Atrophic thyroiditis

[Jaybrooke]

Has anyone been diagnosed with this ? I recently asked for my medical records, looking up report on my ultrasound from 10 years ago , I have had thyroid problems for 26 years, I read, patients gland small atrophic isthmus. . I researched this and states atrophic thyroiditis similar to hashimotos but more like graves desease or words to that effect. I was diagnosed with hashimotos after ultrasound just questioning this now as my symptoms a mix of hypothyroidism and hyperthyroidism. Inner tremors, palpitations, thudding heart, pain in throat neck jaw ear teeth, difficulty swallowing, pain in joints and muscles , numbness in legs and feet, lack of concentration, wooziness, hair loss, foggy brain, extreme fatigue. Levothyroxine did help to a degree but I was still very unwell now take a natural dessicated thyroid , thyrogold which has made a big difference to my life, I still get flares when I have some symptoms but as they only last 2/3 days I can easily put up with after years of struggling.

[Star13]

Hi - After a recent scan I’ve been told I have it. I always thought I had Hashimotos as I had positive antibodies but mostly TgAb, which apparently is common with those who have Atrophic Thyroidits.

As this is still quite new to me I’m still learning even though I was diagnosed 31 years ago. I also have the DIO2 gene and therefore am on combination therapy. I tried NDT but couldn’t get on with it and again I’ve heard that’s common with AAT.

It sounds like you have or are suffering from autoimmune attacks which are causing you to swing from being hypo to hyper and back.

Are you under the care of an Endocrinologist?

[Jaybrooke in reply to Star13]

I’ve never heard of atrophic thyroiditis until now. My thyroid blood tests always came back normal from 1995 onwards so I was told nothing wrong with my thyroid , even tho I had all these awful symptoms , so never allowed any meds for years eventually I went private and was prescribed thyroxine which helped to a degree which was a relief but I was still very unwell . Mine like many is a long story ,I lost faith in doctors and endocrinologists no help at all so after 19 years I decided to self medicate, I chose thyrogold after a lot of research, amazing the difference it made most symptoms disappeared or lessened . As I mentioned I still have frequent flares but can cope as I know thy are temporary. From the little I’ve read about atrophic thyroiditis so far ,only treated for hypothyroidism. As your knew to it has your doctor suggested anything different ??

[Star13 in reply to Jaybrooke]

I’m sitting on the information at the moment. I’ve been waiting for a year for a referral to a NHS Endo. One who is well respected on here and who I’ve seen before . I’m not bothered it’s taking so long as my GP prescribes my T3 now. For me it just explains so much of what I’ve been through. It also validates it as instead of people looking at you and thinking that symptoms are all in your head you can actually show them proof that they are not if need be!

[humanbean]

You might find this link of interest - it has several mentions of atrophic thyroiditis :

thyroidpatients.ca/2021/12/...

And this is a bibliography of references to atrophic thyroiditis :

thyroidpatients.ca/2018/12/...

[Jaybrooke in reply to humanbean]

Thankyou for information I will read through it