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PBC Foundation

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All posts for March 2014

Immunoglobulin

I am about to have IVIG to try to improve my balance problems in my legs. Has anybody else had this treatment? If so, did it help?

I am about to have IVIG to try to improve my balance problems in my legs. Has a...

Hidden

•10 years ago

2 Replies

I know this is going to sound bad but does anyone wish they had Cancer instead of PBC? Maybe people would understand and give support.

I am asked daily to do fundraising for Cancer as I own a Hairdressing Salon. "Can you supply your staff to shave 6 people's heads at the local pub or club to...

I am asked daily to do fundraising for Cancer as I own a Hairdressing Salon. "Ca...

Julez1961

•10 years ago

22 Replies

Portal hypertensive gastropathy

Does any one else have portal hypertensive gastropathy? I have looked at google and not much other than the basics.Could this be the reason I get a lot of...

Does any one else have portal hypertensive gastropathy? I have looked at google ...

Lisacj

•10 years ago

3 Replies

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Is it normal for ALP levels to fluctuate?

I was diagnosed with pbc in December on the basis of AMA and liver biopsy (liver function tests have always been normal). I am not yet on URSO. My lft...

I was diagnosed with pbc in December on the basis of AMA and liver biopsy (liver...

Kitsilano

•10 years ago

10 Replies

Malaria tablets

We are hoping to go on holiday to Vietnam and Cambodia at the beginning of May. Has anyone with PBC ever been on malaria tablets? If so what worked for you?...

We are hoping to go on holiday to Vietnam and Cambodia at the beginning of May. ...

June9961

•10 years ago

24 Replies

Pain in big toe joint

I have PBC/AIH overlap and have had excruciating pain in my big toe joint for about four weeks. I had an x-ray and ruled out a fracture. Now my foot and toe...

I have PBC/AIH overlap and have had excruciating pain in my big toe joint for ab...

ZiggyBean

•10 years ago

13 Replies

Counting down days to specialist appointment

I go to my specialist on 3/18. I know I won't have any major answers that day, but I'm still hoping he will give me an idea about things. I know I will...

I go to my specialist on 3/18. I know I won't have any major answers that day, ...

NotorDJP

•10 years ago

1 Reply

Has anyone with PBC gone into remission after having PBC for a few years or more?

2006

•10 years ago

8 Replies

medical

going for a medical on the 27 of this month had 1before wasn't a pleasant experience with atos would be very grateful for any help or advice thank you sadie x

going for a medical on the 27 of this month had 1before wasn't a pleasant experi...

sadie21

•10 years ago

1 Reply

Hi everyone. I was wondering how often you have your blood taken to check the progress of PBC? After I was told I have PBC my Gastro. told

Me to look it up for information. Then he said he would see me in 6 months and would check my bloods again and a c scan. I think I might look for another...

Me to look it up for information. Then he said he would see me in 6 months and ...

2006

•10 years ago

18 Replies

Swollen abdomen

Does anyone have a swollen abdomen/stomach. I am going to be 66 in November and have a tummy like a ready to give birth young thing. I only have a LFT every...

Does anyone have a swollen abdomen/stomach. I am going to be 66 in November and...

Pookie18

•10 years ago

12 Replies

Does anyone know if here is a link between PBC and kidney problems.

hotdog

•10 years ago

13 Replies

Does anybody else with PBC have problems with their mouth and jaw pain which sets off a neuralgia pain, the dentist says its not my teeth.

Cat19

•10 years ago

13 Replies

Sorry all can't seem to find my orignal post endoscopy

I had my endoscopy last week and promised to update you I decide on throat spray again ! Was over quick but uncomfortable ... The first thing they asked me...

I had my endoscopy last week and promised to update you I decide on throat spray...

cowre

•10 years ago

4 Replies

How many of you with pbc have benefits ?

I have had pbc since 2010 also diagnosed with Chronic Fatigue Syndrome and possible Fibromyalgia along with Gord .. I've cut my working hours now since last...

I have had pbc since 2010 also diagnosed with Chronic Fatigue Syndrome and possi...

cowre

•10 years ago

8 Replies

Has anyone had improved fatigue symptoms by taking magnesium threonate? My fatigue has diminished since taking. Coincidence?

I've been diagnosed almost a month ago and am wondering if my fatigue would have improved anyway whether or not I took the Mg Threonate, or maybe I was just Mg...

I've been diagnosed almost a month ago and am wondering if my fatigue would have...

Abigail53

•10 years ago

4 Replies

2006. Is anyone on Milk thistle and does it help with PBC?

2006

•10 years ago

6 Replies

My husband got diagnosed with PBC a week before. Need to know about what to eat and what to avoid in a veg diet . Please help

nishahathi

•10 years ago

5 Replies

What is the difference between primary sclerosing cholangitis and PBC?

They sound very similar , Elena Baltacha UK tennis player has it? I have just read that sadly she now has liver cancer. having quickly googled cant see the...

They sound very similar , Elena Baltacha UK tennis player has it? I have just re...

Lisacj

•10 years ago

2 Replies

Muscles!!

Well guys, my muscles aint what they used to be......is muscle waste also an issue with AIH/PBC? xx

Well guys, my muscles aint what they used to be......is muscle waste also an iss...

