Hi All - any advice regarding my results would be most helpful please. Do I need Nutri-Aid or similar? I have tried a supplement about an hour before bed with Ashwanga in it and I was lights on and no one at home until at least lunchtime the next day! Suffice to say I stopped taking it!😀
Lacking energy, shakey inside sometimes and have a job to wake up, get up and feel alive, whatever that is 😬😀
Thank you
What are your most recent thyroid and vitamin results
High cortisol suggests thyroid levels may not be good enough
Adrenals try to compensate for lack of thyroid hormones
Are you still taking NDT
What vitamin supplements are you currently taking
For full Thyroid evaluation you need TSH, FT4 and FT3 tested
plus both TPO and TG thyroid antibodies tested at least once
Do you have autoimmune thyroid disease
Very important to test vitamin D, folate, ferritin and B12 at least once year minimum
Low vitamin levels are extremely common, especially with autoimmune thyroid disease (Hashimoto’s or Ord’s thyroiditis) usually diagnosed by high thyroid antibodies
20% of autoimmune thyroid patients never have high thyroid antibodies and ultrasound scan of thyroid can get diagnosis
Recommended on here that all thyroid blood tests early morning, ideally before 9am, last dose levothyroxine 24 hours before test
If on NDT or T3 day before test split dose into 2 or 3 smaller doses spread through the day and last dose approx 8-12 hours before test
Private tests are available as NHS currently rarely tests Ft3 or all relevant vitamins
List of private testing options and money off codes
thyroiduk.org/getting-a-dia...
Medichecks Thyroid plus antibodies and vitamins
medichecks.com/products/adv...
Blue Horizon Thyroid Premium Gold includes antibodies, cortisol and vitamins
bluehorizonbloodtests.co.uk...
Hello thank you for your reply. I have Hashimotos Thyroiditis and have for over 10 years. Diagnosed by an excellent endocrinologist. I had lots of tests and scans at that time. I take 2.5 Thyroid S. 2 on waking and 1/2 at midday on an empty stomach. I don’t take any vitamins at present. Here are my recent results from Medichecks.
Thank you Loolah.
Was test done early morning, before 9am
So day before test your last dose was lunchtime
Ideally you would move last dose to between 9pm and midnight
Folate and Vitamin D are too low
Vitamin D at least around 80nmol minimum and around 100nmol maybe better
GP will often only prescribe to bring vitamin D levels to 50nmol. Some CCG areas will prescribe to bring levels to 75nmol or even 80nmol
leedsformulary.nhs.uk/docs/...
GP should advise on self supplementing if over 50nmol, but under 75nmol (but they rarely do)
mm.wirral.nhs.uk/document_u...
But with Hashimoto’s, improving to around 80nmol or 100nmol by self supplementing may be better
pubmed.ncbi.nlm.nih.gov/218...
vitamindsociety.org/pdf/Vit...
Once you Improve level, very likely you will need on going maintenance dose to keep it there.
Test twice yearly when supplementing
Once via Medichecks with thyroid and other vitamins
Once via NHS private testing service
Vitamin D mouth spray by Better You is very effective as it avoids poor gut function.
There’s a version made that also contains vitamin K2 Mk7.
One spray = 1000iu
amazon.co.uk/BetterYou-Dlux...
Another member recommended this one recently
Vitamin D with k2
amazon.co.uk/Strength-Subli...
It’s trial and error what dose we need, with thyroid issues we frequently need higher dose than average
Vitamin D and thyroid disease
grassrootshealth.net/blog/t...
Vitamin D may prevent Autoimmune disease
newscientist.com/article/23...
Web links about taking important cofactors - magnesium and Vit K2-MK7
Magnesium best taken in the afternoon or evening, but must be four hours away from levothyroxine
betterbones.com/bone-nutrit...
medicalnewstoday.com/articl...
livescience.com/61866-magne...
sciencedaily.com/releases/2...
Great article by Dr Malcolm Kendrick on magnesium
drmalcolmkendrick.org/categ...
Vitamin K2 mk7
betterbones.com/bone-nutrit...
healthline.com/nutrition/vi...
