Raise in cost of zytiga or just a mis... - Advanced Prostate...

Advanced Prostate Cancer
8,690 members9,753 posts

Raise in cost of zytiga or just a misprint

Cynthgob
Cynthgob
51 Replies

I looked up the price for zytiga on med D last week and it was 10,000$ and my co pay was 500$ . Today it says $20000!! Copay 1000$!!! Do you think they could possibly raise it that much or did someone screw up???

51 Replies
oldestnewest
Cynthgob

And no donut hole?

Reply
carlo8686

I would think Zytiga will be going down in price shortly to compete with the generics. Just a guess though and I just bought this months supply. It was the same 10,000 that I pay 504.00 on Medicare/blue cross 65 plan. Not sure who controls the cost blue crost or Medicare

Reply
Cynthgob
Cynthgob
in reply to carlo8686

Sounds like my plan!

Reply
Mkeman
Mkeman
in reply to carlo8686

I get a refill next week. Will see. Under Medicare Part D the maximum out of pocket through all levels to get to catastrophic for next year is $5100. After that, all drugs have a 5% co-pay. I take this to mean the first refill of the year will cost me $5100...

Reply
carlo8686
carlo8686
in reply to Mkeman

Before you fill the script ask about the generic cost. With mine they wouldn’t price the generic because I’d filled the Zytiga. Said they can price it the 18 th of December. Just interested what it is they have in stock and the cost. They had it at that time.

Reply
Mkeman
Mkeman
in reply to carlo8686

If it is Yonsa the price I saw was $9000 a month. When generic for Crestor came out it was just slightly less costly. Pharmacist said it takes two or three generics to bring price down.

Reply
carlo8686
carlo8686
in reply to Mkeman

That’s not the name I was given but I was dealing with someone who takes the order and credit card number. Let me know if you find out before I do the 18 th. Better be a bunch less.

Reply
Mkeman
Mkeman
in reply to carlo8686

I’m going to med center next Monday and will ask what they know... According to Drugs.com two other companies have generics approved but they are worried that if Johnson and Johnson gets recent patent decision reversed they might have to pull their generics off of the market. Bernie Sanders said today that new House meets in January he will introduce drug price bills of some sort. We will see.

Reply
charlesmeyers1964

sorry guys but for zytiga there is no plan for generics for this plan. there was word thre was and i checked out. if u lived where the camels live yes but in the us none,nope.

Reply
carlo8686

I’m also on tier 2 level of bluecross part d. Going to tier 3 in this open period because I don’t know what’s coming. 20 extra a month. Couple of cheeseburgers a month cost that might pay for itself. Another guess.

Reply
Cynthgob
Cynthgob
in reply to carlo8686

Tier 3? I just feed in the drugs and it picks a rx d

Reply
carlo8686
carlo8686
in reply to Cynthgob

With blue cross there is three part d plans. Each has different drugs. Zytiga is the same price for either tier but it’s the drugs I don’t know about that’s coming that has me stepping up to tier 3. I’m just starting this lifestyle so without knowledge you cover your tail best you can. Many people on this site know more than the insurance company.

2 likes
Reply
Cynthgob
Cynthgob
in reply to carlo8686

All I do know is that last week it was 10000$ base price and now 20000$

Reply
carlo8686
carlo8686
in reply to Cynthgob

Ease your mind and call them direct. I doubt the price of the drug went up but copay is in the insurance company control if you are too young for medicare

Reply
Cynthgob
Cynthgob
in reply to carlo8686

I did call the drug company and they don’t give out pricing

Reply
carlo8686
carlo8686
in reply to Cynthgob

I was talking about the actual pharmacy you buy it from.

Reply
treetown

I guess I'll hold off on retirement a little longer...$20.00 copay is hard to give up.

