Diagnosed September 2017, PSA 147,mets to both femurs, ribs, shoulder, jaw. No soft tissue. Treatments Luprilide, Bicalutamide. Past 3 months PSA under 0.1. Spot radiation, follow up scan show significant progress after targeting legs and shoulder, and less rib hot spots. I fell, was checked out at ER, doc said new met in my upper spine.
Have follow up with MO 7/18. A complication is I also have a mild case of Myelodysplastic syndrome- MDS (en.wikipedia.org/wiki/Myelo...) which am told complicates chemo options. Have not had treatment for MDS, issue has been low blood platelet counts at times, last test was 125k, slightly below normal but OK.
Anyone had experience with these 2 conditions?
Any guidance for meeting with MO?
Any thoughts on research I should do?
Did talk about adding Zitiga, not sure if this would help if PSA low, any feedback?
Slight delay in seeing doc, Lord willing going salmon fishing next week with son and grandson. Want to be diligent while wanting to not worry to much until I get back.