pulsatile tinnitus

[Ticktock2024]

I am at the beginning of my journey and just read my results from scan 60% stenosis on carotid and I’ve been referred to surgeons. Not even sure why surgeons but it’s early days I’m guessing.

So I’ve been under ENT all my life, I’ve got bilateral conductive hearing loss Long standing right tympanic membrane perforation with long process of incus erosion and type 3 effect on stapes head. So when I started hearing a heartbeat one can only assume it’s just another issue with my ears and it will pass.

Now I’ve got this whooshing noise all the time now it just doesn’t stop. It’s like having a child screaming at me all day and all I get told is listen to white noise and relax!! How does that even work. I’m so stressed and I’ve never felt this low or stressed. It’s just so loud I’m struggling to even hear now because this is my good ear as I would call it. Please if someone has any tips or suggestions while I wait for ENT to get back to me.

[Happyrosie]

I’m so sorry you’ve got this continuing problem, which I think might be quite rare so its not likely anyone on this forum has the same issues as you. But you could phone the charity Tinnitus UK and they might have some suggestions

[Ticktock2024 in reply to Happyrosie]

ok thank you. Trust me to have something rare 🤦‍♀️

[Janna24]

Hello , I do have it also for last few years . It's non stop woozing in my years and head . I done mri , but nothing practically they found out . I going to ENT tomorrow, but honestly I don't know if I can get help

[DanielaHobbs_]

hi Ticktock2024 I also have pulsatile tinnitus. In your case it may as well be linked to the conductive hearing loss (with maybe also other compounding factors, such as stenosis and hearing loss )? In many cases , the doctors can’t find a cause. Did you find your stenosis with ct venogram/angiogram or ultrasound ?

[Ticktock2024 in reply to DanielaHobbs_]

It was ultrasound they found the stenosis, however I’ve also read I’ve been referred to surgeons also. I can’t see them doing anything to be honest. Unless it’s to deal with the cholesteatoma I have no idea just yet.