Adenomyosis and pregnancy

[gg77]

Hi everyone

It's great to find a little place where people understand, eh! I've got a couple of questions I wonder if you could help me with please?

My endo has been strangely behaving of late, and I'm wondering whether this is because we had a miracle and were pregnant last March, but we miscarried in May, and I'm blaming the adeno and my massive uterus. The sonographer thought I had a molar pregnancy because of the state of it, but it was all my thick, hideous uterus. Does anyone know whether an adeno-filled uterus could successfully house a baby to term? Be honest, please. And surely it won't contract properly? It doesn't on a monthly basis - so am I going to bleed out if I do actually manage to get to term?

Also, does anyone else have the congested pelvis syndrome/varicose veins in your abdomen thing? It's really adding to the heaviness down there, which is giving me bad circulation in my legs. I get an eczema every month on my lower shins, compression stockings really help push the circulation back up!

It's funny, I just try my hardest to crack on with it, but writing to people who know what it's like makes me desperate for a 'there there'! Pathetic, I know! I just never get it, because people just don't understand. I just want a baby so badly, and I'm so completely sick of my stupid cycle and stupid parts, and if I'm not going to get pregnant then my heart will break, but I'll rip that stupid uterus out myself! And good riddance it will be!

Thanks for listening to my babbling and thanks for your help!

[Inonge1]

Hi. Just came across your post. A bit late but thought to share.

I have both Endo and adeno , have had it for 35 years! I have managed to have a full term pregnancy so it is possible.

Be blessed!

[Grui]

ncbi.nlm.nih.gov/pmc/articl...

Hi gg77,

I have posted the above article as it was the only study I could find that clearly identified (with stats) the potential complications / outcomes of having a baby with adenomyosis. I will caution you they are not great stats for the outcome we all want - a healthy baby.

I have endo and adenomyosis (just found out a month ago) but for the past four years have been trying with IUI and IVF - no success. I would get a good egg count, last one was 21 and when fertilised, none made it past five days. The one time I fell pregnant, lead to a miscarriage at 8 weeks, when they examined the remains they could not find what was genetically wrong. Also that pregnancy was terrible - dizzy, couldn't maintain my balance, sweating, crazy hunger (put on 8 kilos in 6 weeks). Looking back was this adenomyosis related? I don't know.... but I do wonder.

I am 40, so the age doesn't help with trying. When diagnosed with endo and adenomyosis via LAP my specialist said falling preg "will be difficult but not impossible". However when I see the potential complications and the probability of them occurring I am painfully questioning having a baby. I feel perhaps my only way to try for a healthy baby may be through a surrogate. That is assuming now that the endo has been removed I get eggs that fertilise and that my specialist agrees to sign that I can't carry. (And then I think I'm just so exhausted, I just want my life back...... it's such a difficult ride to stay on for years).

I hope the study gives you some more information, as it so hard to find on adenomyosis. I felt as heart breaking it was to read, it allowed me to think of other possibilities or at the very least it informed me of the type of risk. I will be discussing these with my specialist.

Although you posted some time ago, reading your post I could feel your frustration and pain (have also thought of ripping my uterus out!) so thought sharing the info I found might be useful (or not - here's hoping you have a happy healthy bump growing) xx