Xoliar reaction anyone else? - The UK Mastocytos...

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Xoliar reaction anyone else?

Merkat90 profile image
2 Replies

Hi everyone I had first dose of 2 injection of xoliar I had quiet nasty reaction to it anyone else wish had energy write all symptoms but so weak

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Merkat90 profile image
Merkat90
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runcyclexcski profile image
runcyclexcski

Did it happen while you were waiting for 30 min after the injection, in the Severe Asthma clinic? What did the nurses do? I personally have not had a reaction to Xolair per se -- only the overall exhaustion from having to drive to the hospital and back. It got better in 4 months (I am now back to work).

Jess-UKMasto profile image
Jess-UKMastoPartner

Some people do react to it with a range of symptoms up to an including anaphylaxis, though most don't. Please do reach out to your doctor about managing the symptoms and to discuss whether they want to consider doing a desensitisation protocol to help you manage it. I understand that Dr Mariana Castells in Boston has done desensitisation with good effect, so your doctor could consult if there is a concern about tolerance.

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