Possible causes of Acoustic Neuroma

[bluebird567]

Like most people, I have looked through the internet for more information and possible causes of AN and have found the following.

Possible exposure to radiation as a child.

An association with Parathyroid disease.

A condition called NF2

en.m.wikipedia.org/wiki/Ves...

Does anyone have any more information or aware of research in this field?

[Colejoe1]

Interesting to hear. I had to have a parathyroid removed in late 2007. Then when diagnosed with AN 2019 was told I must have had it at least 10years due the size of 3cm.I had visited the doctors and had blood test done throughout those 10yrs due to stilling feeling the same symptoms I had when suffering with parathyroid. Maybe the symptoms of AN and parathyroid are similar

[bluebird567 in reply to Colejoe1]

Thank you for your replies Colejoe1 and Steve_04. I didn't know of this condition or anyone who has it so it was great to find this site with lots of useful information.

In my case I was hit by a car as a child and had a fractured skull and brain hemorrhage as well as other complications. In those days they only had x-rays to check for injuries. Thanks to the surgeons I made a good recovery but developed terrible migraine headaches which would last for days.

About 10 years ago I was suffering extreme pain on my right side and sometimes in the back. After 18 months of antibiotics and scans they found a non functioning kidney which was removed about 2 years after the first symptoms.

I also had some hearing loss but the GP put it down to a blockage in the ear canal and gave me a balloon to inflate to 'pop' the ear. Needless to say that didn't work and it wasn't until the results from a high street hearing test that I was referred to ENT. Following a MRI the AN was diagnosed. My ENT consultant said there are people with NF2 (Neurofibromatosis) who have bilateral AN's - I only had it on one side but told him my son has NF1.

About the same time I was completely exhausted so my GP organised some blood tests finding that I had Primary Hyper-Parathyroidism. The faulty Parathyroid was removed 6 months ago.

My ENT consultant kindly wrote to a geneticist but they didn't think there was any link with these conditions or NF if I wasn't showing any other NF symptoms.

Incidentally, my faulty kidney, Parathyroid and AN were/are on the same side of my body.

I still feel exhausted and weak at times but the headaches aren't as bad as they were, thank goodness.

My latest MRI shows no growth so I am under 'watch and wait'.

Thank you for reading thro' my story.

[Steve_04]

There’s a lot of possibility’s but with low chances/insufficient research done.

In my case for example I believe mine either started from a car accident where I also had blunt trauma to the temporal bone behind the affected ear. However it is also possible the accident woke up / accelerated the growth and possibly dislodged it from where it was.

I’ve sought multiple information, probably to much to put into here and possibly irrelevant to many cases.

Like if it was researched about car accidents causing tumour it’ll say no due to the numbers from research but actually there was cases that was linked but with low numbers which would show a low chance.

There there’s potential nerve damage which can be from trauma or even infection.

As you can imagine the list goes on and to me given modern day technology I don’t believe enough research goes into the causes of what has an apparent so little known. Even patient questionnaires do not exist to my knowledge.

[Colejoe1 in reply to Steve_04]

I also had a bad bump to my head 4years before being diagnosed. The bump left me we bad neck and upper back pain, Doctors said it was whiplash. 12 months after the bump I had a very bad dizzy spell. Then 12months after the firs dizzy spell I had another and on and on they got worse but only occurred every 12months. I even went to A&E they did tests and said nothing wrong. The tumour then presented as trigemenial neuralgia 4years after the bump so maybe that woke it up.

2years since surgery and I’m so grateful .

The surgeons are amazing