My sisters turn : Hello guys , My sister is... - Thyroid UK

Thyroid UK

139,067 members163,214 posts

My sisters turn

Binkynoo profile image
8 Replies

Hello guys ,

My sister is struggling with her health last few years migraines and ear pain ended up in hospital a lump noticed with last 2 years nothing to worry about unless grows GP said nothing showing up in bloods since September . So now the lump has grown multi nodule goitre ? Some antibodies shown , just before this meneres disease was diagnosed just constant dizzy ,weak , weight loss, ear head neck pain . I suffered Graves’ disease but luckily recovered . I just don’t know what to suggest what does she need to get thyroid dr to check or ask ? . It’s just changed quality of life at age 41 with 4 kids too. I think it’s all thyroid related abs suffered so long just because nothing shown in basic bloods . Please help

Written by
Binkynoo profile image
Binkynoo
To view profiles and participate in discussions please or .
Read more about...
8 Replies
SlowDragon profile image
SlowDragonAdministrator

Multinodular goitre

yourhormones.info/endocrine...

For full Thyroid evaluation she needs TSH, FT4 and FT3 plus both TPO and TG thyroid antibodies tested.

Very important to test vitamin D, folate, ferritin and B12

Low vitamin levels are extremely common, especially with autoimmune thyroid disease (Hashimoto’s or Ord’s thyroiditis)

Dizziness can be low B12 …..often missed by GP

Range on B12 test is too wide

People can have symptoms long before level is below range

Migraine often linked to being hypothyroid

Recommended on here that all thyroid blood tests should ideally be done as early as possible in morning and before eating or drinking anything other than water

This gives highest TSH, lowest FT4 and most consistent results. (Patient to patient tip)

Private tests are available as NHS currently rarely tests Ft3 or all relevant vitamins

List of private testing options

thyroiduk.org/getting-a-dia...

Medichecks Thyroid plus antibodies and vitamins

medichecks.com/products/adv...

Blue Horizon Thyroid Premium Gold includes antibodies, cortisol and vitamins by DIY fingerprick test

bluehorizonbloodtests.co.uk...

If you can get GP to test vitamins and antibodies then cheapest option for just TSH, FT4 and FT3

£29 (via NHS private service ) and 10% off down to £26.10 if go on thyroid uk for code

thyroiduk.org/getting-a-dia...

monitormyhealth.org.uk/

NHS easy postal kit vitamin D test £29 via

vitamindtest.org.uk

If TPO or TG thyroid antibodies are high this is usually due to Hashimoto’s (commonly known in UK as autoimmune thyroid disease). Ord’s is autoimmune without goitre.

About 90% of all primary hypothyroidism in Uk is due to Hashimoto’s. Low vitamin levels are particularly common with Hashimoto’s. Gluten intolerance is often a hidden issue too

Link about thyroid blood tests

thyroiduk.org/getting-a-dia...

Link about Hashimoto’s

thyroiduk.org/hypothyroid-b...

List of hypothyroid symptoms

thyroiduk.org/if-you-are-un...

Binkynoo profile image
Binkynoo in reply to SlowDragon

Thankyou so much , that puts it in more understandable way and something to go on when im totally at loss at where to start for my sister. Wil let you know how it goes Thankyou again

Anthea55 profile image
Anthea55

Dizziness - this link seems to cover it fairly comprehensively.

healthline.com/health/dizzi...

Some forms of dizziness can be helped with the Epley Manoeuvre. This treatment is based on the idea that dizziness is caused by crystals which can form in the ear canals; by moving your head you can move the crystals to a different place. I've used it myself. It's best if someone can help you with it. She may have come across this as she has Menieres disease.

Dizziness can also be a problem after Covid. Is that an option?

saritadelmar profile image
saritadelmar in reply to Anthea55

I would like to add my input to the good suggestions here. I was recently diagnosed with a rare ear condition called Superior Semi-circular Canal Dehiscence. A normal hearing test showed irregularities that called for a scan of the left side of my head.

I suffer from occasional ear pain and dizziness but have had constant tinnitus and hearing loss for many years. I deal with the occasional dizziness through the suggestion of a doctor who told me to use nasal spray and antihistamines to dry up the liquid being trapped in my inner ear causing the pain and dizziness. This method has worked within days so far. On the other hand, the ear, nose, and throat specialist could not give me any directions other than to have a difficult and invasive operation if it persists. I am not planning on doing this.

After a few days of nasal spray and only one antihistamine pill and my balance comes back. For nausea when this happens, I take the homeopathic remedy Nux Vomica. For dizziness, I take Cocculus Indicus that works quickly. I know I will be battling this issue for years to come, but these methods have helped me keep them at bay. And if they seem tenable for anyone reading this in need of alternatives, I am further pleased.

shilling11 profile image
shilling11 in reply to saritadelmar

Hi, So sorry to jump on the back of Anthea55 message. I found your post really helpful as I suffer from occasional dizziness but when it he's it's hideous! Please can you tell me what type of nail spray do you use? PM if you are not allowed to mention names. I will be buying Cocculus Indicus shortly. I tend to use vertigheel but a different natural remedy might work better for me. Many thanks in advance.

saritadelmar profile image
saritadelmar in reply to shilling11

I am in the US and so the brand may be different in the UK, but the active ingredient is Fluticasone Propionate. It is prescribed - not over the counter. The process of using any nasal spray is to first gently blow your nose, then squeeze your nostrils closed with your fingers and blow out through the nose to make your ears lightly pop. This opens the canal, so says the doctor. Then bend from the hip making an L shape of your body. Hold the spray upright and into your nose and give one good spray into each nostril. Sniff up and don't blow your nose. Do this in the morning and then 6 hours later, continuing this until relieved. These details are from the doctor who saw the liquid trapped in my ear and saw no inflammation. I'm sure there would be other suggestions he would have given if it was more than trapped liquid.

I haven't heard of Vertigheel, but thanks for that. I use 30 x CI. Good luck with it.

I also refrain from eating mucus-forming foods for a while, like cheese etc.

shilling11 profile image
shilling11 in reply to saritadelmar

Hi,

Thank you for your response and apologies for all of the mis-spellings! I will speak to my GP to see I can find something similar. Thanks again.

Binkynoo profile image
Binkynoo

Hello guys Thankyou all so much anything can help so grateful will keep you posted my sister is having emergency bloods tomo morning. 😊

You may also like...

Can someone help my sister?

though my thyroid antibodies were high, they only carry a \\"1-3% chance of destroying the thyroid...

Tablets making my sister worst

phone to my sister who have an overactive thyroid, however shes just gotten the latest blood...

Help with hyperthyroid diagnosis for my sister

research. I was worried about my sister so I made her take a BH blood test and it appears she is...

Help with my sister's results - possible hypothyroidism?

Hi everyone, I recently got my sister a thyroid blood test as she is experiencing symptoms and seems

Advice on my sister's blood results please?

Hi, late last year my sister was diagnosed with under active thyroid and she is now on 50mg...