Weird but wonderful?: I feel I have to... - Advanced Prostate...

Advanced Prostate Cancer
8,527 members9,536 posts

Weird but wonderful?

I feel I have to chronicle this somewhat serendipitous side effect of ADT etc. Along with losing most of my sparce body hair.....i unexpectedly have also become an-odorous. I have no detectable body odour. I have to think this a return to prepubescent physiology. No matter how nervous or anxious I might become no BO....anyone?

Can we assume this an inverse T marker.....I think so.

104 Replies
oldestnewest

Many guys report this

2 likes
Reply

Clinically important?..or interest

I've ignored it, kidding around about the household water i'm saving with my SO....but maybe there's more to it than rotating my unlaundering t shirts til stiff.

3 likes
Reply

Only to those in confined spaces with you.

7 likes
Reply

Another weird thing is that now I have ideal body weight....And people who know me comment " You lost weight. .you look good...you look so much younger"

I think "only if if you knew" and smile.

5 likes
Reply

No more old goat in the house. Feet don't stink, but with the amount of neuropothy treatments and Xtandi have left me with I can't feel them either.

2 likes
Reply

I wish I could make claim about my feet/golf shoes...the wet summer has rendered them a biohazard....I think the chemistry of footwear rot may include differing metabolic interactions.

2 likes
Reply

Losing weight is unusual. Most gain weight particularly around the waist with ADT! But losing underarm , leg and chest hair has happened to me too.

2 likes
Reply

Gained about 25lbs 6months after starting adt

1 like
Reply

I’m on a weight loss program . Down from 250 to 233 . Goal 200. Smaller portions, daily workouts. No junk food .

1 like
Reply

I need to start the same.... doc keeps emphasizing smaller portions

Reply

Joeguy

That’s right and I’ve started using an app to record what I eat so I don’t consume more than allotted calories to lose the desired weight plus I record calories used up on workouts so I know Net calorie intake each day. It sounds tedious but it works and it’s rewarding to see the weight come off! I got tired of looking like a slob and feeling like shit due to carrying excess fat!!

1 like
Reply

U can do it!

2 likes
Reply

Anyone have an idea how one would manage to LOSE weight on ADT ( barring intense exercise and scrupulous dieting).... is this common ....?? Can understand why one might grow back scalp hair but unclear as to why body hair is lost....

2 likes
Reply

Tommy...every man is little bit woman..and mostly man....every woman is little bit man but mostly woman...as men have high levels of testosterone and very low levels of estrogen...and it is opposite in case of women.

Women have long thick hairs on their scalp...when on ADT it makes us more like women hormonally and therefore ,we also develop more scalp hair ,and more fat deposition.

Even our temperament changes...Men on ADT (low testosterone) become less hostile/aggressive and more in touch with emotions. In other words, we develop some of our feminine side and become sensitive and tender emotionally.

1 like
Reply

OH CRAP!!! Feminine side, sensitive and tender emotionally.. . .Am I gay now???? Am I going to want to watch the bachelor, Dancing with the Stars, Glow?

3 likes
Reply

I’m way ahead of you . I already watch the bachelor and AGT ,and cry often when the little kids sing .. can’t wait for DWTS...... haha , got to go with the flow.....

1 like
Reply

Hey Scott, Do you also walk around singing "I feel pretty", while putting your dainties away, in a much more organized process?

Hmm...

AJ

1 like
Reply

Hell no! I’m a macho guy even without t or balls .. I do appreciate nice high thread count sheets and feather pillows though .. nothing against the crossdresser ,just not my thing . Peace😂

1 like
Reply

LOL, You always keep my spirits up!

Thanks

1 like
Reply

I have however always had a flare for interior design .. it’s up to us to put lipstick on the pig ... it’s still a pig...but f it ...

