Search
Search
About
Log in
Join
Experiences with
Anaemia
Posts
Communities
9,915 public posts
Filter results
ALT & ALK exceptionally HIGH. Feeling very very anxious.
Hi, New here - this is my first post - hope all is OK. My ALT & Alk. Phos blood test have, ‘gone thru the roof’! I have been having monthly blood checks on the liver since April last year – numbers slowly reducing. My last monthly LFT was end of October, 2021 results being at the high end of normal -
Hi, New here - this is my first post - hope all is OK. My ALT & Alk. Phos blood test have, ‘gone thru the roof’! I have been having monthly blood checks on the liver since April last year – numbers slowly reducing. My last monthly LFT was end of October, 2021 results being at the high end of normal -
blaisepascal
in
British Liver Trust
2 years ago
B12 level
Hi I’ve posted on here the other day to say I had left it 6 weeks in between my B12 jab instead of 4 weeks and have had a horrible week of symptoms, I went yesterday to have my B12 administered and asked my practitioner ( I have to have them done privately ) would she do a blood test before my Jab to
Hi I’ve posted on here the other day to say I had left it 6 weeks in between my B12 jab instead of 4 weeks and have had a horrible week of symptoms, I went yesterday to have my B12 administered and asked my practitioner ( I have to have them done privately ) would she do a blood test before my Jab to
Hidden
in
Pernicious Anaemia Society
2 years ago
IFab or MMA
Hello I am trying to investigate low active b12 results (at the low end of the reference range). Am I better to organise a private iFab test or an MMA test? Medichecks suggested MMA but is iFab better? My mum didn’t get diagnosed with PA with low intrinsic factor until she was very severely disabled
Hello I am trying to investigate low active b12 results (at the low end of the reference range). Am I better to organise a private iFab test or an MMA test? Medichecks suggested MMA but is iFab better? My mum didn’t get diagnosed with PA with low intrinsic factor until she was very severely disabled
Sparklyjenson
in
Pernicious Anaemia Society
2 years ago
Want to take advantage of all our features? Just log in!
Log in
or
Join
Has anyone tried methyl cobalamin for injection from India, japan and Malaysia?
In these countries methylcobalamine is sold in supermarket. Indian methylcobalamine is so cheap and look like they have proper certificates for quality assurance. In the meantime there are some facilitators for continuous delivery of hydroxocobalamin which are so cheap and work like insulin pump work
In these countries methylcobalamine is sold in supermarket. Indian methylcobalamine is so cheap and look like they have proper certificates for quality assurance. In the meantime there are some facilitators for continuous delivery of hydroxocobalamin which are so cheap and work like insulin pump work
Hamayeshguy
in
Pernicious Anaemia Society
2 years ago
FIRST HYDROXOCOBALAMIN INJECTION - feel even worse
Hi My 22 year old daughter started hydroxocobalamin injections for the first time yesterday for pernicious
anaemia
and she told me afterwards she felt pretty bad and very tired.
Hi My 22 year old daughter started hydroxocobalamin injections for the first time yesterday for pernicious
anaemia
and she told me afterwards she felt pretty bad and very tired.
Chenders
in
Pernicious Anaemia Society
3 years ago
Underactive Thyroid, Hashimoto, Anaemia or none of the above
Any thoughts on the below please? I am considered normal but hoping to see an Endo specialist privately. I do have some more blood test results re: blood count but thought these might be the key ones. Can add if needed Creatinine 83 (range 53 - 97) Calcium 2.41 mmol (no normal range) CKD 75ml/min/1.73m2
Any thoughts on the below please? I am considered normal but hoping to see an Endo specialist privately. I do have some more blood test results re: blood count but thought these might be the key ones. Can add if needed Creatinine 83 (range 53 - 97) Calcium 2.41 mmol (no normal range) CKD 75ml/min/1.73m2
Harlie2020
in
Thyroid UK
2 years ago
Why in Dutch guideline for PA and B12 deficiency emphasis is just on IM injection and SC injection not mentioned?
