My baby was diagnosed with mastocytoma - The UK Mastocytos...

The UK Mastocytosis Support Group

544 members244 posts

My baby was diagnosed with mastocytoma

dpops profile image
0 Replies

Hi all, my 1-year old daughter has just been diagnosed with mastocytoma. She has one little bump (she has had it from birth) and it blisters every couple of months, otherwise no symptoms. After 3 GPs and a junior dermatologist failed to diagnose it, we saw a consultant dermatologist (who is apparently a well-known professor of dermatology) who looked at it and immediately recognised it as mastocytoma. He did a visual examination and tested for Darier's sign but that was it. He said it is benign, told us to go away and do some reading on the condition and prescribed steroid cream. He seemed pretty relaxed about it and opined it would most likely go away as my daughter grows older. However, having now read extensively about this condition, I am concerned that he has not done any actual tests (like a biopsy), that he cannot know whether it is in fact benign just by looking at it and that he has not advised on any allergy risks or indeed any risks. Does anyone have any experience with mastocytoma in young children? Do we need to do further tests and, if so, what tests?

Written by
dpops profile image
dpops
To view profiles and participate in discussions please or .

You may also like...

Mum with recently diagnosed baby

now under a consultant at the dermatology ward and she has done blood tests (waiting on results)...

Help please. MCAS investigation on the NHS?

to do. Has anyone here been diagnosed on the NHS? My thinking now is to ask for a dermatology...

over the counter antihistamines

2017 I was referred to a NHS dermatologist , I had further blood tests and a 4 week course of ultra

Which type of specialist best able to diagnose MCAS?

possible. Which type of specialist is most able to diagnose MCAS. So far have seen...

Anyone had Omeprazole cause Myositis?

change to H2 blockers and can't get any anywhere. I've asked my doc if she can find some for me,...