Chronic Tinnitus and Hyperacusis, what’s really needed here, cards on the table!!

[MAC0811]

Just want to put this out there and gauge your responses in case you agree or maybe you don’t and that’s fine, but I’m putting this to you;

All of these so called treatments that we’re told can help to treat ‘Tinnitus and Hyoeracusis’ like; CBT, Meditation / Headspace / Talking Therapy etc, Acupuncture, eating well / avoiding certain things, taking vitamins, exercise - you name it! Make absolutely “no difference whatsoever” if you suffer with ‘chronic / loud’ tinnitus and hyperacusis! As nothing even ‘touches the sides’!

And their lies the big problem here with many of us; as, as we know all they can offer is a treatment for the “effect” and not the “cause”?

And until this is “properly” addressed those of us with the worse case will continue to enter purgatory / hell with almost every living second we are here for.

And yes there are so many other debilitating conditions too that don’t yield a cure as well, I know! But unlike for; examples; Parkinson’s, Heart disease, Alzeihmers / Dementia, MND, many cancers even migraine sufferers etc - they are “well” publicised and “well” funded! And they do at least offer some form of treatment that affects the “cause” (and not only the bloody effect!) and it does bring some blessed relief! And as a result a cure won’t be far away for them.

But not for “Chronic Tinnitus and Hyperacusis!”

ITS NOT GOOD ENOUGH WITH THE LACK OF SUPPORT THAT CHRONIC TINNITUS AND HYPERACUSIS CURRENTLY MERITS. THIS COULD OTHERWISE BE PROPERLY TREATED OR EVEN CURED BY NOW IF IT HAD HAVE BEEN DEALT WITH PROPERLY.

Thanks for listening, and if you are one of these poor sods I speak of - you’ll just have to keep battling, use your sound generators, perhaps anti depressants (if you’ve not grew immune to them all yet?) and try and keep as distracted as poss! And I know it is criminally hard to do!!! And hope to God you might get a little respite now and then!? Stay Strong!!! 💪🏼 and perhaps one day hopefully soon someone with more pull and sway than me can drag this awful condition kicking and screaming to the serious attention of governments, medical big wigs - and they might finally decide to properly act on this once and for all!!!

[fauxartist]

I understand your frustration and absolutely agree....most so-called attempts at addressing tinnitus is no more effective than throwing spaghetti at the wall and hoping something will stick. If I press my thumb on the back of my ear where my Eustachian tube is, like pinching a nerve, my T gets quieter...but how practical is that to walk around pressing on the back of my ear.....not very, as I need both hands to do most things in life. I also notice my T will get louder some days, and some days a little quieter, thankfully....but usually it's like listening to a loud broken speaker hissing in my right ear. It leaves me with a deafness of sorts because I can't understand what people are saying very clearly.

I have gone through the same B.S. with my cluster migraines.... nothing works ...every med, every therapy, every everything I've tried over the years has never worked. And now with my compromised immune system with Long Covid... it's been an interesting change in my quality of health and adjustments to life. But I'm still kickin, and fighting the good fight, hoping someday, maybe not in my lifetime, that there will be cures, not just another pill or shot.

[Pipster25]

I think you are spot on with your assessment of the true situation in your comments. We have the big problem of being dismissed with contempt by the NHS for bothering them with our trivial “ear noises”. In those circumstances we are at the very bottom of the NHS to do list. Most ENT clinicians want you out the door ASAP. ( with a boot up your ****) Some research is being carried out in earnest by the American military who recognise T as a significant problem for themselves , but in the UK nothing.

[EarHealth2024]

well said 👏🏻 - basically , we all have to Accept it - no choice it’s there.

But, we all can not allow it to control our mood. Say to yourselves “ it’s there I’ll get used to it and focus on other thoughts or /and sounds”. I know easier said than done. You can do it, you can

🙏

[Tinker2015 in reply to EarHealth2024]

I totally agree after developing very loud tinnitus a new sound in my right ear and hyperacausis same time I told myself no use worrying about this it’s not going away the sound tends to start very low by tea time it’s louder I am bringing it down slowly out of the rafters as you say my hyperacausis has relented it seems to fluctuate Ent said don’t put anything in your ears. My hearing gone from being so sensitive to sounds and turningbTV down. Now going back to hardly make out the sounds

[MobilePhoneandStress]

It's true. There's no cure. No solution. It's hell. And it's wrong that we're all suffering. Deeply, cruelly wrong.

[Saorfhlaith22]

Thanks for telling it the way it is!!

I find it so hard to deal with both T and H are so debilitating.

I find it hard to even get out of the house! My tinnitus is so reactive and H it has cost me my relationship with my only child who cannot understand why I can’t just get on with ordinary life with T and H

Mind started with work related stress had to take early retirement now with losing my daughter stress part of my everyday life !

I am at my wits end thank God my husband is wonderful

[rabbits65]

very well said .

[St12]

I'm one of those poor sods! It's so bad, I cry a lot out of frustration 😮‍💨

[MAC0811 in reply to St12]

Try to stay strong and have some hope that one day hopefully soon this awful condition will be properly treated. x

[MobilePhoneandStress in reply to St12]

Cruelly, friends + family can't understand. Makes us feel very alone. And GP's blames stress + depression, but T causes stress and depression. Not the other way around.

[Vic24]

Hi! You are right. Unfortunetely nobody knows either the cause or the treatment for T.

After 18 years of struggling with my “darling” Tinnitus I have discovered recently that in fact what triggers T , not its cause is a CHRONIC DISEASE that each of T sufferers has. That’s why probably they won’t discover a general treatment, but they have to treat each person .

Ihave been diagnosed lately with intolerence to histamine. Since I have taken Daosin the noises have diminished in intensity. Unfortunately, the diet is very restrictive.

Good health!

[MAC0811 in reply to Vic24]

I’ve never heard of Daosin, but whatever works for you! Wish I could find something that helps! 🤔

[Vic24 in reply to MAC0811]

Keep on listening to your “body”! Good health!