PSA results

[bluepacifica]

Aloha! Just wanted to share that my husband's psa came back undetectable again. It's been 14 years since diagnosis at stage IV. Keep the faith everyone!!!! Joy

[Jscjac]

Such wonderful news ! My husband just added Zytiga (and prednisone) to his Lupron. Stage IV, with (11) bone mets. Diagnosed Sept. 2017 after prostatectomy (robotic). Your post gives me hope. Peace and blessings !

[bluepacifica in reply to Jscjac]

Keep the faith. That's why I decided to post the news. Chin up. xoxoxo

[Hidden]

Great news.

Could your elaborate about the clinical condition of your husband? Studies? Metastasis? PSA evolution? Treatments etc?

Hope helps but to know what other people has done to keep an undetectable PSA after 14 years with stage 4 cancer, could be more helpful than hope.

Congratulations, happy to know that is possible to get undetectable PSA.

Raul

[bluepacifica in reply to Hidden]

Read my reply to Nalakrats. Evolution of his PSA, hmmmm. During radiation and after surgery his psa stayed around 6. His radiation oncologist biopsied the tailbone and found the cancer. After the tailbone was radiated, his psa came down to 0.021 and has remained there, give or take, ever since.

[bluepacifica in reply to Hidden]

So sorry Raul, for some reason my reply with the whole story of my husband's journey just disappeared!! I didn't get notified that my reply broke rules or anything, it was just removed!!! I don't have time to rewrite the whole thing. It's getting late I'm heading for bed soon.

[Break60 in reply to bluepacifica]

You should just post his history in the profile section so it’s permanent. And u can update as necessary.

Great news!!!

Bob

[bluepacifica in reply to Break60]

Great idea, Bob! Mahalo!!!!

[Chiquis]

That's Awsome!🖒🙌 What a blessing.

There's hope🙏

Erika.

[bluepacifica in reply to Chiquis]

Yes, there is always hope. Never give up.

[Armywifedublin]

That’s great news! Who does your husband see? And what treatments has he done to keep his PSA undetected.

Going thru this now we are in the beginning stages of this. His first PSA is on the 21st Anxiously awaiting genetic test and treatment advice. My husbands was in 3 out of 7 lymph, with positive margins and he’s only 53.

And only 20%of his prostate gland was involved..

His Gleason was 3+4 with cubrfrom architecture found.

Would love to hear about your husbands treatments.

I also love Hawaii !

We try to go every other year. We were just on the North Shore for Christmas and stayed and Turtle Bay Resort. That’s before we got the bad news..

Stephanie

[bluepacifica in reply to Armywifedublin]

Even though you got bad news, a trip to Hawaii again might really help. Les and I never talk about cancer and only right before his psa do we even think about it. Some might call it denial, and I guess it is. We just don't let it enter our consciousness if we don't have to. If you're constantly reminded that you're sick, you will be. I'm not suggesting you can will yourself to be healthy, but attitude will help you make the best of it at the moment. I have done the talking with the doctors, I'm the researcher, I keep all the info in my head so Les only deals with what he wants to and he usually doesn't want to. A former urologist told me that it is more typical for the wives to be the ones who take over in dealing with it all.

[bluepacifica]

Les, my husband, sees a urologist here on Kauai. So far, so good. As I said in my reply to nalakrats, he does nothing special. He hates food so there's that. He's 125 lbs, small boned and the doctors have never been upset over that. Me? That's another story. But, he's happy.

[bluepacifica]

Do you have any idea where my reply went?? Geez, I told the whole story and now it's gone!!!

[Hidden in reply to bluepacifica]

I’ve done that .

[Hidden]

Thanks for you fast reply. With time please give us the clinical evolution of your husband so we can have an idea how he was able to get to undetectable PSA.

