Hi guys, autoimmune thyroiditis circa 2000, I was 18. Was prescribed levothyroxine 50mcg, up to 75mcg after 3 months. Stable bloods since.
My TSH on my current dose is usually at the low end @ 1 to 0.5 (I'm based in the UK). I've no idea about my free t3 / t4 other than them being in 'normal range'. I tried 100mg about 10 yrs ago for a few months, but it pushed me up into 0.25 TSH.
Other thyroid sufferers I meet seem to also have temperature control issues, so I'd accepted it as and worked around it. Sleeping in a unheated room in winter, using light bedding in summer, spare clothes and industrial strength antiperspirant are my gotos. My new partner is really suffering with the cold house though.
It would be nice to be a bucket of sweat when moving around, or changing temperatures, which is much harder to control. I spend a lot of time feeling too hot, then cold from damp clothes and it's frustrating.
Never tried 50mcg due to possible effects. A bit hyper sounds more favourable than being a bit hypo, so never risked it. I don't know what else there is to try.
I'm due for a blood check so I'll update with results. I spent a few years monitoring them myself too and they always seemed fine. TSH always being at that lower side though.
Any advice appreciated!
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Aniac
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Problems with excess sweating might be adrenaline or cortisol related, although obviously having the right amount of thyroid hormones is essential too.
poor temperature control can be due to being UNDER medicated
Just testing TSH is completely inadequate
Which brand of levothyroxine are you currently taking
Do you always get same brand levothyroxine at each prescription
What vitamin supplements are you currently taking
When were vitamin levels last tested
Bloods should be retested 6-8 weeks after each dose change or brand change in levothyroxine
For full Thyroid evaluation you need TSH, FT4 and FT3 tested
Very important to test vitamin D, folate, ferritin and B12 at least once year minimum especially as you know you have Hashimoto’s- autoimmune thyroid disease
About 90% of primary hypothyroidism is autoimmune thyroid disease, usually diagnosed by high thyroid antibodies
Autoimmune thyroid disease with goitre is Hashimoto’s
Autoimmune thyroid disease without goitre is Ord’s thyroiditis.
Both are autoimmune and generally called Hashimoto’s.
Low vitamin levels are extremely common when hypothyroid, especially with autoimmune thyroid disease (Hashimoto’s or Ord’s thyroiditis)
In U.K. medics hardly ever refer to autoimmune thyroid disease as Hashimoto’s (or Ord’s thyroiditis)
Recommended on here that all thyroid blood tests early morning, ideally just before 9am and last dose levothyroxine 24 hours before test
This gives highest TSH, lowest FT4 and most consistent results. (Patient to patient tip)
Private tests are available as NHS currently rarely tests Ft3 or all relevant vitamins
List of private testing options and money off codes
Thanks for pointing this out. I have developed poor temperature control since starting HRT I feel a year and half ago. I think that I'm under medicated as I've gained a bit of weight and my metabolism has really slowed. Also I've been very anxious and tearful and had loads of hairloss. My TSH has been ok though but I think that it has been fluctuating. I just get a feeling my meds are off as I never adjusted for the HRT.
Hi everyone. First thanks so much for the responses. .
?? My thyroid broke over 20 yrs ago so does is the auto immune advice still relevant?
Was never called 'hashimotos', just auto immune, so I guess it could be either. But I didn't have a goitre.
I always have free T3 and T4 done, shown in normal ranges, as I chased that up after doing lots of research about 10 yrs ago. I just dont remember the values of the top of my head.
I never knew about having bloods done in the AM before my thyroxine.... I religiously take it first thing, which means every blood test I've had is probably a few hrs after.
All the chronic pain and meds related to it came much later than the sweating, so although it may be affected, it's not the cause. I was on just thyroxine for many years.
Brand wise is usually consistent as I use the same chemist. The 25s are pink strips and 50s green, would need to check the brand. The brands used to massively vary but they have been pretty consistent since using the same local chemist.
I have a full blood count and ferritin done annually, but never had vitamin D checked (although I think I have this listed on my next blood check ... Will have to check).
Have taken chelated magnesium in the past due to try help Occipital Neuralgia, dont remember it helping anything else, but other meds might have interfered. IIRC absorption is related to zinc and calcium? I might be wrong.
Oh I've been on a vegan diet since the late 90s, probably 4 yrs before my thyroiditis diagnosis, hence the regular blood count checks. Ferritin is always on the low end of normal but everything else checks out.
I think that covers everyone's questions, and any I have.....thanks so much for the replies..... I'll investigate further.
I’ve had excessive sweating/hyperhydrosis ever since I was a young teen.
At 30 I had surgery privately (twice) to remove sweat glands in my armpits. The surgeon said I had way more than normal. He did his best and left some that should mean I sweat like a normal person.
The first surgery was life changing, my self esteem returned then I noticed a donut efffect of sweating around the edges of my armpits. The second surgery was a liposuction that addressed the donut area.
( an Endo was consulted at the time who said my results swung either side of normal over 3 months and told me it was post partum thyroiitis….. we now know this was Hashi’s of course!)
Between then and about 3 months ago whenever stressed and nervous (eg job interviews) I’ve had compensatory sweating on my face, palms, groin, lower back. Absolutely dripping. I’ve always thought it was an adrenaline reaction.
Until 18 months ago night sweats have been a constant part of my adult life, worse on HRT.
75 and then 100mcg Levo seems to have changed things in recent months I’ve noticed less sweating. I know it’s cooler weather but my sweating was always worse in winter and would make me shiver. In light summer clothes I was always better.
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