AntiCoagulation Europe (ACE) has been asked by researchers at Birmingham University to find patients to help them

We are a team of researchers based at the University of Birmingham with a strong track-record in research on DVT, PE and anticoagulation. We are developing proposals for a large research project on the identification and prevention Post-thrombotic Syndrome (PTS) – our proposals include a large trial of exercise and compression stockings for the prevention of PTS.

We need ideas, opinions and input on the design of the programme of research on innovative ways to involve participant representatives in the delivery of the trial.

We would love to hear the views and opinions of people who have recently experienced a DVT, as well as those who have been unfortunate enough to develop Post Thrombotic Syndrome after having a DVT in the past.

We propose an initial meeting on Wednesday January 28th 2015 12-2pm at the University of Birmingham we would cover travel expenses and provide lunch and refreshments.

Those interested will be invited to have ongoing involvement in the programme as it progresses, but ongoing availability is not an absolute requirement of attendance!

Contact Deborah McCahon, In the Department of Primary Care - D.McCahon@bham.ac.uk

Please include ACE in your replies in the cc box put. anticoagulation@ntlworld.com

Thank you for your help

4 Replies

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  • Hello,

    I am Liz, one of the researchers at Birmingham University... we are really happy to have heard from a few people who are keen to attend on Jan 28th already.. Thank you all for your responses..

    If you are able to participate, please do get in touch. We are happy to answer any queries about the project too,

    Best wishes

    Liz

  • Hi Liz,

    I sent an email earlier today expressing my interest. Hoping to become involved!

  • Thank you Smythian, that is great!, I look forward to meeting you

  • I had a dvt in october 14 and have just been diagnosed with another. I also had a pe at no time has anyone suggested a surgical stocking. if it is not too late I would be interested in being part of any research project ondvt treatment

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