Is anyone on here a member of the BTF?
I was thinking of joining as it's not much and could do with a local support group and advice going forward.
Would be good to get involved in research as well, and maybe give something back to the community one day.
you may find some stuff of use,
but BTF material and advice needs treating with a bit of caution ... they have extremely close ties to the BTA ( the professional body for endocrinologists) ...and the current president of the BTA is extremely 'anti' T3 .. and very much in the "if your TSH is in range, any remaining symptoms you believe you have are nothing to do with your thyroid treatment " camp .
And that’s putting it kindly!
joet82, This forum is linked to the charity Thyroid UK (thyroiduk.org ). If you're looking for a local support group, email them for their list, they may be able to point you at one local to you thyroiduk.org/help-and-supp....
tattybogle makes some good points about BTF
Thank you both, I was a little sceptical about the BTF web page. They make it all sound very easy & simple.
There's also The Thyroid trust. They are a patient lead charity and work extremely hard at raising awareness and advocating for improved care. thyroidtrust.org/
yeah right .. it's definitely not just you whose experience is that it's "not so simples" ~ that's why there's 129,592 members on here helping each other figure stuff out and reading the latest thyroid research with the authors (who are also on here) helping us understand what it means~ when most endocrinologists in the BTA won't even have read it yet .
healthunlocked.com/thyroidu...
healthunlocked.com/thyroidu...
Gosh! Haven’t we grown? There were just around 5000 members here when I joined… good to see!
This forum is run by Thyroid U.K. and was started by lynmynott
thyroiduk.org/about-thyroid...
This is a patient to patient forum, based on the lived experience of thousands of thyroid patients. Many thousands of patients have been badly let down by current U.K. treatment and very poor understanding of how to manage thyroid disease to give the best quality of life
SlowDragon 'let down by current UK treatment ' made me smile it's such a polite way of putting it.
"patients have been badly let down" Putting it mildly 
I'd say learn what there is to learn on Thyroid UK website! Many of us have learnt so much there, and it's been the main thing that's helped us get well again. Thyroid UK has some local groups.
This HU forum is invaluable for help, support and advice. And you'll get all the right info here.
The Thyroid Trust is excellent, has all the latest news on T3 and other thyroid matters, and arranges various webinars and meetings.
BTF - as tattybogle said above. They daren't stray from the BTA. It may improve when the BTA chooses its next president in May - we can but hope. There are others in the BTA who are open minded and pro-T3, but the current president is vehemently against it.
There are a few local thyroid groups I know of - Norfolk, Devon, Cumbria, Midlands. Whereabouts do you live?
Are you on Facebook?
Hi joey82. I found the BTF website quite useful in the early days of being diagnosed hypo as some of the case studies on there struck a chord and were helpful and reassuring. I'm not a member but I keep an open mind in researching info on thyroid and find it useful to get a wide range of opinions and information. I'm a researcher by nature! You have to do what feels right for you though.
Thyroid UK is the place to be!
129,559 patients are here mainly because they have not responded positively to NHS treatment
The level of thyroid knowledge amongst medics is often. abysmal....med schools have taught them only the basics and most endos are diabetic specialists, not thyroid, specialists
Members have "lived experience" and many have carried out years of research into their condition
Your research may "feel right for you" (Lulu2607 ) but it must be reliable....and there is a lot of nonsense to be found on the internet!
Feel free to fire questions at the forum!
Typo alert DD
129, 599
(and hello to the 7 people who joined since yesterday, when it was only 129, 592 )
I looked at the website when I was diagnosed just over a year ago and joined thyroid UK instead as I felt that was more patient oriented.