1 like
Reply

Getting “ In touch” with our feminine side... 😂

1 like
Reply

See above response to joe guy

Reply

I'm losing a small amount of weight. It seems my personal response to Abiraterone is some combination of increased metabolism, poor digestion, and lack of appetite. Weight loss I'd not common but it does happen.

Reply

..that’s braggin’.....I know we’re all survivors here..supporting each other sometimes embarrassingly...but you’re rubbing it in...most of us have a tool shed rivaling fatty arbuckle’s.

1 like
Reply

Me. too. No BO. Lost much of my underarm hair

2 likes
Reply

Same here, and skin is quite dry. Hardly need to take a shower but once a week just to get the scalp hair to lay down. I actually feel quite content with life, and the past year since my diagnosis has been the happiest.

3 likes
Reply

Strangely, even though I sense the end is near, I am happy too :-)

Cannot say, like you, that this is the happiest I have been, though.

The happiest I have been was 10/10, now I am 8/10. Not too bad, eh ?? :-)

9 likes
Reply

What is 10/10 and 8/10 ?

2 likes
Reply

it's like 10-4 but more ....

Reply

?

Reply

Ditto!

1 like
Reply

I'll explain, Lulu700.

On a scale of 1-10, where 1 is bad and 10 is fantastic in terms of "happiness", I now come in at 8/10, whereas prior to being detected with prostate cancer (18 months back), I was at 10/10 levels.

I don't smoke at all, having quit the habit approx 32 years back.

The levels I have indicated are realistic not exaggerated.

I am naturally a happy kind of person. Love to have fun and enjoy life.

Cheers, Lulu700, enjoy life !!!

1 like
Reply

I didn’t understand ,Now I do . But 8 out of ten ain’t bad by any standards . I was an overly optimistic guy until APC rang my bell . You’ve been under this gun like I have ...I’m happy mostly recently but I’ve put my sweet wife through some hell with my negative emotions over the past five years . I see being happy 8/10 as a great accomplishment brother.... Take care ..

2 likes
Reply

I agree, Lulu700. 8/10 is simply superb.

I hope I stay this way. I think worst case, I will fall to 6/10, when severe pain takes over all day. But, it could be worse. I hope not. Lets see :-)

2 likes
Reply

Mama Mia! Pain? Pain is the enemy amigo . When I go into severe pain happiness goes out the freaking window. I try not to think of worst case scenario .Its like thinking about doomsday .. All that matters is that we are here today .. As long as the sun rises there is Hope for good .. Peace brother 🎢

3 likes
Reply

Oddly, I'm happier now than before diagnosis. It's probably due to a combination of prednisone, celebrex, and no longer worrying about stupid stuff. Had a bit of depression before, but cancer treatment seems to have cured that.

5 likes
Reply

Amazing stopping worrying about stupid stuff.. Great job!😎

4 likes
Reply

Excellent, Tom67inMA, way to go !!!

2 likes
Reply

10-4 is another ten code used in communications , means same as roger that and / .or OK .

Reply

dunno what you are smoking but I want some of that .... I'm just not finding much happiness in any of this crap , I could use a break ya ahay ahaya ahah ah a

2 likes
Reply

OG kush brother... works for me... breaks up the dulldrums on this Mad Chemical project of ours. Take care ..

2 likes
Reply

I like that idea .... soon as this Jack Herrer - white widow cookie wears off in a few hours , i’ll Try some OG . I might find a few crumbs of that lying around here someplace yayahahaha yayahahahaya.

Thank you brother... we got this ... literally yayahahaha.

