What type of Vasculitis have you been diagno... - Vasculitis UK
What type of Vasculitis have you been diagnosed with? Please leave any appropriate comments.
Suzym2uModeratorVasculitis UK233 VotersPlease select all that apply:
Diagnosed in 2004
Systemic vasculitis and relapsing polychondritis
HUVS
MPA diagnosed in January 2013
Diagnosed 2012
MPA diagnosed January 2013
Iga Neuropathy; Iga but different.
Iga Neuropathy; Diagnosed in 2015.
GPA (Weg's) diagnosed 2004
Rheumatoid vasculitis with Myocarditis (left ventricle) and mono neuritis multiplex
Weber Christians disease with vasculitis
CSS Diagnosed Dec. 2003
GCA PMR and autoimmune diagnosed 2012
HUV
PMR summer of 2014, GCA summer of 2015
Dual duagnosis of Hypocompliment urticarial vasculitis & behcets
Small Vessel Vasculitis/ Wegener's
Urticarial Vasculitis
Unclassified systemic along with UCTD and pituitary cyst
Temporal Arteritis April 2015
Diagnosed with WG in Oct 2012.
MPA, July 2013 diagnosis with severe kidney involvement. Although I am in remission, I struggle with working. I am partially disabled and work only 2 days per week. Family friends and faith hehelp me to persevere!
My doughter has been diagnosed MPA double posotive P anca and GBM.This is a very rare case in childhood.
Large Vessel Vasculitis of temporal, partial subclavian, brachial and axillary arteries. Diagnosed Sept 15
Still awaiting definitive diagnosis, but amongst other things it's been called urticarial vasculitis.
Foss
Hypocomplementemic urticarial vasculitis syndrome (HUVS)
GPA (Wegs) Diagnosed 2006
Diagnosed GPA July 2011
GPA diagnosed 2002
Cryglobenanimia
GPA (Wegeners) Diagnosed 2007
Diagnosed 2008 has been in remission, but flaring at the moment!
Diagnosed 2005
Systemic unspecified. Diagnosed 2007. Two positive leukocytoclastic biopsies. I am treated at Addenbrookes. Now on Rituximab and Prednisolone and pretty much in remission. Just can't get rid of the Prednisolone because it becomes so painful.
I voted Other, as my Consultant has decided l have Vas. with involvement of the ears, nose and throat plus eyes but l'm P anca.
HUVs
Behcets
I have Behcet's
Diagnosed January 2014 with WG
I was diagnosed with css July 2015 with mono neuro multiplex.extremely painful
Systemic PAN diagnosed 2007
Hypocomplentic Urticarial Vasculitis
Unspecified
PANCA
GPA in 2010
Diagnosed with systemic vasculitis in 2006, now been defined as neuro behcets.
I have CSS
Mononeuritis multiplex service boundary to vasculitis (diagnosed after conductivity tests, biopsies and previous medical history of nose bleeds, sinus problems, high blood pressure
Relapsing polychondritis
wegeners granulomatosis
I was originally diagnosed in 1982 with PAN. This diagnosis was changed when I had a flare up in 2007...to CSS.
Unspecified vasculitis
Diagnosed 2010.
Diagnosed 2010.
I have in the past been diagnosed with eosinophilic CSS - PAN - Takayasu type and unspecified. Consequently I am somewhat confused !!!
My GCA is of Aorta Arch and Subclavian arteries. Sometime written in my notes as LVV
Rheumatoid Vasculitis. Diagnosed 2014.
GCA diagnosed 5 years, then in remission 6 years and ongoing.
Diagnosed July /2014 with PMR, July /2015 with GCA
Another poll where I have had to answer 'other'. Oh well, at least I'm different and consistent! Basically I have about five (it seems to alter sometimes??) 'Strains', of ANCA, Vasculitis. This has affected my Heart, Brain and Kidneys. I had a Kidney transplant, in July 2013-after four years on dialysis, three times a week.
So, you see I really don't 'fit' do I?
Kind regards and belated 'Happy Easter' everyone.
AndrewT
ANCA C Vasculitis
Diagnosed in January 2007.
HUVS
Originally diagnosed with mpa but changed to go a because of sinus involvement
GPA from April 2011
WG from sept 1997
Rheumatoid Vasculitis diagnosed April 2014.
Granulomatosis Vasculitis
CSS diagnosed in 2014
Primary systematic vasculitis / Bechets
Behcets
Anti C1q induced vasculitis with Angioedema (HUVS)
Diagnosed 2005
HUVS
My daughter was diagnosed with CNSV it has been 6 months and she is doing very well.
MPA diagnosed 2014. Only described as systemic vasculitis or ANCA positive vasculitis by consultants. However a junior doctor who saw me at routine clinic used the term Microscopic Polyangiitis in her report to my GP
MPO ANCA + ve Vasculitis
Gpa diagnosed Dec 2015