Thanks

Raul

[bluepacifica in reply to Hidden]

Diagnosed in Oct. 2004, surgery Dec. 2004, PSA 16.9, scheduled for robotic, tests wrong so he had a radical surgery to remove gland. Dr. scraped the cancer as much as he could, cancer out of the gland, up the neck of the bladder, etc. Gleason score was 9 or 10 and stage IV. He received his first Lupron shot in Feb. 2005. Scheduled for 7 weeks of radiation in March 2005. PSA around 6 at that point, bone scan showed glowing tail bone but originally thought it was from an injury years ago. Radiation Oncologist ordered bone biopsy which proved cancer in the tailbone. Last two weeks of radiation the tailbone received additional radiation. It worked. No more cancer and psa went down to 0.021. He was also put on Casodex for about 3 years. He received a year+ of Zometa infusions at the same time. Side effects were brutal. He continued on Lupron to date with no breaks. No side effects on Lupron. PSA continues to stay in that same range. I've asked his urologist why Les has done so well and he doesn't know. No one knows why at this point. Les just lives as normal a life as possible. Still rides his motorcycle, still goes down to the beach, kayaks, picks shells, makes jewelry, hits a few golf balls, still walks and rides his bicycle in the area. I had read an article a few years ago that some men similar to Les experienced dna mutations which kept the cancer in check. I've not seen any update on that. I hope I touched on all the areas you were wondering about. Feel free to ask me anything.

[BrianF505 in reply to bluepacifica]

Awesome!

[JamesAtlanta]

Congratulations!

[Hidden]

Very remarkable. Thanks for posting the information. Was he out of therapy at any time or always with lupron?

Incredible that the cancer has not become castration resistance in 14 years.

I think you are right and this situation is due to the genetics of the cancer and I believe to his immune system which may be very active against castration resistance clones.

Best wishes

Raul

[bluepacifica]

He has been on Lupron continuously since Feb. 2005. I've been expecting the shoe to drop any time and so far so good. Oh, his case was even presented to the Cancer Board in Denver twice! There was not a single bright spot in his situation. More to the story: In May 2009, he was driving his motorcycle on San Juan Island, Washington where we were living. He went down a ravine at 2:30 in the afternoon, no one knows why but a Canadian tourist saw him leave the road. He got rescued and life flighted to Harborview in Seattle which is a trauma center. His pelvis was shattered, his right hip socket was shattered, all ribs on his right side were broken, his lung was collapsed, etc. He was in ICU for 5 days, they put his pelvis back together again, his hip socket, etc. By November of 2009, he was walking without a cane or a limp! In June 2010 he was renovating a house we had just bought. The doctors said his pelvis shattered so badly because of the radiation that weakened his bones. He continues to have a good Dexi Scan with no osteoporosis of any kind. His urologist was surprised about that, too.

[Hidden in reply to bluepacifica]

That was a brutal,accident and injuries. An amazing guy.. Figures ,that he has an amazing partner also. He is showing us that it’s possible to beat bad circumstances. Gives us hope. Thank you.

[bluepacifica in reply to Hidden]

Aw, thanks Lulu! I appreciate that. Yes, you can beat bad circumstances, I really believe that.

[bluepacifica]

As I had stated in my original post that disappeared, Les is a picky eater and is not a fan of food, something I can't comprehend. He recently quit smoking. He takes no supplements, drinks no alcohol of any kind but drinks gallons of green Gator Aide for some reason. Not a big sweets eater, no fruit, little meat. He weights 125 pounds, is 5'10", small boned, and was always thin. Dr. said he prefers him being thin to being overweight. So, we see his smiling urologist this coming Friday, he'll get his shot as usual and that will be it for another 6 months.

[Hidden in reply to bluepacifica]

So lucky that he is happy.

[Grumpyswife]

Since my husband’s prostate cancer always comes back and we have no expectation of a cure, it’s great to hear that some have apparently been cured. We have run into a few others over the past 17 years and are always surprised because of our own experiences with treatments that don’t cure.

