Happy with Monarch eTNS device so far... - CHADD's ADHD Pare...

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Happy with Monarch eTNS device so far! Just wanted to share after years of feeling hopeless with this ADHD struggle

MommaBsue profile image
27 Replies

My son who is almost to 9 has just started using the Monarch etns device. We had to take him off of ADHD stimulant medication. That was a nightmare. I have never been a huge fan of wanting to do stimulant medication with him we struggled with giving it to him for years. We tried essential oils, vitamin supplements and anything else you could imagine. I want to add he was on stimulant medication for the last 4 years . After using the Monarch etns device for two weeks we have noticed a significant difference. He has ADHD, ODD, anxiety disorder and autistic tendencies. We noticed a huge difference in his o d d getting much better after a week of using the device. We are now going into week 3 and he is completely medication free, functioning at school, not having any behavioral issues and following directions. He still has a very hard time with Focus which we are hoping he can still get by with just using the monarc etns device and not have to go back to stimulant medication for this. We are very hopeful. We have seen in provement in his Focus as well so hopefully with more time there can be more Improvement.

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MommaBsue profile image
MommaBsue
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27 Replies
Murphish profile image
Murphish

How did you get the device? Prescription? I remember reading about it and it sounded promising. Glad to hear you are having some success!

MommaBsue profile image
MommaBsue in reply to Murphish

Yes, it was by prescriptions and they had called me. The out-of-pocket cost was $1,000. Insurance does not cover it. The little patches that they wear on their forehead are also by prescriptions. I had heard about this machine about 2 years ago it was in Canada and I have been trying ever since to get it for my child. Finally was able to get it in the US 3 weeks ago

Dsmith05 profile image
Dsmith05

Thank you for sharing! I have been very curious about this. Happy to hear you are having success. My 9 year old son is also ADHD/ODD/Anxiety with possible Autistic tendencies. Does he wear it all night? Does it tingle or bother him any?

MommaBsue profile image
MommaBsue in reply to Dsmith05

Yes, he wears it at night. I had him sleep in my room with me for the first week. That was a little excessive and over-the-top LOL. He at first was scared to wear it and I was nervous about the tingling but then after about 5 minutes he was okay. I just had him tell me when he could feel it and when he could feel it I just stopped at at that number. I tried going up one and he said it hurt so I went down one and he said it was fine. We have his set at 2.4. The wires get a little tricky so you have to make sure that they don't move too much, but even if they moved quite a bit they still stay on pretty good. The sticky part on the head stays on really good it's the wires that sometimes Come Undone from the unit during the night if my son moves a lot

MommaBsue profile image
MommaBsue in reply to MommaBsue

I hope that you have success with your sign as well. ADHD stimulant medications were hard for my son to take with also having anxiety disorder

MommaBsue profile image
MommaBsue in reply to Dsmith05

I seen on my email that you had asked for updates but I couldn't find it on here. My son has been doing the etns monarch for 7 weeks now. we've seen a 40% decrease in hyperactivity and his focus is getting a little bit better. We are going to discontinue use because we haven't seen improvement in 2 weeks. So we feel like this is the end of his treatment but it is still better than what he was before :-)

Dsmith05 profile image
Dsmith05 in reply to MommaBsue

Yes, I had originally posted asking for an update but saw down further you had posted recently so I was going to wait to check in. Thanks for the update. I am glad you some improvement. Are you expecting to use the machine intermittently to keep the improvement? My son's main issues at school is anger and running away when upset. Not sure if the etns will help. thanks so much for your updates!

MommaBsue profile image
MommaBsue in reply to Dsmith05

It has helped him with his ODD and much less argumentive. Yes I think we will use it intermittently now. We do not see the anger, but it definitely helps him to have a calmer nature about him

skoby profile image
skoby

I just received our monarch in the mail today for my 12 year old son. I'm charging the batteries now and plan to use tonight. Very hopeful, but trying to manage my expectations after many promising solutions that have not worked in the past. I'm so glad to have read your description of how you determined the strength to use as I had been given no direction on that. Fingers crossed!

MommaBsue profile image
MommaBsue in reply to skoby

Good luck! I hope it works for your son as well as it has worked for mine. 2 days of school and no concerns whatsoever and he is not on medication so this is a huge deal! I did try the machine on myself as well so I could feel the intensity how it works.

Dsmith05 profile image
Dsmith05 in reply to skoby

Good luck and keep us posted please!

