Central Hypo Advice

[juliekat]

Hi Guys

Could anyone who has experience of Central Hypothyroidism advise me how they went about getting a diagnosis. How they broached the subject with doctors/endos etc., without being thrown out of the office!!

Results and symptoms I wrote on another post had people suggesting I might have Central Hypo, and they suggested I write a new post asking how to get disgnosed.

Hope you can help me.

[PixieElv]

hi Juliekat

I got a diagnosis for secondary (central) hypothyroidism.

I started by obtaining a list of private Endos from Thyroid UK and chose one near me, whose reviews I liked.

He stopped all of my meds for 2 weeks and then ran a battery of blood tests (around 20?). Those showed that my TSH was low and my T4 was also low, which is a classic sign of secondary hypo. My antibodies were fine, so it’s not Hashi’s. He wrote to my GP, who accepted his diagnosis. However, EVERY time I get a blood tests done my GP will go ‘ohh look your TSH is low…’ and I need to remind her of my diagnosis.

Getting a diagnosis is not cheap. The consultant will charge £150-£200 and then the tests. However, my Endo was kind enough to ask my GP to get the blood tests done, so I saved around £1000 for the tests.

I hope that helps

[Espeegee]

It was suggested to me on here that my symptoms were very similar to Central Hypo, I’ve never managed a diagnosis from anyone. GP just kept telling me that my results were all in range even though T4 was at the very bottom, I’ve seen 3 NHS Endos but all were Diabetic specialists. I haven’t managed to find a private one near me who is a thyroid specialist so I decided to just buy in some Levo and try it. I started in April last year and I feel so much better so I’ll keep moving forward as long as I can get the Levo. Good luck getting the treatment you need.