Hoping for answers

[Aj2kiddies]

Hello I’m new here, I don’t even know where to start tbh, so 8 years ago I started having pain, it took me four years for me to narrow it to my cycle, doctor thought Ibs for four years, they thought I had endo, however they gave me zoladex and it helped they did a lap, no endo. Pain continued, I ended up having a hysterectomy 2 years ago as they thought adeno, for a whole year no pain nothing, then it came back, so now every month I’m in pain again, weak, tired, bloated, constant nausea, joint pain and inflammation, bad breast tenderness, abdominal pain, pain when I need to empty my bladder, headaches, basically everything hurts for about two weeks again, I have ovaries but no womb, I’ve back and forth to the doctors. every month I get something new my newest symptom is nausea, so so bad I have to take anti sickness tablets, my gyne said it’s not endo or adeno, due to having the hysterectomy and there’s nothing more they can do for me, I’m angry and stressed and need advice I’m 31 I can’t do this for another 20 years, please help x

[Tyvjo]

Endo is not cured by hysterectomy, contrary to what many doctors believe. My endometriosis team is a great site to find more information about these kind of situations , and I believe you'll find Someone with similar experiences there as well. I do believe you should be refered for a excision laptascopy though, as it's the only sure way to diagnose and treat endo. Maybe you need a new gyno? Look for someone specialised in endo! Wish you the very best!

[Aj2kiddies in reply to Tyvjo]

Thank you for replying, my doc won’t let me have another lap, I had one four years ago and came back clear

[Tyvjo in reply to Aj2kiddies]

Ask for å second opinion. My lap last november came back negative, and I was told my pain is psychosomatic. Had a second opinion at a leading endo clinic last week, and they easily found the adeno 🤷‍♀️