1 like
Reply

Hahaha😂

Reply

In all of our lifespans we are closer to the end than we are to the beginning .. I thought that I was done in the first round ...I don’t make lite of death dear Sir . Nor do I fear it ..You are still here . As I am..Kicking and breathing the air . I for one am happy that you are .. keep rolling ... physicality is not what makes us human , it is our character and spirit . I hope today is a good one for you .. Peace overseas ..😂

2 likes
Reply

All kidding aside .... it’s great to have a thread like this where so many like minded brothers chime in ... lightheartedly sharing their different takes on a common life altering - life consuming medical affliction. We truly are “ ALL bozos on this buss “ ( Firesign Theatre 1971 ... Google “ meaning of we’re all bozos on this buss “ for specifics if you aren’t familiar with it ) .... I believe that you can’t really appreciate this fully without being one of us. It’s good to get on here and smoke ‘n joke ... B.S. and vent now and then ( in between all the dreary serious chit here ) . It feels like it’s a good thing ... who gets this more than “ we “ do ? We all need this ...

2 likes
Reply

Btw: if you use cannabis as part of your treatment regimen .. I highly recommend all of the Firesign Theatre CDs .. especially ... how can you be in two places at one time , the further adventures of Nick Danger third eye and We’re all bozos on this buss ... all from around 1970 or so. The more medicated the better when listening. The full content of each album should be available free on YouTube. If you want some absorbing , brain numbing fun ... give it a try. These have been out of print probably for 40 plus years but are still as hysterically funny as ever.

2 likes
Reply

I’ll check into the fireside cds ..thanks😎

1 like
Reply

The one with pastor Rod Flash will make you flip. Those guys are masters of stoned messing with your head. Really entertaining. Let your visual imagery flow free.

Later brother

1 like
Reply

No one ... it’s just us chickens ... out here .. Take care brother ..

1 like
Reply

With that attitude ,you win Sir .. 🥳👏

1 like
Reply

True.

Reply

It is a silver lining. Some of my friends frequently call me Benjamin Button due to my more teenage-like lanky body and smooth skin. And lack of BO is nice, particularly during long travel! I also have virtually no anxiety attacks now which I think is a bit T-related but I give most of the kudos there to my daily meditation and weekly therapist that I adopted when this journey began. Peace. ✌️

4 likes
Reply

Smart man! Taking care of yourself .

Reply

Took 2 years to grow back underarm hair, all 12 and 13 for each side.

Notice no eyebrows? Or just some to the middle part of the eyebrows.

How about not having to shave 2 weeks after chemo started?

Dry skin too. Still present on my forearms and legs.

FYI, 2 years after chemo I have now have some underarm odor.

Sweat glands (the oil part) and hair just take a hit.

1 like
Reply

But ... with ADT your hair grows back. Noticeable a year later.

Six months after stopping ADT it falls back out again.

That's my story. Hope that helps getting perspective on the process.

I wish you less to deal with.

If you are reading this, you are a survivor.

Wish you the best.

1 like
Reply

Nose hair..no more ear or nose hair....hows that for unexpected consequences....And to be truthful not focusing on sex...almost continuously is great for productivity.

1 like
Reply

First time I’ve heard of that happening! I still have to shave my nose and ears weekly! What is sex? It’s been many years for me.

2 likes
Reply

Mine is strange, ican be outside in the heat and seat my ass off and no smell. During my short stint called sleep sweat only when i dream. The sheets smell after that. Cant pinpoint it but it smells. If i dont dream i dont smell.

2 likes
Reply

Since we're wandering into a somnabulistic netherworld...tell me....do your dreams include hostile aliens or being stranded in an unidentified new england airport frantically searching for a non existent gate on an already departed aircraft connecting with a Chicago carrier with homicidal safety practices..those have been on my psychodramatic rotation of late.

Reply

Well, I worry that I'm the one that doesn't smell the body order but everyone else does. When I work hard outside, I sure do sweat. I thought that I lost my ability to smell. Don't know. All I do know, is that ice cream tastes better. Life is good.

3 likes
Reply

Me too

Reply

I’ve experienced the same phenomenon. My wife confirms it. 😎. With all of the bad side effects of ADT (plus chemo) it’s nice to have a good side effect.

