Thyroid article on patient satisfaction with tr... - Thyroid UK

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Thyroid article on patient satisfaction with treatment

diogenes profile image
diogenesRemembering
15 Replies

I can only access the article which refuses to be copied and pasted. But here is the basic info if anyone can go further. I'm trying to contact others in the team to try to get the whole thing.

Thyroid Vol 32, Number 10, 2022.

DOI: 10.1089/thy.2022.0324

  The impact of hypothyroidism on satisfaction with care and treatment and everyday living: results from E-mode patient self-assessment

 P Perros, L Hegedius, E Vesekeny Nagy, E Papini, HA Hay, et al

Link to full paper: liebertpub.com/doi/full/10....

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diogenes profile image
diogenes
Remembering
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15 Replies
humanbean profile image
humanbean

Cases from France, Greece, and the Philippines had intercepts with significant ORs (worse Satisfaction for respondents from France, whereas it was better for Greece and the Philippines than all other countries; Table 3).

In interpreting answers from Greece it is worth remembering that both Levo and T3 can be bought from many pharmacies without prescription. How many people in the country take advantage of this freedom I really don't know. There may be others countries where getting hold of thyroid hormones is a lot easier than in the UK.

I get really annoyed whenever I think about the treatment of diabetics. (I'm jealous, in some ways.) They are prescribed insulin if and when necessary, and they learn how to treat themselves. Insulin is vastly more dangerous than thyroid hormones, whether the patient has too little or too much.

Joyya profile image
Joyya

I am able to copy and paste the entire article (minus the tables), but the comments as well as new posts are limited to 7000 characters. Please advise.

humanbean profile image
humanbean in reply to Joyya

I didn't see any comments. Where can I find them?

...

Oh - I've just realised. You mean pasting the paper into a reply on HU. Since there is a link to the whole paper I don't think it needs to be copied here too. It would probably break the rules on copyright anyway.

SeasideSusie profile image
SeasideSusieRemembering in reply to Joyya

Joyya

The article is copyrighted as shown at the bottom of the page

© 2022 Mary Ann Liebert, Inc., publishers. All rights reserved, USA and worldwide

Therefore it cannot be reproduced here.

The link that Diogenes has supplied to the full paper is enough for interested members to visit the website, no need to paste any of it here.

Joyya profile image
Joyya in reply to SeasideSusie

Sorry, I misunderstood his opening statement "refuses to be cut and pasted here. " I thought it was a technical issue.

greygoose profile image
greygoose in reply to Joyya

I got that impression, too. :)

SeasideSusie profile image
SeasideSusieRemembering in reply to Joyya

Helvella added the link to the full paper.

RedApple profile image
RedAppleAdministrator in reply to Joyya

Joyya (and greygoose ) It's fine to copy and paste the abstract of such articles. Just not the full paper.

greygoose profile image
greygoose in reply to RedApple

Yes. I know that. It was just the wording of the original post that was a bit obscure. Just reassuring Joyya that she wasn't the only one that misunderstood. :)

Joyya profile image
Joyya in reply to greygoose

Appreciate that.

greygoose profile image
greygoose in reply to Joyya

You're welcome. :)

BB001 profile image
BB001

Thank you. I'm not impressed with this bit:

'Contrary to widespread anecdotes in social media, this large-scale survey shows no association between type of treatment for hypothyroidism and patient satisfaction, as well as better outcomes on everyday living associated with LT4, compared with liothyronine-containing treatments.'

Presumably the researchers didn't find any association between type of medication and satisfaction because people on NDT and T3 are underdosed due to the insistence that TSH is kept in range.

Zephyrbear profile image
Zephyrbear in reply to BB001

It could also stem from the fact that the patients on LT4 mono-treatment outnumber those on any treatment containing liothyronine by almost 10 to 1… 🤔

BB001 profile image
BB001 in reply to Zephyrbear

True, that hides the problem.

Back to the car and mechanic example...

Just because the oil that is given as a fix for my faulty car is ok for 90% of other cars even though it doesn't fix my car, I'm expected to accept it as a solution?

It explains why the situation exists, but still isn't acceptable.

Reminds me of taking my car to a mechanic about its brakes not working. I got exactly the same response as thyroid patients get from doctors, refusal to believe there is a problem. The mechanic turned round to my husband and said 'would you like to try it sir?' Implying that i didn't know my own car and what I was talking about.

And yes in that case we had to take it to another mechanic to get it fixed.

Zephyrbear profile image
Zephyrbear in reply to BB001

OMG! Really? That mechanic would have been treated to my finest “Paddington Stare” before being dismissed with every ounce of condescension I could have mustered! 🤯

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