Hello colleagues

[Verma54]

Hi all.

Just joined on here today and so comforted that am not alone with Tinnitus and that helps so much ....

Am sure we will get through it and anxiety is major cause...take care

[djv1985]

Same here. I never heard of it before I got it after an ear infection that just wouldn’t budge and done a ton of reading and grabbing onto any tiny sliver of hope online about cures and treatments etc and then stumbled across this site and have been dealing with mine better. I have good days for a while then a series of bad days. But even at my worse there were people on here who were there to listen/read my moaning and capital lettered screaming and were able to keep me trucking.

I don’t know how I would’ve coped without this place and I’m glad that you’ve stumbled onto it as well. We will get through it and for me anxiety is a part of the problem but so was fear. My docs barely knew anything about it, neck people on here knew more about it than most of the docs I’ve seen but like I said this place helps a lot.

Welcome and my best advice is to be distracted and carry on living how u did before u got it. Read, watch tv, spend time with family. The bigger the distraction the longer I usually get a break (it’s still there but I don’t concentrate on it).

[Verma54 in reply to djv1985]

I agree and fear is an issue. It restricts me a lot and am missing ok holidays because of fear and isolates one...I have had this for nearly 25 years but my latest episode since Oct 2018 is worse as has restricted me...previously just carried on ...am so pleased came on this site as know am not alone

[djv1985 in reply to Verma54]

It’s a great site to be a part of and it has people who know the annoyance and mental challenge Tinnitus has on people.

[Verma54 in reply to djv1985]

Mental challenge is the worst as screws your mind up..fear...it’s only noise in the head

[djv1985 in reply to Verma54]

Yep. I hate when I have to explain to people why having a constant noise in my left ear playing all day long every day and have them say something like “meh I could deal with that” drives me nuts but I do think the best decision I made was to just carry on reading watching tv playing video games going for my walks etc. I’ve decided that no matter what I’m going to carry on and not let the ear demon beat me.

It’s a mental health trick I was taught by a few people most recently a work friends father who has lived with it screaming in both ears for almost fifty years (got it from the army).

[Verma54 in reply to djv1985]

Your mental health trick - does it work ? I have a fear when I try doing something I used to? Am a lot better now than 7 months ago when was at my lowest but still not there..have had 20 sessions of CBT...private ENT and ears waxed... will get there

[djv1985 in reply to Verma54]

It works for me but it can be hard. Especially when it’s loud but I still force it through. I make a plan for example I’m gonna read a certain number of book chapters and stick to it and it just distracts the mind but when I read I read aloud so I can hear me as well as the noise. I can’t promise but it really does help me.

[Verma54 in reply to djv1985]

Thank you DJV. I like your persistence and am inspired by you and others and will stop being a woose

[djv1985 in reply to Verma54]

Lol wouldn’t say that part at the end. I still have bad days not often but they come and last a while but like I said a good distraction routine is what helped. I hope it helps you.

[Verma54 in reply to djv1985]

👍🏽👍🏽

[Joeb17]

Welcome I hope you find all the help you need here.

[Verma54 in reply to Joeb17]

Yes it’s great and one day we will get the cure. I have habituated for years and know will happen

[ShakeelaBTA]

Hello and welcome to the British Tinnitus Association forum.

Do feel free to ask any questions, I hope that you find this a helpful and supportive place to help you manage your tinnitus.

We have some resources that you might like to check out in addition to our home here:

tinnitus.org.uk (information and support details)

takeontinnitus.co.uk (free tinnitus management programme)

If you’d like to sign up to receive ‘Focus’, our new free monthly e-newsletter, you can sign up at tinnitus.org.uk/forms/conta...

Helpline 0800 018 0527 (Monday-Friday 9am-5pm) (outside the UK you can call [phone])

Kind regards

Shakeela

[Verma54 in reply to ShakeelaBTA]

Thanks for the help

[Verma54]

All- been reading the posts. Thank you for those sharing thoughts ...take care 🙏🏾🙏🏾