6 months in Tinnitus, but without any improvmenent

[Roberto-1978]

I am wishing you a very nice New Year 2022.

Still struggling with my Daily Life. Sorry to not post anything Positive here but here are the problems . Even if somedoby can suggest anything , which can make me better by 5 % , pl let me know

1)First Ear Tinnitus Onset :- Right Side :- Stress / 7-8 pills of Benzos in 2 Months :- 6th June

2)Second ear Left Tinnitus Onset :- End Aug :- I was give the Dexmathone injections in the Righ ear (Munich), and I believe this has caused the onset in the left side. Is there any truth in the theory , of I am just killing myself

Physical Issues

1)Main Issue : Sleep Effected. Low level Cricket noise helps me to sleep. But I get up 2*-3 times Started wirh Magnesim before the sleep.. Meditation statred 3 times a day.

2) Pain/ Vibration / tingling Sensation in both the ears , with Ear fullness & Ear Pain. Doctors has checked and found nothing in it..

3)Car excitement :- What can be done ? The tone is more exited after 1 hour drive..

4) Hypercuasis : More on left side . This and Eye Pains are the real beast.

5) Eye Irritation :- Not even able to work for 2 hours :- (. Omega 3 and Grren leefy Added . Eye Problem :- Corner pain close to ear side . Eye Doctor / Neuro has no clue. What else can be done ?

6)Does Hearing System goes under recalibration after Tinnitus Onset. If yes , what can be done to avoid further Loudness / Damage to the Auditory Systems.

7) Is the Hypercausis cycle break at 75 db:- If my HC threshold is 60 DB . are my hair Cells ok in case I am exposed to 75 DB

8)Foam Plugs :- Pandits are saying not to use :- Exact reason

9)Any NAC Studies Links , which I can read , bofore I start taking it

Sound Therapy :-

1)WNG How to define the mixing point ? Right Ear Tinnitus levels :- 32 DB , and Left ear 20 DB

Thanks for the support and Positive Help for all the members here

[Happyrosie]

Hi Roberto. I’m sorry your tinnitus is getting you down. Some of what you ask is impossible for us non-medics to answer. But I might be able to give a bit of help.First of all, I expect you have looked at the website of the British tinnitus Association. There is so much information there that I think will help you. Maybe you should their “Take on Tinnitus” again.

Your number 2 point - impossible for us amateurs to say whether or not an injection, whatever it was, ought have affected you.

Your physical issues - we all experience T in different ways. Meditation should help. Waking several times a night isn’t abnormal.

2. Pain. Not for me to say.

3. Car excitement - don’t understand. If you mean that your T is worse after noise, that’s quite usual.

4. Hyperacusis - have a look at the BTA website but I can’t comment on eye pain, nor on your number 5, 6 or 7.

8. Plugs in your ears might increase the T as your brain tries to compensate for lack of hearing. What sort of plugs do you mean?

It takes quite a long time to habituate yourself to T. Clearly you are concentrating on it, and concentrating on T just makes it worse. If you can, go for walks in the open air and listen to trees, birds, the rain.

Happy new year!

[Hidden]

Hello Roberto sounds like you have a lot of technical knowledge. Is that your hearing test result? I have 'ski-slope hearing loss' as it it called because of the sloped shape of the graph, with moderate hearing loss in medium tones and severe hearing loss in high tones.

Your graph has a plateau then a drop...and it looks like the hearing in your left and right ears are the same?

I have similar unexplained triggers and noise sensitivity like you with the noise/vibration in car. I've been told (in the UK) I have vestibular migraine along with hearing loss (though I'm not 100% sure it is correct). I also experience eye-pain at times.

I have sensorineural hearing loss, which is apparently caused by inner ear damage - and an audiologist said tinnitus can be a feature of this after a recent hearing test.

Just letting you know my situation in-case any information is useful to you. I'm really not sure what to say as regards your case. It sounds as though you may be experiencing various triggers. Maybe you need to seek a second medical opinion, if you can.

It is quite a shock at first and adaptation required. Being as aware as you are is a good first step. I'm sure you will get there.

All the best to you in Munich. 🌠

[surreycccfan]

Hi Roberto, it sounds like you are doing some distraction techniques and behavioral techniques, I think for most of us by keeping at these techniques help us move towards habituation and/or living well with T.

In regards to sleep I have posted a few times what worked for me (if you cannot find it please message me), this may give you some ideas.

I have spoken to a few folks who have found motor journeys difficult. Most have said that they tried a few things (1) if a long journey then take some breaks to avoid the constant journey noise (2) using distraction techniques (e.g. listening to a talking book or music they enjoy) to help the brain focus on this rather than the T (3) As the thought of going on a journey can cause anxiety use relaxation techniques both before and during the journey to improve their resilience and (4) Behavioral techniques, using reframing models (e.g. APPLE reframing model), they understood the journey 'could' be difficult but go into the journey with a positive frame of mind and if T 'spikes' during journey then use reframing e.g. this won't take too long, I can take a break, etc. This type of reframing helps in moving towards acceptance/habituation as brain starts to not see it as a constant threat.

In regards to ear plugs, I know for both T and hyperacusis audiologists and ENTs do not recommend constant use as the absence of sound can worsen our condition. Occasional use to protect hearing in noisy environment was recommended to me and I use ear plugs when I am in a noisy environment

In regards to sound therapy a good audiologist should be able to help. I used a free sound therapy app (Resound Relief) and although I had used quite a few before this one, I found this one worked well for me as you can tune up to 5 different sounds. When I first used it I had the volume up high (just below the level of my T as my audiologist recommended so my brain can 'hear' other noises and to not damage hearing) and as I progressed on my T journey I slowly reduced the volume as I dampened the fight/flight response.

I hope this helps in some small way. Stay safe

[msspinner]

Hello Roberto,

I'm sorry to hear you are suffering so. I'm not qualified to answer your questions from a medical point of view but there are a few general points others have made which I think are very good.

1) Get a second opinion, and even a third.

2) The T may not be connected to any of the other issues.

3) Developing strategies to deal with the T will benefit you regardless of original cause. Eg it's a good idea to break a longer journey up anyway - stretch your legs, have a snack etc.

[surviveT]

hi Roberto - I found yr post form 9 months ago - I was wondering how you are doing now with yr tinnitus and did you find anything that helps you?