as when I started, I have lost a kilo or two but that is not really here nor there.
Hair, I had a full beard and moustache when I started out and they are still there but softer. My head hair was greying and thinning but it has grown back and gained colour so I look younger. I have lost most of my chest hair and underarm hair but my pubic hair is still pretty rampant.
My skin is noticeably softer.
I have gained in strength since the spring as I took on a garden and I have been doing a lot of spade work however I have lost endurance and I need to take more breaks but I am older as well.
In my case I totally disappeared and now everyone wonders where the stink is coming from?
Good Luck, Good Health and Good Humor.
j-o-h-n Monday 09/02/2019 1:53 PM DST - Pinnes
Perfect for the prankster...just remember to hang around the unjustly indignant in serving them ‘em up some of their own.
member the Pillsbury Dough boy in Ghostbusters ??? thats one of the many gifts the gift I received from the lupron - xtandi fairy. I told the fairy I wanted to look like a famous movie star celebrity and she granted my wish.
I'm absolutely not going to disappear ... I'm going to transform into a stylish shiny urn container of potash fertilizer and get sprinkled into a flood basin of top drawer cannabis hydroponic plants ... that way I can still get into people's heads long after I'm gone !!! I got this all figured out duuuuuuuuuuuuuuuudes .
I am the same . Almost five years on adt . Well! We don’t have to buy deodorant anymore ... Take it easy Jbooml..😎
Same here. And softer skin.
To neuter, or not to neuter? That is the question. 😀
How many treatments of Chemo can the body handle
clear PSMA scan but PSA still rising 
Have a wonderful 4th y'all 
Thought I had dodged a bullet, but the bullet found me