Alley27

•10 years ago

13 Replies

Why is there ONLY a booklet for PBC and not for AIH?

AIH is as serious as PBC but no one seems to have taken this on board. I know some of the symptoms are the same, but there are also some differences.....We who...

AIH is as serious as PBC but no one seems to have taken this on board. I know so...

Alley27

•10 years ago

3 Replies

Blood tests

Hi all, Looking for a little advise again.... Had blood tests taken and got abnormal UEC, LFT, Blood Profile and chloresteral . Seeing doctor tomorrow but cant...

Hi all, Looking for a little advise again.... Had blood tests taken and got abno...

Hidden

•10 years ago

4 Replies

hi im needing a bit off help with my esa appeal and backdated monies owed to myself

i was sent a letter 2 days after my appeal tribunal sayin i have been passed with 15 points onto esa wrag group (recived letter 29th feb 2014 ) stated on the...

i was sent a letter 2 days after my appeal tribunal sayin i have been passed wit...

chris9986

•10 years ago

1 Reply

Has anyone found any helpful remedies to deal with lack of saliva and a very dry mouth. Have been told it is a side effect of taking ursa.

Sweet1pea

•10 years ago

14 Replies

Passing along a research update from Dr. Eric Gershwin, Chief, Division of Rheumatology, Allergy and Clinical Immunology, Univ of California

I saw this yesterday on the Yahoo Groups / PBC Organization (US) and thought I'd pass along to those of you who like to stay current on research. Dr....

I saw this yesterday on the Yahoo Groups / PBC Organization (US) and thought I'd...

JennerLayne

•10 years ago

9 Replies

Fatigue with normal LTF's

So, I have had 3 very good blood results....NORMAL.....yes normal, so the steroids, urso and mercaptopurine are doing their job ( AIH/PBC), but I am fatigued,...

So, I have had 3 very good blood results....NORMAL.....yes normal, so the steroi...

Alley27

•10 years ago

20 Replies

So tired some days that I don't feel like I can hold it together

I haven't been officially diagnosed with PBC yet, but I have something autoimmune going on, either PBC or something else. I live in an area that has had a bad...

I haven't been officially diagnosed with PBC yet, but I have something autoimmun...

NotorDJP

•10 years ago

9 Replies

I am 65 yrs. old very active, no symptoms as yet but I have PBC. I am 100 lbs. and I am 5ft.1inch tall. What should I eat to gain weight ?

I was told by my doctor to eat low fat, low salt high protein.

2006

•10 years ago

4 Replies

Fed up

I have just had a call from my surgery because one of the GPs have reviewed my blood results after I was feeling poorly last week and have said that a CPN...

I have just had a call from my surgery because one of the GPs have reviewed my b...

June9961

•10 years ago

7 Replies

Who is taking curcumin and b12 and milk thistle for PBC I feel curcumin may lower hepatic duct inflammation and SED rate

Diagnosis with positive AMA - so if immune system is attacking the body in case of PBC shouldn't we find natural anti inflammatories to see if they work to...

Diagnosis with positive AMA - so if immune system is attacking the body in case...

Hidden

•10 years ago

5 Replies

Posts - PBC Foundation | HealthUnlocked

PBC Foundation

All posts for March 2014

Immunoglobulin

I know this is going to sound bad but does anyone wish they had Cancer instead of PBC? Maybe people would understand and give support.

Portal hypertensive gastropathy

Is it normal for ALP levels to fluctuate?

Malaria tablets

Pain in big toe joint

Counting down days to specialist appointment

Has anyone with PBC gone into remission after having PBC for a few years or more?

medical

Hi everyone. I was wondering how often you have your blood taken to check the progress of PBC? After I was told I have PBC my Gastro. told

Swollen abdomen

Does anyone know if here is a link between PBC and kidney problems.

Does anybody else with PBC have problems with their mouth and jaw pain which sets off a neuralgia pain, the dentist says its not my teeth.

Sorry all can't seem to find my orignal post endoscopy

How many of you with pbc have benefits ?

Has anyone had improved fatigue symptoms by taking magnesium threonate? My fatigue has diminished since taking. Coincidence?

2006. Is anyone on Milk thistle and does it help with PBC?

My husband got diagnosed with PBC a week before. Need to know about what to eat and what to avoid in a veg diet . Please help

What is the difference between primary sclerosing cholangitis and PBC?

Muscles!!

Why is there ONLY a booklet for PBC and not for AIH?

Blood tests

hi im needing a bit off help with my esa appeal and backdated monies owed to myself

Has anyone found any helpful remedies to deal with lack of saliva and a very dry mouth. Have been told it is a side effect of taking ursa.

Passing along a research update from Dr. Eric Gershwin, Chief, Division of Rheumatology, Allergy and Clinical Immunology, Univ of California

Fatigue with normal LTF's

So tired some days that I don't feel like I can hold it together

I am 65 yrs. old very active, no symptoms as yet but I have PBC. I am 100 lbs. and I am 5ft.1inch tall. What should I eat to gain weight ?

Fed up

Who is taking curcumin and b12 and milk thistle for PBC I feel curcumin may lower hepatic duct inflammation and SED rate

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