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High stomach pH
I have just done a second gut microbiome test. The first one I did in August last year showed I had a score of 7.2, which indicated I have little stomach acid. The one I have just done has come back higher at 8.1 (ideal range should be 5.8 - 6.5). Does anyone else have this? Is is a good indication
I have just done a second gut microbiome test. The first one I did in August last year showed I had a score of 7.2, which indicated I have little stomach acid. The one I have just done has come back higher at 8.1 (ideal range should be 5.8 - 6.5). Does anyone else have this? Is is a good indication
Chickens44
in
Pernicious Anaemia Society
23 days ago
Active B12 gone down
Hello, I have been on loading doses (initially from my GP and now SI) for 7 weeks and am slowly improving. My initial active B12 was 48.1 ng/L, serum 162. I was on daily oral B12 supplements at the time so my results were skewed. I know that blood tests after injections are considered pointless but
Hello, I have been on loading doses (initially from my GP and now SI) for 7 weeks and am slowly improving. My initial active B12 was 48.1 ng/L, serum 162. I was on daily oral B12 supplements at the time so my results were skewed. I know that blood tests after injections are considered pointless but
Maldeerum
in
Pernicious Anaemia Society
24 days ago
New pernicious anaemia diagnosis
Hi, I am a 20 year old female who has recently been diagnosed with pernicious
anaemia
(around the start of April). I was experiencing extreme tingling in my hands and feet which promoted the doctors to check my B-12 levels.
Hi, I am a 20 year old female who has recently been diagnosed with pernicious
anaemia
(around the start of April). I was experiencing extreme tingling in my hands and feet which promoted the doctors to check my B-12 levels.
Ellamae2
in
Pernicious Anaemia Society
1 year ago
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blue lips side effect olaparib
I’ve just started olaparib maintenance therapy following debunking and chemo that finished in January. I have started to get blue lips. My only other side effects are joint pain (helped by onega 3 and exercise) and mild nausea. Has anyone else had blue lips? Is it serious?
I’ve just started olaparib maintenance therapy following debunking and chemo that finished in January. I have started to get blue lips. My only other side effects are joint pain (helped by onega 3 and exercise) and mild nausea. Has anyone else had blue lips? Is it serious?
Beatbigc
in
My Ovacome
26 days ago
Interesting update for those in the UK whose GP practice has Buprenorphine red listed
Finally, after months of hitting my head against a brick wall with my GP practice, where Buprenorphine is firmly red-listed (and the partners flatly refuse to change their stance, even after being presented with all the research we know about on this site), I have been able to obtain an NHS prescription
Finally, after months of hitting my head against a brick wall with my GP practice, where Buprenorphine is firmly red-listed (and the partners flatly refuse to change their stance, even after being presented with all the research we know about on this site), I have been able to obtain an NHS prescription
Claire_lc
in
Restless Legs Syndrome
26 days ago
Reaction to Denosumab injection
I had my first 6 monthly injection a couple of weeks ago. 2 nights later I was up every half hour to pee and/or poo all night! Since then I've had a lot of grumbly tummy and also pain - shoulders, neck, arms - a bit like PMR but not quite. Upping the pred didn't seem to make much difference. Could these
I had my first 6 monthly injection a couple of weeks ago. 2 nights later I was up every half hour to pee and/or poo all night! Since then I've had a lot of grumbly tummy and also pain - shoulders, neck, arms - a bit like PMR but not quite. Upping the pred didn't seem to make much difference. Could these
Japsquar
in
PMRGCAuk
27 days ago
Thank you
Hello all you good people out there. I want to say a big thank you to everyone who replied to my recent post. I have found the advice you have given me very helpful. Of course l have had RLS so long now l know most of the things you should do or shouldn’t do. I did wonder recently what my iron level
Hello all you good people out there. I want to say a big thank you to everyone who replied to my recent post. I have found the advice you have given me very helpful. Of course l have had RLS so long now l know most of the things you should do or shouldn’t do. I did wonder recently what my iron level
bedith6
in
Restless Legs Syndrome
28 days ago
Blood test results in full. Can anyone find a cause in there for my continued fatigue etc?
