New Here; Hello

[JerseyMarty]

Hello I would like to say I am glad to be here, but, that wouldn't be true. My urologist suggested this website so here I am.

[YostConner]

Welcome, JerseyMarty.

[JerseyMarty in reply to YostConner]

Thank you.

[Chiquis]

Hi JerseyMarty.

I'm new to this website as well. A wife of a husband with PC.

My Husband was diagnosed November 2010 had surgery Feb 2011. After 2 years and 10 months his PSA went up to 0.5 and was sent to the oncologist. Had 37 rounds of radiation with no bad side effects thank God! Just a bit tired.

Unfortunately his PSA never drop and it's 8.6 right now with no symptoms. He had cat scans, bone scans, F- 18 pet/ct, that didn't show anything until a recent Axumin scan that showed 2 lymph node.

He's starting a hormone treatment Monday with one Firmagon injection every 28 days and Zytiga pill everyday. We are praying for the new treatment to drop his PSA and hopefully with minimal symptoms. I thank God that after almost 7 years of his diagnosis he is still here with me. Living life to the fullest, enjoying everyday. This hasn't stopped him from working, traveling, and going to his favorite collage football games every year. I still don't know much and I'm still learning. I hope this helps, I will be praying for you.

[BigRich in reply to Chiquis]

Are the two lymph node in the pelvis area? When he got his 37 radiation treatments, did they radiate the pelvis lymph nodes? What are the size of the nodes, in millimeters or centimeters?

Rich

[Chiquis in reply to BigRich]

Yes, they are in the right external iliac lymph nodes measure 0.7 x 0.6 and 0.4 x 0.6 centimeters.

The oncologist radiated only the area where the prostate used to be. The oncologist wants to do aggressive treatment with hormone, chemotherapy and radiation. Very scary because he has been living a "normal" life with no symptoms. It's worrying to think that he will go through aggressive treatment. For now we have started with the hormone treatment. I'm praying for the best.

[BigRich in reply to Chiquis]

Regarding ADT(hormone} did you read the Stampede Trial in the UK? Google it. Also, did you read the Toad trial? You can google it. The conclusions of both trials are easy to read.

Rich

[dockam]

Hello, and welcome. We are a great resource for our experiences and thoughts, but we aren't MedOncs and can only relate what we have done and gone thru and as the ads say "Individual results may vary"

Fight on - Randy

[Chiquis]

Hi dockam

Thank you.

[Neal-Snyder]

Welcome, Marty.

I guess we'd all rather not be in a situation where we need information about the many issues that advanced PCa raises, but since we do, we find this site very valuable. You might want to follow Patrick O'Shea, who posts very frequently about the peer-reviewed published medical research findings about the effect of various kinds of food, drink, supplements & vitamins on PCa.

Many of us believe that it's best to see a medical oncologist who specializes in PCa, & has extensive training & experience. And it's advisable to get a second opinion from a PCa oncologist at one of the national comprehensive cancer centers, & perhaps be treated by that doctor, depending on your insurance coverage. It would be a good idea to tell us where you are, & ask for recommendations of an oncologist near you. The length & quality of the rest of your life depends on the expertise of your medical oncologist, & it's very valuable to have one you are comfortable with & who is a good & responsive communicator. Good luck!

Neal

[Hidden]

I wish you the best in kicking this bastard. I entered into a very aggressive six month chemo trial over 13 years ago. Today I am undetectable after two mets to my spine. In 2010 I was able to stop Lupron. Consequently, I am a proponent of aggressive treatment.

Gourd Dancer

[Chiquis in reply to Hidden]

I'm very happy to hear that after 13 years you are undetectable. All this time I been afraid of hearing the word metastasis thinking will be the end of the road for my husband. Your story sounds very encouraging considering my husband may have to go through aggressive treatment as well.

Thank you so much for sharing.

[Hidden in reply to Chiquis]

Everything that I read after developing mets gave me 2 to 5 years to live. That was unacceptable to me and I was most fortunate to find a Medical Oncologist who specialized in Prostate Cancer who was Professor and Researcher at Baylor College of Medicine. He is currently back at the University of Texas Health Science Center (McGovern Meducal School)

GD

[Apollo123]

Hi so sorry to hear your diagnosis but welcome to the site. As a recently diagnosed Gleason 9 with mets I was so glad to find this site to share stories and thoughts. There are many positive stories to read and lots of men sharing stories of hope. A friend told me that when I was diagnosed I had won the lottery (strange I know) but as I had no symptoms and it was found due to a random PSA test my result could have been so much worse with the aggressive type I had. I was lucky to find it when I did. There are thousands of men walking around with this disease who don't know they have it. Stay positive that can on times be the hardest part.

[j-o-h-n]

to JerseyMarty,

Welcome and I emphasize WELL. My oncologist is with Memorial Sloan Kettering Cancer Center (Kimmel center, for Prostate and Bladder cancers) on 68th street and First Avenue in New York City. I've been seeing him for years and I highly recommend him. There are many patients who travel to MSKCC in New York City from New Jersey for all types of cancer treatment. Well worth the trip.

Good Luck and Good Health.

j-o-h-n Saturday 09/23/2017 2:29 PM EST

[truckerbob]

JerseyMarty, I was diagnosed aPc 30 months ago but just discovered this site 6 weeks ago. I've learned a lot here. Education is the key