People living with ALS share their data in extraordinary effort to end the devastating disease

[dorke]

This is the kind of initiative we need.

A few months ago I tried to interest a few people here of something similar but unfortunately I got no response

news.microsoft.com/features...

[NPfisherman]

That will be the beauty of NCI match trial...using gene mapping of the cancer mutations and putting people in specific trials for that mutation (s). One of the things that I would like to see is people who participate in trials and the disease response that they get from the trial. People die on this forum, and if someone is getting a great response, then someone that is in desperate condition might try to get in the trial or get the medicine if available...

We are all on this hell ship together, so sharing supplement info, clinical info, pain management, etc.. is crucial to everyone's well being. Many do share openly...It can hit another level even...Thanks for posting...

[j-o-h-n in reply to NPfisherman]

As kids we use to say "SPILL THE BEANS"..... (shoot I'm still a kid)...

Good Luck, Good Health and Good Humor.

j-o-h-n Tuesday 01/08/2019 5:41 PM EST

[BasiRose in reply to NPfisherman]

You’re so right. It is a Hell ship, ALS!! We need everyone to share successes, encouragement and treatments they are trying. Need to get this going and let’s help each other in what ever way we can.

Thanks!