[bluepacifica in reply to Grumpyswife]

I noticed they never used the word "remission" or "cured". I still think his dna mutated and is doing the fighting of the cancer. Nothing else explains it. I understand what you're feeling, MJ, believe me. The roller coaster ride stinks. Hugs across the miles and Aloha.

[Hidden in reply to Grumpyswife]

17 yrs is quit commendable.. I’ve never heard of a cure but any remission is a miracle

[Litlerny]

Congratulations on your husband’s success with his treatments! May he have many more years of good health...and may the rest of us here follow him and have long lives in spite of stage 4 PCa! God is great. Life is very good. 😎

[Hidden]

Great job in kicking the bastard! I imagine that he is a very positive person. Congratulations.

GD

[bluepacifica in reply to Hidden]

Actually, GD, he's not a positive person. We have to work at it! Lexapro has helped, believe me. No one should battle cancer without an anti-depressant of some kind!

[Hidden in reply to bluepacifica]

So sorry. I and others have battled this crap maintaining a positive attitude and without anti-depressants. Sounds like counseling is in order. The alternative is not a rosy picture. I wish him the best in overcoming his demons.

GD

[bluepacifica in reply to Hidden]

Oh he handles life well. He's just not a glass half full kind of guy. I am. Lexapro, natural vitamin D from the sun and living on Kauai is all he needs. Actually, with what he's been through he should be a raving maniac. He's not.

[Hidden in reply to bluepacifica]

You may be the factor in his success. Happy v-day to you both.

[bluepacifica in reply to Hidden]

Happy Valentines Day to you, too!!

[Break60]

Hubby has nine lives!😀! Indestructible! Wow !

We’re all different!

Bob

[bluepacifica in reply to Break60]

Oh, you're not kidding. I just knew I was going to wake up one morning with a head full of white hair!

[larry_dammit]

Blue. Doesn’t that make you feel wonderful. I go in tomorrow for my monthly and hope for the same. Keep up the good work 😀😀😀

[bluepacifica in reply to larry_dammit]

Will be thinking of you, Larry.

[bluepacifica in reply to larry_dammit]

How did it go today, Larry?

[larry_dammit in reply to bluepacifica]

All is well, got my shots and blood test are good. Will schedule bone scans for June. That will be a year since last one. Thank you for asking

[bluepacifica in reply to larry_dammit]

So happy to hear this news, Larry. Thanks for sharing. Aloha.

[j-o-h-n]

to: bluepacifica

Enjoy yourselves in another shitty day in Paradise. Also tell Les to get more, One more wheel on his bike. (Three wheeler).

Good Luck and Good Health.

Aloha (whatever the hell that means).

j-o-h-n Monday 02/12/2018 1:52 PM EST

[bluepacifica in reply to j-o-h-n]

LOL! Your reply caught me by surprise. We just got in from the beach. Perfect day without a cloud in the sky. Did some kayaking, watched some surfers, and visited with friends. Doesn't get better than that. Aloha means many things, but especially love and compassion for fellow man. So, Aloha to you!!!

[larry_dammit in reply to bluepacifica]

Enjoy every day ,no such thing as a bad day right now. I thank my lord for every morning 😀😀😀

[Hidden in reply to j-o-h-n]

A trike??? Ha , ha, ha

[bluepacifica in reply to Hidden]

That'll never happen. He's always had Harleys but the day came when he didn't have the strength to handle a big one so he stuck with Sportsters. He fell in love with a Harley 750 Street and that's even lighter so that is what he has now. He takes it out for a short trip every day. Then he polishes on it. Whatever turns your crank I guess.

[Hidden in reply to bluepacifica]

I know what he feels . I had to sell my bikes to pay bills. All you need to do if you’re down is get on that bike get to an open road an hall ass. Its like flying , complete freedom . Take it for a spin then back to the garage. It’s a guy thing. Good he has that. My buddy needs help in 2weeks in Kauai. I might be there for a month to help .. not sure yet.

[Hidden]

That’s awesome news.Thank you.