I still have the same symptoms, although some have improved a bit, but not gone, by any means. Still housebound. I list below Blood test results. Can anyone suggest an issue that may cause my symptoms because my GP says no action, normal. Serum 25 - HO Vit D3 level 135nmol/L 50-174
I still have the same symptoms, although some have improved a bit, but not gone, by any means. Still housebound. I list below Blood test results. Can anyone suggest an issue that may cause my symptoms because my GP says no action, normal. Serum 25 - HO Vit D3 level 135nmol/L 50-174
DandyButch
in
Thyroid UK
30 days ago
Success with GP - for now
Just had an appointment with my GP and after lots of persuasion and me quoting NICE guidelines at him, he's agreed to reinstate my previous daily 100mcg Levo. 🥳This does come with the condition of reassessing in 6-8 weeks after bloods done. (I'll cross that bridge when I get there) I got the usual
Just had an appointment with my GP and after lots of persuasion and me quoting NICE guidelines at him, he's agreed to reinstate my previous daily 100mcg Levo. 🥳This does come with the condition of reassessing in 6-8 weeks after bloods done. (I'll cross that bridge when I get there) I got the usual
Jingley
in
Thyroid UK
1 month ago
newly diagnosed anemia
Hi. I’m new to HealthUnlocked and to this group. I’m also in America, so I hope it’s OK that I post here. I’ll try to put in all the info I have and follow proper posting guidelines. It’s taken me a while to be able to get this post all typed up due to tiredness and brain fog. I just had 3 month follow-up
Hi. I’m new to HealthUnlocked and to this group. I’m also in America, so I hope it’s OK that I post here. I’ll try to put in all the info I have and follow proper posting guidelines. It’s taken me a while to be able to get this post all typed up due to tiredness and brain fog. I just had 3 month follow-up
SugarMint
in
Thyroid UK
1 month ago
Help with blood test results, please.
I was diagnosed with B12 Deficiency with Pernicious Anemia in 2018. I was given the six loading doses and injections every 12 weeks. After about two years I was able to get them changed to every 8 weeks. Although that did seem to help I am still not feeling myself. I keep track of all of my blood
I was diagnosed with B12 Deficiency with Pernicious Anemia in 2018. I was given the six loading doses and injections every 12 weeks. After about two years I was able to get them changed to every 8 weeks. Although that did seem to help I am still not feeling myself. I keep track of all of my blood
rubyone
in
Pernicious Anaemia Society
1 month ago
Peginterferon and platelets
I started taking peginterferon 45 mg in November 2023 with a platelet count of 860. Since then, my bloods have been checked monthly, and my dose gradually increased. On Monday I will start 180 mg, alternating the dose weekly with 135 mg for a month, as my platelet count is now 665 and my Haematologist
I started taking peginterferon 45 mg in November 2023 with a platelet count of 860. Since then, my bloods have been checked monthly, and my dose gradually increased. On Monday I will start 180 mg, alternating the dose weekly with 135 mg for a month, as my platelet count is now 665 and my Haematologist
Lyndjs
in
MPN Voice
1 month ago
Muscle Damage
Hi all. I’m wondering if any of you have experienced muscle damage from self-injecting, and if so how did you know? How long did it take to heal? The last couple of months or so, it seems like I’m having an increasingly difficult time injecting my thighs. The injection itself seems to go really well
Hi all. I’m wondering if any of you have experienced muscle damage from self-injecting, and if so how did you know? How long did it take to heal? The last couple of months or so, it seems like I’m having an increasingly difficult time injecting my thighs. The injection itself seems to go really well
Cobalt1312
in
Pernicious Anaemia Society
1 month ago
anaemia and ADT
but my worry is that I am becoming anaemic with my results as below - I read somewhere that
anaemia
can be an ADT/low T problem but it isn’t usually due to low Iron - And taking iron May not be an appropriate response.
but my worry is that I am becoming anaemic with my results as below - I read somewhere that
anaemia
can be an ADT/low T problem but it isn’t usually due to low Iron - And taking iron May not be an appropriate response.