3 likes
Reply
carlo8686
carlo8686
in reply to treetown

For sure

Reply
Shooter1
Shooter1
in reply to treetown

Had to work extra 18 mo. to keep low copay plan at work. Sucks but the system is rigged even when over 65. Retired at 68, and now have VA low copay as a disabled vet.

Reply
carlo8686
carlo8686
in reply to Shooter1

You earned the better rate. Hopefully the va will get you everything you need. No more extra years of work.

Reply
Cynthgob

I’m hoping it’s a misprint

Reply
Mkeman

On “Goodrx.com” it is showing that a generic version is now available at Walmart and a number of name pharmacies starting at $834 per 30 tablets. If true, this is about 1/3 the cost of brand name Zytiga.

2 likes
Reply
Kjmj
Kjmj
in reply to Mkeman

that's for 250 mg tabs-no option on goodrx for other dosage strength- been watching this since my Hubby is due to start in jan, but I think our MO said he will be on 1000mg- so x four that's still about $2500 - and our insurance in Jan 19 will be the same for the 1000mg

Reply
Mkeman
Mkeman
in reply to Kjmj

4 tablets a day is normal dose. So if Goodrx is right that would be about $3300 a month. That is 1/3 the cost of brand name Zytiga. The maximum Part D out of pocket is $5100 in 2019. After that you would pay 5% or about $165 a month. When more generics come out the price should come down even more. This drug was developed 20 years ago in the UK and can’t be that costly to produce. It’s a another case of Big Pharma making big bucks on the backs of the sick and dying. Now Congress is considering giving insurers the right to dictate the drugs you will be able to take for six different disease categories including cancer. Call your Congressmen!

Reply
Cynthgob
Cynthgob
in reply to Mkeman

So max out of pocket is 5100$?

Reply
charlesmeyers1964

i've been lucky until this year i had never had any problems obtaining zytiga. this year in may the foundation ran out of options ,which meant i had no more zytiga for now. so i went without. oh i got the lupron shot which helps but to me its not the same. true lupron reduces ones testosterone and that helps to reduce ones psa but the zytiga also helps as will. luckily for me i got another another year but i won't find out until the first of jan 2019 when the largest amount of funding goes for the deductible. as for the cost, remember there are 2 places which controls the cost 1. pharmacies, and 2. the mfg, its to bad that all of us couldn't afford to go on strike and not take the zytiga for 6 months. guest the cost of stocks to the investors would drop that they would have to reduce the cost of it and make it affordable for all. sadly its all about the money not our lives.

charlie

2 likes
Reply
Godschild62

Can you try and purchase in Canada? It's about $5500 CAD. Which means with the exchange rate it's probably about $3850 USD.

Reply
Godschild62

canadadrugsdirect.com/produ...

You can call them and see if they accept US prescriptions.

Reply
Cynthgob

I called my pharmacy and the cost is 12000$ . I pay a percentage of the retail. I don’t know where the government site got 20000$

Reply
DSEE

You could possibly be in the Medicare gap or donut hole.

We have that happen also.

Call Medicare and ask.

Our copay was 500 until we went in the gap with Medicare where it increased to 2700.

Thankful we were taken off Zytiga.

Reply
larry_dammit

My dad is on social security and was just diagnosed at age 87. We researched Zytega and found out that they have a program for people that can’t pay for there drugs. We managed to get him his drugs for free. Lots of paper work but when the income is 20 % of the cost. It works for him 🙏🙏🙏

Reply
j-o-h-n

God Bless your DAD @ 87. I thought that watchful waiting was the norm for anyone who was over 75 when diagnosed. He was Born during the bid D.

Good Luck, Good Health and Good Humor.

j-o-h-n Tuesday 12/04/2018 5:52 PM EST

1 like
Reply
Balinica

My husband just started Zytiga and the out of pocket expense for us was $1,700.00. When the Pharmacist told me our share of the cost I was shocked. Without insurance the cost would have been $14,000.00. Since we won't be able to sustain this monthly out of pocket expense for long, we are going to ask our Oncologist today if the new generic for Zytiga would be as effective. We are also changing insurance companies.

