I answered [with this message] some comments about ME/CFS where some people felt mis-diagnosed and angry at their gp's dis-interest in finding the correct diagnoses.
this led to some people questioning the validity of ME/CFS.
this upset the people correctly diagnosed wih ME/CFS.
I sent this reply stating my thoughts, but as these messages are days old, decided to blog them here:-
I have a friend who, has been properly diagnosed with me/cfs. It's an awful debilitating condition .
I have met many people on different forums with similar conditions to mine and they report that their gp/consultant doesn't listen to new symptoms or worries. Simply dismissing them, for example, "oh that's just your arthritis" Probably if a big toe fell off, they'd get the same response!
It is very frustrating not to be listened to.
The written word is a cold medium and mis-understandings occur.
We all have one thing in common on here. Thyroid problems affecting our heath which affects us in many ways - physically; mentally; emotionally and socially.
therefore when people come on here and read another's personal opinion about their own condition, it feels like they, and the suffering they endure, are being attacked or dismissed, and not being supported, understood, or respected - the aims of forums like this.
but we also do need this forum to feel free to rant about how we feel, how we are treated, and need to feel listened to, whilst respecting others feelings.
I hope thatthse who feel mis-diagnosed find dr's who will listen and find the right treatment.
I found it frightening when I had all these symptoms and no answers.
I also was pleased to read recently that many main city hospitals are moving towards a " person centred multi-clinic approach" where all clinics share info & treatment for a patient. this would end having the same tests for every clinic plus one or two specialised ones, now they can ask for ones outside their remit and refer patents onto another clinic without long delays.
gentle hugs to all (( ))