Proctitis update

[John438]

Yesterday I had another procedure to try and stop my bleeding caused by radiation proctitis. The doctor used formalin to coat the affected areas to prevent further irritation. I'am keeping my fingers crossed this works. 

[JoelT]

John,  I really hope that it works.  I am wondering if the doctors had warned you about the possibility of side effects like proctitis before you decided to have the radiation.  Some doctors are good about this, others are very bad and don't disclose full information about side effects. 

Joel

[John438 in reply to JoelT]

The first time I ever heard the word Proctitis was when they told me I had it.

[JoelT in reply to John438]

That is really too bad and reflects a big problem that we have with our doctors.  They need to disclose everything and not only worry about your having treatment with them.  My opinion, it borders on being criminal.

Joel

[pcasucks]

Hi john don't know if this helps or not don't what you have tried so far, I had a bad bout of it half way through my treatments, used a product called procto foam and started talking iron supplements for about a week cleared it up, I was bleeding like a stuck pig.

[Bryan_Metcalf_UK]

They gave me prednisolone suppositories 

[John438]

I had laser cauterization in December. With no change. The doctors said no fiber or fruits, or iron, as constipation is a real problem for me.

[John438]

Second day post op, and still no movement. I'am using Miralax 2x a day. and i'am really dreading  the pain when things start to move. 

[Hidden]

That's too crazy. A week ago today, I was in the ER with it. Got out Monday. They also found my bladder was blocked. My "urologist" noted it in my medical records, ya think they would have treated it? Nope. I had been radiated six years ago, so it will come and get you eventually.

Joe

[John438 in reply to Hidden]

I got it 6 months after treatment, so at least I didn't have to wait too long.

[Hidden]

It's strange how radiation messes with you. I had blood in my urine twice, and the proctitis once. I assume it may come back at some point. Just please wait a little while, nasty stuff.