My Experience so far.: I have been reading posts... - Tinnitus UK

Tinnitus UK

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My Experience so far.

Caspian1 profile image
3 Replies

I have been reading posts here for the last five months and although I have never interacted I have found some comfort reading your experiences.

My T started whilst lying on a beach in the Caribbean on what should have been a stress free and relaxing holiday.

The last three days were traumatic and I remember it like it was yesterday, this high pitch and constant noise started and I had no idea what it was or how to cope with it.

Looking back I think panic kicks in which in turn causes stress which heightens everything about the condition, nothing has changed, here I am almost three years down the line and the same noise causes all the same feelings.

If you had spoken to me about wanting to end things I would always say I could never understand anyone having that feeling but ask me now and I can feel more sympathetic.

Personally it is not something I could or would do but how T makes you feel some days I understand people's thoughts regarding this and how desperate they must feel.

I have been to my doctor ( Many times ) made many visits to ENT and I have a hearing aid but to be honest it does very little for me.

I have tried every piece of advice on the internet but very little works, small things that take my mind away seem to be the best for me, the hot tub bubbles, the shower, walking the dogs, playing video games or music games online all give me small amounts of solace.

I refuse to take medication but can't stop turning to alcohol, it does not help with the symptoms at all so don't try it thinking it will but it helps me get to sleep although I only ever sleep for a few hours if I am lucky, the moment I awaken I am greeted by T.

I am now resigned to the fact that I will have this for the rest of my life and I will never feel comfortable with it, every time I get a headache or cold it gets worse.

I think the worst like I must be dying of some terrible and yet undiagnosed problem but then a few days later I can feel slightly better and I carry on with my life.

I truly hope that one day someone comes up with a way of at least giving us some relief from this but I won't hold my breath waiting for it.

Thank you for listening.

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Caspian1
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3 Replies
berry76 profile image
berry76

Gosh I so understand how you feel - and I get comfort too to know there are others in the same state. Whenever my tinnitus spikes or there is a new noise I too get into a panic - and resort to CBD oil, Kalms or 5HTR which psychologically give me a prop. Half the trouble is our reaction to this intruder - some folk seem able to shove it in the background which I can when my mind is distracted - or even by using mindfulness. Sending you sympathy and strength.

Caspian1 profile image
Caspian1 in reply to berry76

Thank you for the reply berry76 I have thought about trying CBD oil but I have read mixed reviews on the benefits, have you found that it helps you ?

berry76 profile image
berry76 in reply to Caspian1

Still early days and I don't use it regularly ... but it is supposed to quieten the feelings of panic and may be a good alternative to alcohol for you.-

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