Mastocytosis

[Bluebird_77]

Hi,

I'm sorry to hear you are struggling with your medical condition. It can't be easy, especially the constant itching. I am awaiting a bone marrow biopsy to confirm if l have systemic mastocytosis. I do have some of the symptoms you talk about. I try and keep to a low histamine diet, but sometimes this is not always possible. I have seen a dietician and she told me a low histamine diet is not a healthy option. So l tend to be careful what l eat, and try and avoid the foods high in histamine and sometimes, eat things that are lower in histamine.

I find yoga helps with my well being, as having a rare illness can sometimes be hard to deal with. I hope other people with systemic mastocytosis reply to your posting, so that you realise you are not alone. All the best.

[suzie44na]

Hi, I have itching which comes and goes at times. I once got cream off my doctor for it but I cannot remember what it was called but it did work. This week behind my knee are itching, it is annoying. It is not all the time like yours is, I have not heard of Mastocytosis before to be honest. I have neurological problem , dystonia and abnormal PNKD gene, not sure if mine is to do with these problems. I will ask my doctor when I next see her. Wishing you all the best.Suzie

[LotiRamjet]

The constant itching is maddening. Mine is in my big toe and the bottom of my foot! It is hard to resist scratching, but if I do it just hurts deeply. I get it across my abdomen as well. Let us know how your biopsy comes out?

[Lemrac66]

Hi blue

[Lemrac66]

Hi bluebirdStill learning about all this.

Scratching on legs feet etc.

My feet have been swollen and red for sometime

Very slow at walking .

What other symptons is there

Good luck with bone marrow