Reply
EZgoi

We are on Kaiser / Medicare and for the last three years our copay in January was $2800 for Zytiga but for the rest of the year it was only $14.00 monthly. Went in and out of donut hole in one felt swoop as Kaiser gives you credit for their discounted price with mfr against your copay...good deal!! Just recently switched to Xtandi when Zytiga failed after 3 1/2 years so not sure about January 2019 copay but heard it is more like $3400 then back to $12 or $14 month. Will repost after January refill about cost. Also, no side effects on Zytiga...horrible side effects with Xtandi. Just an FYI.

1 like
Reply
Shooter1
Shooter1
in reply to EZgoi

Xtandi side effects made me an invalid until I cut way back on dosage. Now on 90 mg/day. Three pills one day then 2 pills for 3 days. Quality of life really does matter.

Reply
EZgoi
EZgoi
in reply to Shooter1

Hubby has gone to 2 pills per day and doing MUCH better!!

Reply
Shooter1
Shooter1
in reply to EZgoi

Several of us here have had to cut back on dosage acct. excess toxicity. My last visit to my urologist when I explained what I had done, his answer was an honest " I didn't know it could do all that" Have to educate our drs. some times. .

Reply
monte1111
monte1111
in reply to EZgoi

Be sure to look into Kaiser Medical Assistance Plan when you both retire. I have Kaiser Senior Advantage and since my only income is social security I qualify and I pay $0 for drugs and treatments, etc. Northern Californian plan doesn't care about assets - only income. Guess you may already know all this. I spent a thousand dollars I didn't need to before I applied. Took 2 weeks for approval. They make their money from the medicare part so if you got cancer you are in like flint.

Reply
EZgoi
EZgoi
in reply to monte1111

Unfortunately, even though hubby and I only have SS, Kaiser indicated we are "over the income limit" to qualify for assistance...Bummer!!

Reply
GoBucks

For those NOT on Medicare you can go to the Janssen website for help. janssenprescriptionassistan...

If you have private insurance you can sign up for a card and your copay is $10. There are no questions asked about income.

Reply
gusgold

If you are willing to do the paperwork all the drug companies will pay the co-pay if you have drug insurance or part D....myself … I threw out all my drugs and just take BIRM aka Gator Blood like Nalakrats said to do...now my Doc says I have 3 months to live...thanks Dr. Nalakrats...I wish I would have seen the picture below of Dr. Nalakrats before I took this action

iroon.com/irtn/assets/anony...

Reply
j-o-h-n
j-o-h-n
in reply to gusgold

Picture taken when he found out he had to learn how to swim when he joined the Coast Guard.

Good Luck, Good Health and Good Humor.

j-o-h-n Tuesday 12/04/2018 5:56 PM EST

Reply
Daddyishealing

Gus, dont gove up. Can you try studies? You have been one of the men I look up to on this site. Dont give up now. Doctors are not diets. Please dont give up now, my friend

Reply
Dhenzkie

There are Generic version of Zytiga in India only $200-300 but i dont know how effective it is.

Reply
Drcrunch

Take one tablet with low fat meal (cereal and skim milk.). Results will be the same. See video by dr mark ratain, m.d. expert on zytiga

Reply
Daddyishealing

The same as whY. Did I miss something on the thread?

Reply
Drcrunch

Same as taken no four tablets

Reply
Daddyishealing

Does anyone know w as us to get grant or kidney towards copays because my dad just went on. It is 12000 in nj pharmacy.

Reply
Mkeman

Call 877-720-4947.....that is Johnson and Johnson Patient Assistance number.

Reply
Poscan4

I take Zytiga. Last month my co- pay eas $500.00. I see my Oncologist the 6th of this month. That's when my prescription is filled. Will let you know when I get it filled.

Reply

You may also like...