1 like
Reply

😀😀😀 yep no body odor, no eye brows, under arm hair but worst of all I lost my mustache that I’ve had for 50 years 😢😢😜😜😜

1 like
Reply

My mustache never came back either. I look like a high school kid trying to grow a stache. My eyebrows never grew back. I must look peculiar. Little girls and boys, and some adults have begun to hold the door open for me. The world turned upside down.

3 likes
Reply

Hahaha😂

2 likes
Reply

No mustache Dammmit!

2 likes
Reply

Havent bought deoderant since 3month of adt...2 yrs ago....but oh what id give for that rock solid teenage boner.....

1 like
Reply

The only good side effects,an not having to shave everyday

1 like
Reply

Epocrine sweat glands in the armpits and groin are hormone-regulated. No hormone, no epocrine sweat. Epocrine sweat attracts bacteria which cause the smell. Enjoy your BO holiday, brother.

2 likes
Reply

If you want to know where your body odor went, try smelling your urine.

4 likes
Reply

I wonder what the poor coyotes think when they smell when I pee outdoors ?

2 likes
Reply

That's what they are howling at now!

1 like
Reply

They know something is wrong ... 😂😂😂

Reply

How are you guys doing now?

Reply

Went to Elton John concert last night, and hiked around Tetons last week as a way of blowing off latest scans. Progression of mets, now in ribs and skull. PSA jumped from 4.8 to 7.5 in a month. Waiting for clinical trial. But still no pain. Back to Hawaii at end of month.

1 like
Reply

Son of a gun! Hiking Tetons and EJ in concert . You know how to live .. Aloha ...

Reply

Far less body hair. More hair on head. Go figure. No BO. Dry skin. To those who experience few or mild side effects, GREAT!! good for you. Very lucky.

1 like
Reply

YES! I Noticed the same thing!!

1 like
Reply

Second best effect of ADT and only pleasant side effect.

1 like
Reply

Same here .. no b.o. ,no underarm hair ... dry skin ... but the b.o. is replaced with xtandi odor. It’s in my arm pits , oozes out of my pores during my frequent drenching sweat spells, in what’s left in my groin area, oozes out the back all the time .... and in my pee and fecal material. Dunno if others can detect it but I’m swimming in it ... in my armpits it gets gooey sticky sometimes. Unlike some here that have a new slim body ... my weight jumped nearly 50 pounds almost instantly and I’m on a strict keto diet. Puffy feet , face all the time. I have a truckload of other adt side effects not mentioned here too.

I can also smell and taste the cancer ... dunno if others do this. A chemically plasticizer sorta odor - flavor that dominates the air around me ( in my nose ) the food I eat etc. it’s one of the things that led to my diagnosis.

The cancer smell and the xtandi odor combine into something different ... but often very pronounced at times.

2 likes
Reply

Whoa😂

1 like
Reply

Yep, no body hair, eyebrows, etc. Hair seems thicker on head. Folks have told me I do look younger. Lost about 1 1/2" in height from Osteoporosis. Only body odor is from my left armpit. Go figure. Used to have a really nice beard, but that is also a thing of the past.

1 like
Reply

I too lost 11/2 inches in height ,not to mention my poor Johnson shrinking up an in hiding .. Take care mrbill ..

1 like
Reply

Me too; it’s very sad when you have to dig to find your dick!!

3 likes
Reply

I can dig it baby!!

1 like
Reply

There we go. Shindig.

2 likes
Reply

here ... here ... well put !!! y aya haa ya haay aha

2 likes
Reply

yep ... same-o same-o ...

1 like
Reply

Wel... I think I would trade the no smell, no body hair, all the goodies mentioned for the good old boner mentioned once. WTF is why we are here, and of course to learn. Also, I don't really wanna be like a woman :) Just kidding!!

So roll on the good side effects and roll of the bad. I seem to have mild to none of any. The wonder of my ADT is it just a jelly pellet of fish oil :)

Love you all stay "alive and well" (that's my business name).

