Mal de Debarquement Syndrome (MdDS)

[tangocharlie]

Hello, I have dizzyness, balance problems tinnitus etc which is currently being investigated by various doctors to find the root cause. It looks most like it is MdDs as it seems a classic case, although the disease itself is very rare. It came on after a boat trip and is when you don't recover your balance after being in motion, usually a boat, but can be other forms of transport eg plane, train or car. You are OK when actually travelling but afterwards feel like you are still on a boat, rocking, bobbing and swaying 24/7.

Does anybody else have it? I've tried a search but nothing is coming up in old posts

[vonniesims]

My elderly aunt had it after a cruise. No treatment was offered, anand it seemed to settle.Hope it does for you

[tangocharlie in reply to vonniesims]

Thanks. The first time I had this 9 years ago after a choppy ferry ride it settled down after about 4 or 5 months, but htis time it is dragging on, oer a year now. There isn't much by way of treatment and it is a very poorly understood disease. Glad your aunt got over it quickly.

[Fridays_Child_62]

I only read about this condition yesterday but realised that I probably experienced it many years ago after being on a boat on choppy waters going to the Great Barrier Reef in Australia. I was fine while we were sailing but when the boat stopped at the reef, I felt unsteady and nauseous, to the extent that I couldn't eat the buffet lunch. It was similar on the way back and I felt the same when we got back onto land. Fortunately, it only lasted for half-an-hour or so. Now I know that this condition exists and I may be susceptible to it, I'll probably avoid boats in the future, except on rivers and lakes.

This is the information I came across about it, but it says that tinnitus is not a symptom:

menieres.org.uk/information...

[tangocharlie in reply to Fridays_Child_62]

Thanks, I got tinnitus the first time I had MdDS but the doctor initially thought it was Meniere's. I think the Betahistine caused the tinnitus but no way of knowing