SimMartin
in
Advanced Prostate Cancer
9 months ago
Help please to understand blood test results a month after c vaccine
Hi! I have no idea what is going on with me. I have been Si daily and twice daily sometimes for 6 mths now and am taking all cofactors.My blood tests have come back today with high MCH and MCV has climbed. I had a c vaccine a mth ago and every thing flared up exhaustion neuropathy etcblurred vision
Hi! I have no idea what is going on with me. I have been Si daily and twice daily sometimes for 6 mths now and am taking all cofactors.My blood tests have come back today with high MCH and MCV has climbed. I had a c vaccine a mth ago and every thing flared up exhaustion neuropathy etcblurred vision
brenanddave
in
Pernicious Anaemia Society
1 month ago
Methyl or Hydro B12 injections - is it safe to switch between both each month?
Is it safe to switch between different types of B12 injections? For example, one month I take the hydroxocobalamin injection and the next month i take the methylcobalamin injection? I feel better with methylcobalamin , but I’m only prescribed the hydroxocobalamin but I’m thinking to take methylcobalamin
Is it safe to switch between different types of B12 injections? For example, one month I take the hydroxocobalamin injection and the next month i take the methylcobalamin injection? I feel better with methylcobalamin , but I’m only prescribed the hydroxocobalamin but I’m thinking to take methylcobalamin
LaraPA
in
Pernicious Anaemia Society
1 month ago
Buprenorphine transition from patch to tablets
Hey Everyone With the help of a 20 mg 7 day Buprenorphine patch, I have been free of any dopamine agonist for almost 3 months. But as we all know, the patch does not last 7 days, 5 if you are lucky. Consequently, I change it every 5 days and have had pretty good results. Initially, I would have moderate
Hey Everyone With the help of a 20 mg 7 day Buprenorphine patch, I have been free of any dopamine agonist for almost 3 months. But as we all know, the patch does not last 7 days, 5 if you are lucky. Consequently, I change it every 5 days and have had pretty good results. Initially, I would have moderate
RiversW
in
Restless Legs Syndrome
1 month ago
Fundraising
We need Pernicious
Anaemia
or B12 deficiency on everybody’s lips. It rolls off the tongue and is at the forefront of people’s MINDS. For it not to be the forgotten disease. We want it short, smart, stylish and sexy. Justin Timberlake sang, ‘I am Bringing Sexy Back.’
We need Pernicious
Anaemia
or B12 deficiency on everybody’s lips. It rolls off the tongue and is at the forefront of people’s MINDS. For it not to be the forgotten disease. We want it short, smart, stylish and sexy. Justin Timberlake sang, ‘I am Bringing Sexy Back.’
Narwhal10
in
Pernicious Anaemia Society
9 months ago
Accessing Iron Infusion
hey folks Wondering if anyone can help or has experience with the situation I am in. I would be really grateful for some advice. I have had RLS since my mid 20s and it has slowly gotten worse. I am now 35 and have tried a number of different medications one being ropinirole which I have successfully
hey folks Wondering if anyone can help or has experience with the situation I am in. I would be really grateful for some advice. I have had RLS since my mid 20s and it has slowly gotten worse. I am now 35 and have tried a number of different medications one being ropinirole which I have successfully
Xicara
in
Restless Legs Syndrome
1 month ago
high b12 high mch and mcv
Hi, b12 797 (145 - 637) folate 35.1 (7 - 39) mch 37.6 (27.4 - 33.9) mcv 110 (83 - 97) iron 12 (8 - 30) ferritin 69.30 (13 - 150) haemoglobin 124 (119 - 157) What does this mean? I am not taking b12 supplements or injections. My GP said that I had a b12 deficiency (she didn't measure my b12),
Hi, b12 797 (145 - 637) folate 35.1 (7 - 39) mch 37.6 (27.4 - 33.9) mcv 110 (83 - 97) iron 12 (8 - 30) ferritin 69.30 (13 - 150) haemoglobin 124 (119 - 157) What does this mean? I am not taking b12 supplements or injections. My GP said that I had a b12 deficiency (she didn't measure my b12),
nyx19
in
Pernicious Anaemia Society
1 month ago
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