Alan NZ

2 likes
Reply

Oh and one other thing! I what 10 stone or about 65 Kilo what was in my 20's. Today I am 65kilo in my 70's. I have been up to 75 Kilo. The weight is never the problem for me It was vanity the way I looked fitted (didn't fit my clothes) ;(

The reason is...

Now I drink 6 to 8 carrot/celery/apple/lemon juice per day. I eat potatoes and salmon with steamed veggies and almost a loaf of wholemeal bread snack on nuts, as a typical day -90% cocoa chocolate, Cashew nut porridge/mixed with semolina or Weetabix for breakie too. Oh, love sardines on toast with heaps of garlic. Love them dried and then mussy green peas.

Guaranteed to lose weight..

No dairy

No alcohol

No cake an or biscuits

No added sugar

No other drink other than than the juice and Alkaline water at about 3 liters a day

No meat except for fish and not big fish

Try to eat what is natural and organic...

I cycle 30 mins everyday lift my own body weight 200 to 300 times a day and then its just normal odd jobs.

I meditate 20/40 mins a day

If it is in a can, a packet or jar it's most likely processed.... probably not too good eh!... Now hey, this is only me and my ADT I feel fantastic look awesome. Always get great comments.

Love your life, Love your body tell yourself it's in perfect health. I take the minimum meds.

Love Ya... Seeya

Alan

3 likes
Reply

I have been on Firmagon for seventeen months now.

My weight is about the same as when I started, I have lost a kilo or two but that is not really here nor there.

Hair, I had a full beard and moustache when I started out and they are still there but softer. My head hair was greying and thinning but it has grown back and gained colour so I look younger. I have lost most of my chest hair and underarm hair but my pubic hair is still pretty rampant.

My skin is noticeably softer.

I have gained in strength since the spring as I took on a garden and I have been doing a lot of spade work however I have lost endurance and I need to take more breaks but I am older as well.

2 likes
Reply

In my case I totally disappeared and now everyone wonders where the stink is coming from?

Good Luck, Good Health and Good Humor.

j-o-h-n Monday 09/02/2019 1:53 PM DST - Pinnes

5 likes
Reply

Perfect for the prankster...just remember to hang around the unjustly indignant in serving them ‘em up some of their own.

3 likes
Reply

Yep serves them right....

Good Luck, Good Health and Good Humor

j-o-h-n Tuesday 09/03/2019 10:45 AM DST - Pinnes

1 like
Reply

member the Pillsbury Dough boy in Ghostbusters ??? thats one of the many gifts the gift I received from the lupron - xtandi fairy. I told the fairy I wanted to look like a famous movie star celebrity and she granted my wish.

Reply

Dough boy..... I want your autograph...

Good Luck, Good Health and Good Humor

j-o-h-n Tuesday 09/03/2019 10:59 AM DST - Pinnes

1 like
Reply

Well at least it wasn’t Rin Tin Tin , don’t wanna be running around smelling dog butts.

Reply

I'm absolutely not going to disappear ... I'm going to transform into a stylish shiny urn container of potash fertilizer and get sprinkled into a flood basin of top drawer cannabis hydroponic plants ... that way I can still get into people's heads long after I'm gone !!! I got this all figured out duuuuuuuuuuuuuuuudes .

1 like
Reply

My ashes will be mixed in with a ton of horse manure...this way I can continue with my horseshit long after I'm gone.....

Good Luck, Good Health and Good Humor

j-o-h-n Tuesday 09/03/2019 11:03 AM DST - Pinnes

3 likes
Reply

I like yours better yayahahaha

Reply

Yeah everyone stopped blaming the dog!

1 like
Reply

Lol

Reply

I am the same . Almost five years on adt . Well! We don’t have to buy deodorant anymore ... Take it easy Jbooml..😎

2 likes
Reply

Same here. And softer skin.

1 like
Reply

You may also like...