I'm wondering why in dutch guideline for PA and B12 deficiency there is no SC injection. Is there any difference between IM injection and SC injection results? Why frequency of injection is different than NGS NICE guideline? In my experience more retention of B12 is the only key factor in symptoms improvement
I'm wondering why in dutch guideline for PA and B12 deficiency there is no SC injection. Is there any difference between IM injection and SC injection results? Why frequency of injection is different than NGS NICE guideline? In my experience more retention of B12 is the only key factor in symptoms improvement
Hamayeshguy
in
Pernicious Anaemia Society
2 years ago
Niraparib - GALAHAD trial
In the safety analysis population, the most common treatment-emergent adverse events of any grade were nausea (169 [58%] of 289),
anaemia
(156 [54%]), and vomiting (111 [38%]); the most common grade 3 or worse events were haematological (
anaemia
in 95 [33%] of 289; thrombocytopenia in 47 [16%]; and neutropenia
In the safety analysis population, the most common treatment-emergent adverse events of any grade were nausea (169 [58%] of 289),
anaemia
(156 [54%]), and vomiting (111 [38%]); the most common grade 3 or worse events were haematological (
anaemia
in 95 [33%] of 289; thrombocytopenia in 47 [16%]; and neutropenia
pjoshea13
in
Advanced Prostate Cancer
2 years ago
Golden Anniversary
To the relief of both of us (as I think Dr Wool was getting a bit frustrated with my long, ongoing “condition” too) the second Schillings Test had showed that I was suffering from Pernicious
Anaemia
and I was to have Cytamen (cyanocobalamin) injections every four weeks from then on.
To the relief of both of us (as I think Dr Wool was getting a bit frustrated with my long, ongoing “condition” too) the second Schillings Test had showed that I was suffering from Pernicious
Anaemia
and I was to have Cytamen (cyanocobalamin) injections every four weeks from then on.
clivealive
Forum Support
in
Pernicious Anaemia Society
2 years ago
Folate deficiency - inherited ?
I have folate deficiency
anaemia
, all the time unless I take folate. Fatigue/exhaustion. My grandad had pernicious
anaemia
and thyroid bless him. I wonder if it’s related… I also have thyroid disorder.
I have folate deficiency
anaemia
, all the time unless I take folate. Fatigue/exhaustion. My grandad had pernicious
anaemia
and thyroid bless him. I wonder if it’s related… I also have thyroid disorder.
Catlover46
in
Pernicious Anaemia Society
3 years ago
Low Folate - Pernicious Anemia?
Hi, I was diagnosed with pernicious anemia in October and had the B12 loading doses - i also took 1000mcg a day sublingual following that and 3 month later my b12 is 877ng/L. My Serum Folate was 6.5 back in october and in the following 3 months dropped to 2.7mg/mL and wasnt treat in october it was considered
Hi, I was diagnosed with pernicious anemia in October and had the B12 loading doses - i also took 1000mcg a day sublingual following that and 3 month later my b12 is 877ng/L. My Serum Folate was 6.5 back in october and in the following 3 months dropped to 2.7mg/mL and wasnt treat in october it was considered
Minimanic
in
Pernicious Anaemia Society
2 years ago
Should I have been tested for PA before starting loading doses?
Hi everyone, I'm currently on my loading doses and have a sneaking worry that my treatment/investigatons into PA aren't as efficient as I'd previously thought - I'd appreciate some advice as I sometimes find the clinical information online very complicated/contradicting. Firstly they will only give me
Hi everyone, I'm currently on my loading doses and have a sneaking worry that my treatment/investigatons into PA aren't as efficient as I'd previously thought - I'd appreciate some advice as I sometimes find the clinical information online very complicated/contradicting. Firstly they will only give me
franrose
in
Pernicious Anaemia Society
2 years ago
Can you help me interpret?