Lavender2relax profile image
Lavender2relax

Can a child use it for just one year with good results? Have you heard of young teens using it? So happy this is helping!!!🙌🏼🙏🏼

MommaBsue profile image
MommaBsue in reply to Lavender2relax

From what I have read the child will only need to use it for four to eight weeks. We were planning only to use it for that long. I can let you know if we need to use it longer. We have used it for two and a half weeks with really good results so far

MommaBsue profile image
MommaBsue in reply to MommaBsue

I have not heard of young teens using it. To get the prescription in the United States I think they have to be between the ages of 7 and 12. In other countries they use it for epilepsy, anxiety and depression as well

skoby profile image
skoby in reply to MommaBsue

This is really the question. There have been no studies on it beyond the initial 4 to 8 weeks. My son used it for the first time last night with no issues. But I'm wondering about the timeframe as well. I guess in a year, they can do more functional MRI testing on the initial bunch of kids to see if the increased activity on brain scans has continued even though they stopped using it? I may call the pharmacy and ask them their recommendation on use beyond the initial period.

MommaBsue profile image
MommaBsue in reply to skoby

This is a great question! I would really like to know the answer to this as well. Also I didn't see any studies of using it with any ADHD medications.

Onthemove1971 profile image
Onthemove1971 in reply to skoby

And one of the main doctor's involved in the study is the head of the company. Given that there were only 30 kids ( the others didn't have stimulation) this is a really small number.

I am hoping a larger study with a longer period of time will be conducted.

Good luck with the trial!

MommaBsue profile image
MommaBsue in reply to Onthemove1971

You too!

Lavender2relax profile image
Lavender2relax in reply to MommaBsue

Thanks so much! I want to purchase it, but need to know more about how it works. Keep us posted and thanks for sharing.

Klmamma profile image
Klmamma

This is exciting and I say well worth the money. I'd read about this! Insuranxe wont pay for it bc it's not a long term money maker medicine I'm guessing.

MommaBsue profile image
MommaBsue

Update: my child has been using the Monarch etns machine now for 20 days. We noticed three days ago that he started screaming a lot more. He does have autistic Tendencies where he might scream or hit himself in the face. We have noticed that his screaming has gotten really bad. His hyperness has gotten better and his odd has gotten better, but we are not quite sure what we are going to do about this screaming. He is constantly loud and yelling in a playful manner, but it's still not appropriate and it is all day long

MommaBsue profile image
MommaBsue

Update on Monarch.. my nine-year-old son has been using this machine for 30 days now. His hyperactivity I would say has a 40% decrease. His odd almost no longer exist, I would say he is as normal as far as defiency for his age now. I just went to put in a prescription refill for the pads that go on the forehead. Very different they are $300! We just paid $1,000 for machine last month.. not affordable at all 😢

Pennywink profile image
Pennywink in reply to MommaBsue

Glad it is working, if at a very hefty cost! Hopefully someday soon insurance will start covering these to bring the prices down.

But thank you for the update! I am definitely very interested in how these devices are working. :)

skoby profile image
skoby in reply to MommaBsue

So, for the past week, I have been carefully removing the pads from his head in the morning, resticking the tabs on and using them a second time. They look absolutely fine and they stick well the second night. I think I’d be hard pressed to get a third night out of one pad — not enough stickiness left — but with 2 uses each, it’ll only be $150 per month rather than $300. Just my experience.

MommaBsue profile image
MommaBsue in reply to skoby

when I called this last time to get patches they had said that they could possibly run it through my insurance but then I never heard back from them at all. I was wondering if you tried running the pads through insurance? any luck?

skoby profile image
skoby

Hi,

My son has been using the monarch for a month now. He has adhd, anxiety and depression. I’m happy to report that we’ve seen a huge improvement in his attention when it comes to homework. He does most of his classes virtually this year and he is able to stay focused and complete his daily work with very little input from me. This has been huge — 6 weeks ago, every time he was not being supervised, he would have been goofing off and watching YouTube or something other than what he was supposed to be doing. I was hoping to see a bigger boost to his moods since the same device is approved as a treatment for depression in the UK. On that front, I would say that he seems stable, but no real difference. I’m hoping that with more time, we’ll see a n improved mood as well.

We are sticking with it. I’ll update as we continue.

MommaBsue profile image
MommaBsue in reply to skoby

This is great news to hear. we tried going without the machine for 2 days and my son's hyperactivity really increased. He had been using the machine for 5 weeks. We are going to give it the full eight weeks and see if he can go without the machine after that. That's really positive that you have had a good experience as well!

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