Double lung transplant: Hello, I am 3... - National Foundati...

National Foundation for Transplants

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Double lung transplant

JeromeA profile image
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Hello, I am 34, 4 years post a double lung transplant due to Cystic Fibrosis. Over the past year I keep having a harder and harder time cooping with the side effects from the list of meds.

Insomnia, Muscle cramps/spasms (almost from my neck to feet at times), memory loss, confusion, anxiety are the major ones limiting my enjoyment of this new lease on life.

I am open to any and all suggestions. Anyone who has dealt with any aspect of this and has found something that works for you, please share.

Health and Hapiness

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JeromeA profile image
JeromeA
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Lucky2050 profile image
Lucky2050

I’ve only just joined this group , how you doing now ? I’ve only just got onto the transplant list so can’t comment on side effects but if your willing to share your experiences I am sure it would benefit me. Currently I’m quite scared of the whole thing !

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