Thank you very much for your help. I will check out all the links tomorrow. I took my last dose of Thyroid S at lunchtime the day before my blood was taken. Doctor is not interested in helping so I need to help myself to feel better. Thank you for your advice. Loolah
Low folate supplementing a good quality daily vitamin B complex, one with folate in (not folic acid)
This can help keep all B vitamins in balance
Difference between folate and folic acid
chriskresser.com/folate-vs-...
Many Hashimoto’s patients have MTHFR gene variation and can have trouble processing folic acid.
thyroidpharmacist.com/artic...
B vitamins best taken after breakfast
Thorne Basic B or Jarrow B Right are recommended options that contains folate, but both are large capsules. (You can tip powder out if can’t swallow capsule)
IMPORTANT......If you are taking vitamin B complex, or any supplements containing biotin, remember to stop these 7 days before ALL BLOOD TESTS , as biotin can falsely affect test results
endo.confex.com/endo/2016en...
endocrinenews.endocrine.org...
In week before blood test, when you stop vitamin B complex, you might want to consider taking a separate methyl folate supplement and separate B12
Low B12 symptoms
b12deficiency.info/signs-an...
How other member saw how effective improving low B vitamins has been
healthunlocked.com/thyroidu...
If not supplementing B12
High B12 doesn’t necessarily mean B12 levels are good
Paradoxical B12 deficiency
HiFirst of all let me say I don't know anything about thyroid problems and am not medically trained but I have a feeling your transferrin saturation result seems high. When I had a high result on a blood test years ago, after investigation it was found that I had hemochromatosis (too much iron in the blood) which is easily solved by having venesection, which is like giving blood. As I say I'm no expert but I do think it would be worth mentioning to your GP to get it checked.
My iron levels are high - you are quite right but my doctor isn’t interested. I don’t know if you can “just go and give blood” anymore because they don’t need it, I was told. I really appreciate your help. Loolah 😊
loolah
Are you also posting under the username "sadiethedog1"?
These results you've posted here are an exact copy of the results sadiethedog1 posted here:
healthunlocked.com/thyroidu...
as are the cortisol results.
SlowDragon
HiWell ur tsh is so low , that is causing the acth to release more from ur pituitary and hence increased cortisol, thyroid s will not help u as much as a combo of t4 and t3 as u can bring ur tsh between 0.4 and 0.03 , and ur iron , ferritin tsats will get normalised as well.I know ur t3 and t4 are normal but as soon as u shift to combo ur t3 will improve as well with the tsh I told
HTH
I am trying to spread the word that adding mannitol as an excipient, commonly done when reformulating, stops drugs from working for about a quarter of people.
The French government ordered the manufacturers to continue with the original formula as well as the new one.
The French had demonstrated against the change. I believe the new formula of SThyroid has added Mannitol. It no longer works for me.
I had to go to France, got a prescription and bought a year's supply of Euthyrox.
This evidently upsets all sorts of people's medications, and they don't know why..
Could you let us know where we can find the full list of excipients for Thyroid S?
Good evening Helvella - sadly they won’t give them to you. I tried fairly recently as I didn’t feel like Thyroid S was working. I asked if the ingredients had changed but they won’t disclose it I’m afraid ☹️
Thanks for trying - and letting us know.
I'm trying to understand why phenelope is claiming they now contain mannitol. If the company won't tell us what the ingredients are, I don't understand how anything like that can be claimed.
Mannitol makes medicine bypass my system. It has been recorded reference sorbitol. Another sugar alcohol. It seems to be slippery and makes pills a bit glossy.
The medicines that have failed for me have all looked glossy when reformulated.
A large number of French people demonstrated, as their reformulated levothyroxine did not work for them any more. You can look it up. It worked for most people, and for a significant minority it did not.
It seems as if lactose is often being replaced with mannitol.
SO, I only have the proof of the pudding........
Good Afternoon phenelope - thank you for your comments. I have a great relationship with somebody at the manufacturers of Thyroid S. I have asked if Mannitol is used in the production of this tablet and they have checked this out and confirmed that it isn’t. I appreciate your concerns and that you are trying to enlighten people to a problem. Best wishes Loolah
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