Hi Im new here and need advice please-My 16 Year old son has been diagnosed with Hashimoto's Desiese.
He is Levothyroxine, Dr keeps increasing dose, he suffers from a lot of leg pain and sometimes cant walk at all he is seeing a peadeatric consultant who is not very helpful told us leg cramps/pains nothing to do with it, although our resarch says different sent for physo they told us he has over active nerves and that pysio wont help as its part of the conditionand needs treating.. Where do we go from here
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Tortoisehouse
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Very important to test vitamin D, folate, ferritin and B12
Low vitamin levels are extremely common, especially with autoimmune thyroid disease (Hashimoto’s or Ord’s thyroiditis)
Has he had any vitamin tests
What vitamin supplements is he currently taking
Also needs coeliac blood test done as well
Gluten intolerance is often a hidden issue, testing for coeliac before considering trial on strictly gluten free diet
How much levothyroxine is he currently taking and how long on this dose
Does he always get same brand levothyroxine at each prescription
Recommended on here that all thyroid blood tests should ideally be done as early as possible in morning and before eating or drinking anything other than water and last dose levothyroxine 24 hours before test
This gives highest TSH, lowest FT4 and most consistent results. (Patient to patient tip)
Private tests are available as NHS currently rarely tests Ft3 or all relevant vitamins
Vitamin D deficiency is frequent in Hashimoto's thyroiditis and treatment of patients with this condition with Vitamin D may slow down the course of development of hypothyroidism and also decrease cardiovascular risks in these patients. Vitamin D measurement and replacement may be critical in these patients.
Vitamin D insufficiency was associated with AITD and HT, especially overt hypothyroidism. Low serum vitamin D levels were independently associated with high serum TSH levels.
The thyroid hormone status would play a role in the maintenance of vitamin D sufficiency, and its immunomodulatory role would influence the presence of autoimmune thyroid disease. The positive correlation between free T4 and vitamin D concentrations suggests that adequate levothyroxine replacement in HT would be an essential factor in maintaining vitamin D at sufficient levels.
Our results indicated that patients with hypothyroidism suffered from hypovitaminosis D with hypocalcaemia that is significantly associated with the degree and severity of the hypothyroidism. That encourages the advisability of vit D supplementation and recommends the screening for Vitamin D deficiency and serum calcium levels for all hypothyroid patients.
Same applies to low B12 - extremely common in hypothyroid patients
All patients who are hypothyroid should have B12 tested
There is a high (approx 40%) prevalence of B12 deficiency in hypothyroid patients. Traditional symptoms are not a good guide to determining presence of B12 deficiency. Screening for vitamin B12 levels should be undertaken in all hypothyroid patients, irrespective of their thyroid antibody status. Replacement of B12 leads to improvement in symptoms,
It would help members to advise if you can post your son's thyroid test results.
You are legally entitled to obtain copies from your surgery...ask at reception.
How much levo is he currently taking?
His initial dose was likely 50mcg...possibly 25mcg
This will need to be increased by 25mcg increments until he feels well.
Does your GP do the thyroid tests before 9am... and leave 6/8 weeks before each test and increase?
Last dose of levo should be 24hrs before test.
Take Levo on an empty stomach, one hour before or two hours after food, with a glass of water and nothing but water to drink for an hour either side of the levo so that absorption is not impaired.
Here is a list of hypothyroid symptoms amongst them you will see pain listed. Does he have any other symptoms on this list?
look into low dose naltrexone. I have had same problem, terrible leg and knee pain and hashimoto's, there are youtube video's about low dose naltrexone, apparently many people with multiple sclerosis benefit. Do research it first though so you can go armed with info to doctor.
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New here 🤗
New here
New here. 
New here-advice needed please
Please help!! I’m new here...
