Shortness Of Breath: Hi, I'm relatively... - The UK Mastocytos...

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Shortness Of Breath

mcas_bestie profile image
6 Replies

Hi, I'm relatively new here as I'm still in the process of diagnosing MCAS. I really struggle with constant shortness of breath and a feeling of pressure on my lungs and am wondering what sort of medications and lifestyle changes other people have found helpful for that, or made that symptom completely go away?

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mcas_bestie
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6 Replies
JayCeon profile image
JayCeon

Hiya!

Supps praps helped, breathing exercises definitely did (I prefer Wim Hof, but his is a challenge), most of all being outside in the fresh air or airing as much as I can. For some praps costochondritis exercises (youtube) might help breathing.

mcas_bestie profile image
mcas_bestie in reply toJayCeon

Thank you! This is helpful

Marcilhac profile image
Marcilhac

I go to a tai chi outdoor class . It helps

Swissgirl profile image
Swissgirl

Hi. Have you had your iron levels checked as low iron can also cause shortness of breath. In addition, thyroid issues ( hypo) can also be a cause, should you happen to have a thyroid condition. I have both Hashimotos and MCAS and suffered for a long time with ‚air hunger‘.

mcas_bestie profile image
mcas_bestie in reply toSwissgirl

I know that I have low iron but I can't find any supplements I can tolerate, then when I had an infusion it was too high so I think there's some sort of absorption issue going on, I'm not sure what to do about that though. I will look into my thyroid as I hadn't thought of that. Thank you for your comment :)

meditatio profile image
meditatio

I toughht I had MCAS but i had heart test and have Aortic stenosis. So it really is my heart. I thought MCAS because I have had several patients with rapid heart beart but no, for me it is heat and serious.

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