Just came across this article:
The idea is to incorporate local therapies with systemic. I am actively looking into this. I know Patrick had a post the other day about this as well, but I thought I should share it with the community.
Has anyone looked into this?
I was diagnosed February 2016, PSA 286, Gleason 9 and with pelvic and abdominal node involvement at age 46. In June of 2016 I did 6 rounds of Docetaxel while on Lupron.
I was considered inoperable by several doctors I had seen. Through my own research I found information on the benefits of localized treatment and using a multimodal approach. On this site I found a video posted of Mayo's Eugene Kwon treating metastatic disease with a curative intent. I made a phone call to their Urology Department and it was decided I might be a candidate for surgery . I bought a plane ticket and they gave me a chance when no others would.
December 2016 I received a prostatectomy with an extended lymphadenectomy and as of December 2017 my PSA is <0.01 and no evidence of disease. I am doing 2 years post operative HT.
I am convinced my PSA would not have hit that mark unless I had surgery.
Thank you for your inspiring post. I’m glad that the surgery worked so well, and hope it stays that way for decades to cone. I am definitely going to pursue this route.
Did you have any side effects due to the surgery?
Open surgery was done by Dr. Jeffrey Karnes at Mayo Clinic in Rochester MN. I had no incontinence issues and nerve sparring done on one side. ED is an issue but hoping after HT is done I will get some of that back. Nobody is getting out of a stage 4 cancer diagnosis unscathed and with 3 daughters that's a price worth paying to see them grow up.
Great story, Ron, I hope it lasts a lot longer for you.
Ron, you have made a very wise and bold decision taking the reins into your hands.
Great achievement and a great post to read!
May God bless you for long years of cancer free survival!
Enjoy the Christmas with your daughters. Happy New Year too!
Thank you for sharing, Ron. This gives me hope. At the time of my prostatectomy, my PSA was 24.3 and my Gleason score was 9 (4+5). My path report also indicated invasion of the seminal vesicles, the perineural nerves, the vascular system, the bladder neck and 10 of 28 lymph nodes that were removed during surgery. I am going to receive chemo and hormone therapy in addition to radiotherapy to attempt a curative treatment. While the odds of a cure are against me, this may at the very least extend my life, allowing me to spend more time with my loved ones and giving researchers more time to find a cure. There are other promising treatments on the horizon too. One particularly successful treatment involves killing the cancer cells with testosterone. Yep, that's right. In a clinical trial they used hormone therapy to halt the body's natural testosterone producing abilities and then they administered high doses of testosterone every 28 days to "shock" the cancer cells.