Biobank

[angela100]

Can anyone tell me what Biobank is?

TIA

[Lalatoot]

UK Biobank is a large-scale biomedical database and research resource that is enabling new scientific discoveries to be made that improve public health. The resource provides accredited researchers access to medical and genetic data from half a million volunteer participants to improve our understanding of the prevention, diagnosis and treatment of a wide range of serious and life-threatening illnessesukbiobank.ac.uk/

[angela100 in reply to Lalatoot]

Thank you!

[TiggerMe in reply to Lalatoot]

Can we assume not a bunch of hee-haw's? I have just sent an email hoping to join...

I'm up for a bit of useful medical research and willingness to learn (guinea pigging) 😆

[Aurealis in reply to TiggerMe]

I think participants were selected randomly and invited to participate. Not volunteers as such.

[TiggerMe in reply to Aurealis]

Thought it worth a try 😉

[LuckyKat in reply to TiggerMe]

Hi Eeyore100, you might be interested in ourfuturehealth.org.uk I've only just signed up so can't give you any information beyond what is on the site. Not sure it's as detailed as Biobank, but something could come of it. They're looking for 5 million of us.

[TiggerMe in reply to LuckyKat]

Looks interesting, thanks

"As Our Future Health is a research programme, your information will not be used in the diagnosis or treatment of disease, and you will not automatically receive personal feedback about your samples, DNA or other data.

But in the future, we will get in touch to ask if you would like to receive personal feedback from your samples, DNA or other data. You might learn new information about your health or risk of disease from this feedback. We will always give you more information and the chance to ask questions before you make your decision, and you can say yes or no."

[TiggerMe in reply to LuckyKat]

Ah, seems to be limited to access too Birmingham or Ealing at the moment 😕

Shame... I've registered they say they are rolling out more collection clinics

[LuckyKat in reply to TiggerMe]

We're taking a one hour trip to a collection site. Sad lives when this is a day out!

[TiggerMe in reply to LuckyKat]

😕🤣 good that you are up for a trip... getting me in the car for a hour is asking a lot 😬 I'm guessing they can still harvest my details from my records?

Maybe if lots of people sign up they will open more sites sooner?

[LuckyKat in reply to TiggerMe]

We've been having a discussion about whether data that is already available will be included. Having completed the health questionnaires there was a lot that wasn't asked about. Also, having family members who have fallen foul of dire NHS data keeping and sharing between hospitals, GPs etc we've pondered if it's better for them to start again.

[TiggerMe in reply to LuckyKat]

They ask if they can have access to GP/Hospital records when you sign up, though don't pass on the personal details with samples? Lets face it non of our personal information isn't already accessible to those that want it 🙄

We are well and truly in the system when it comes to harvesting our information whether it's with loyalty/ credit cards or medical records

[Lalatoot in reply to TiggerMe]

tattybogle here's a donkey that thinks it is a guinea pig? Is that a hypo symptom?

[tattybogle in reply to Lalatoot]

Surely that's a Hyper symptom ?

.guinea pig that thinks it's a donkey would be a hypo symptom .

[TiggerMe in reply to tattybogle]

Lalatoot dreams of being a guinea pig.... it's deep man, more psychological🐹

[Lalatoot in reply to tattybogle]

Or is that a hippo symptom?