This was on a CDC handout that an immunologist friend gave me regarding vaccines. Does this mean we have to stop our ibrutinib, for example, two weeks before the vaccine ? or two weeks before and two weeks after we get the vaccine or booster? Quote: “Whenever possible, COVID-19 vaccines should be
This was on a CDC handout that an immunologist friend gave me regarding vaccines. Does this mean we have to stop our ibrutinib, for example, two weeks before the vaccine ? or two weeks before and two weeks after we get the vaccine or booster? Quote: “Whenever possible, COVID-19 vaccines should be
ElMaga
in
CLL Support
2 years ago
Venetoclax and calquence combo for Cll
Anyone have experience with V and Calquence together? My husband has been on calquence 4 months but Haemotolgist states his bone marrow still 80 to 90% full of cancerous lymphocytes. Doc wants V and R but husband has had no issues with Calquence and would prefer to stay on it along with Venetoclax. Lymphocytes
Anyone have experience with V and Calquence together? My husband has been on calquence 4 months but Haemotolgist states his bone marrow still 80 to 90% full of cancerous lymphocytes. Doc wants V and R but husband has had no issues with Calquence and would prefer to stay on it along with Venetoclax. Lymphocytes
smirnof
in
CLL Support
2 years ago
Queries on kidney health
Hi I’m just looking for some advice please I’ve had Pernicious
Anaemia
for over 12 yrs now but on studying my print out of bloods done in September 2021 I noticed my eGFR was a low 50 which is stage 3 chronic kidney, I’m 67 years old and had problems with kidney stones from my mid 30s.
Hi I’m just looking for some advice please I’ve had Pernicious
Anaemia
for over 12 yrs now but on studying my print out of bloods done in September 2021 I noticed my eGFR was a low 50 which is stage 3 chronic kidney, I’m 67 years old and had problems with kidney stones from my mid 30s.
Liz061254
in
Pernicious Anaemia Society
2 years ago
What monitoring is required after treatment for vitamin B12 deficiency has started?
Source: https://cks.nice.org.uk/topics/
anaemia
-b12-folate-deficiency/management/management/ Is this correct, that from 7 to 10 days after loading doses start this blood test should be done? I have started my loading doses two days ago.
Source: https://cks.nice.org.uk/topics/
anaemia
-b12-folate-deficiency/management/management/ Is this correct, that from 7 to 10 days after loading doses start this blood test should be done? I have started my loading doses two days ago.
Springblossom13
in
Pernicious Anaemia Society
3 years ago
Migraine Medication and Blood Pressure Medication
Hello Everyone. I have been having neck pain along with dizziness. I was referred to a neurologist who thinks that I'm suffering from migraines. He gave me ubrelvy Medication to take while in the office and prescription for Ubrelvy 100 mg. It took away the neck pain but it also knocked me out for
Hello Everyone. I have been having neck pain along with dizziness. I was referred to a neurologist who thinks that I'm suffering from migraines. He gave me ubrelvy Medication to take while in the office and prescription for Ubrelvy 100 mg. It took away the neck pain but it also knocked me out for
MightyMay
in
Thyroid UK
2 years ago
Feeling I’ll after B12 injections
I hope like me you are all coping the best you can with your pernicious
anaemia
/B12 deficiency. I am fortunate after 6 years without injections due to a young inapt doctor saying I didn’t need them to now being in the hands of a brilliant GP.
I hope like me you are all coping the best you can with your pernicious
anaemia
/B12 deficiency. I am fortunate after 6 years without injections due to a young inapt doctor saying I didn’t need them to now being in the hands of a brilliant GP.
Hedgehogs15
in
Pernicious Anaemia Society
2 years ago
Repeat blood test after loading dose???
My B12 level was very low <100 and after testing I was diagnosed with pernicious
anaemia
. A couple of weeks after the loading dose my blood was retested and came back with a B12 level of 2000 - not surprising as I’d had the loading dose.
My B12 level was very low <100 and after testing I was diagnosed with pernicious
anaemia
. A couple of weeks after the loading dose my blood was retested and came back with a B12 level of 2000 - not surprising as I’d had the loading dose.
Patsypar
in
Pernicious Anaemia Society
3 years ago
What will 2022 bring?
I wanted to be able to feel more positive for 2022 and wish people a happy new year. But after watching the news last night (never do this before bed!) I can feel the fear and anxiety building again after having my family safely at home for the past couple of weeks. Lack of availability on LFD and PCR
I wanted to be able to feel more positive for 2022 and wish people a happy new year. But after watching the news last night (never do this before bed!) I can feel the fear and anxiety building again after having my family safely at home for the past couple of weeks. Lack of availability on LFD and PCR
MWxxxx
in
MPN Voice
2 years ago
1
...
99
100
60
70
80
90
100
Filter results
Clear filters
Posted in
All communities
Pernicious Anaemia Society
4220 results
Thyroid UK
3078 results
Restless Legs Syndrome
352 results
View top 10 communities
Sort by
Most Relevant
Newest