Does anyone get buzzing in head when sitting and lying down?

[Njjan]

Hello all, I've recently been diagnosed with a Intracanalicular Vestibular Schwannoma. Does anyone else get a buzzing /vibration in the head when lying down or sitting resting in a quiet room? It is torturous!

[Gardener21]

I occasionally get buzzing if a sudden loud noise makes me jump or if I’m very tired. I’m post op now, nearly 6 months, but do get some weird & wonderful symptoms/side effects. But glad to have the tumour debulked and here to tell the tale. Take care & hope all goes well for you. B xx

[Knittedfun]

Yes , I have a constant hissing noise, with a shooting pain on the back of my head if I move it to quickly or suddenly.

[Kerlina]

Hi Njjan Yes, I do, particularly when I'm tired. It's a very strange sensation. Not at all nice. I've always been very active. But this little tumour makes me very fatigued!

[Njjan]

Thanks for all your responses. Tiredness definitely exasperates the Tinnitus and buzzing. I've had symptoms for over 2 years: dizziness, headaches, fatigue and Tinnitus. My doctor suggested I was a hypochondriac. I've been too embarrassed to go to him in fear of being judged. It's been a long road to get to diagnosis. I'm pleased to be able to get advice and support on here. I do you all are getting the help you need.

[00001111 in reply to Njjan]

I get like a shuddering in my head.more at night when im lied down or turning over in bed.dose feel weired sometimes.

[Njjan in reply to 00001111]

Thanks for your response. It's awful isn't it? I think I'm going to be stuck with this for a long time if not life because it's a small tumour. I doubt surgery will any time soon. Do you have any top tips on how to alleviate it?

[Kazgau]

Yes I have intermittent buzzing, crackling sounds as well an sensation of pulling in my eye and gritty feeling . I get terrible fatigue when I wiring in the day around late afternoon too. I have no idea when I’ll get treatment due to waiting for my next specialist appointment. Yes I am also Wondering if people have any tips on how they manage symptoms? As you say, we are stuck managing this without much advise or support ? Thanks

[Kazgau]

Sorry should say fatigue when working not wiring 😊

[Njjan in reply to Kazgau]

Morning Kazgau,

Thank you for your reply. I wear earplugs to try and soften noises because come mid afternoon my head hurts with any loud noise. I do hope your next appointment gives you the answers and treatment you need.