Has anyone else been diagnosed with CMV Cytomegalovirus at all?
CMV: Has anyone else been diagnosed with CMV... - Thyroid UK
CMV
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sunsation1
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SeasideSusieRemembering
What is CMV?
Cytomegalovirus
Your report says you had it in the past. It's like the chicken pox virus, once you've had it it stays in your body and usually controlled by the immune system.
NHS information here:
nhs.uk/conditions/cytomegal...
I keep getting flare up of shingles as my immune system is very low at mo still dealing with thyroid and cortisol stuff
It’s a type of Herpes virus and as such can spirulate for yrs in the body, usually in the salivary glands. What sets it into action I don’t know- several yrs since I worked in this field.
Rubella is another that produces survivable spores in the spinal fluid- which was my main field. But glandular fever also produces spores that hid out in the liver.
As far as I know they do not affect the thyroid- but I’ve not read any upto date virology papers.
There was a theory in the 70-80s that Hashimoto was caused by a virus eg Herpes BUT NOTHING was ever proved at the time.
But of history, hope it helps
🦉Bella
Yes I know now, just didn't know what CMV was when post was first written.
CMV is a fairly common virus. In most people it causes no problems but it can cause severe deafness to the unborn child. The mother did not know she carried the virus until the baby was diagnosed.
It rarely causes illness in the mother.
🦉. Bella
Well past motherhood age I have flare ups all the time
Most people have CMV since childhood and don’t even have any symptoms. (about 50% of the population ). They only know they have it when they give birth to a disabled child. The child has the problems from CMV, not the mother- except, of course, caring for a disabled child.
Do you mean flare ups of CMV? That would be unusual. It does not, as far as I know, cause flare ups like Herpes zoster.
The CMV spores are often inactive unless something agitates them into life. People usually think it’s a bad cold or flu.
I think you said they saw the spores on a scan. This would normally be an incidental observation - it would not mean they are active, or have recently been active. To be active they would need to be released into the blood.
I think Susie sent you an NHS info sheet Re CMV.
Perhaps you are talking up flare ups of Hashi?
I can’t be much help on that. I have had no thyroid at all many yrs and it seems likely it wasn’t Hashimoto, but a different type of autoimmune disease.
Bella🦉
"Your Lyme serology is outstanding" could be a whopper of a fob-off, but the rest of the sentence reveals there's been a delay, so you've got that to look forward to.
Joy as if I haven't enough wrong with me at mo
I have. Also reactivated EBV.
Whats Ebv
Epstein-Barr virus. It's thought that Lyme disease causes immune suppression, which allows EBV (and others) to reactivate.
Ok thank you
My theory is that untreated or under medicated thyroid disease leads to compromised immune systems which in turn can allow these viruses to resurrect themselves.
Yes, low body temperature and poor nutrient absorption, or wasting (calcium, phosphate and potassium, in my case) don't help.
Exactly. Hypothyroidism slows the gut down and then causes absorption issues. So it all becomes very tricky to navigate.
I had it shortly after my transplant. Normally it’s not an issue, but I was kept in hospital, and had to have daily intravenous treatments.
I getbit alot but just get the rash and feel achy and ru n down with it doctor just gives me acniclovir pills
CMV is related to the viruses that cause chickenpox, herpes simplex and mononucleosis. CMV may cycle through periods when it lies dormant and then reactivates. If you're healthy, CMV mainly stays dormant.
When the virus is active in your body, you can pass the virus to other people. The virus is spread through body fluids — including blood, urine, saliva, breast milk, tears, semen and vaginal fluids. Casual contact doesn't transmit CMV.
Ways the virus can be transmitted include:
Touching your eyes or the inside of your nose or mouth after coming into contact with the body fluids of an infected person.
Sexual contact with an infected person.
The breast milk of an infected mother.
Organ, bone marrow or stem cell transplantation or blood transfusions.
Birth. An infected mother can pass the virus to her baby before or during birth. The risk of transmitting the virus to your baby is higher if you become infected for the first time during pregnancy.
Well, I hadn't considered the chronicity of this virus. I had it back in 1979-80. Started upin November. I was not well at all and my liver swelled up three fingers past the costal margin. Back in those days it took three monthly tests for antibodies to diagnose it.
That's what my doctor said, anyway.
My doctor told me that I should drop out of university until the following year but there was no guarantee there would be a space for me if I did that. So I soldiered on and it was dreadful. It was cruelty on the part of the university as well. My health recovered by May, 1980 but I failed two courses and had to do make up exams at the end of July. Fortunately by then I was up and running.
At the same time I was undiagnosed with thyroid problems because I had a goitre that only my boyfriend who was a medical student noticed. He also noticed the swollen liver. Too bad he's not my doctor now. It's just incredible to me that nobody else noticed the thyroid when it was very obvious on photographs. Of course I wouldn't have noticed anything seeing as how awful I was feeling. And since he was the boyfriend, I didn't take things seriously enough.
Serology test for CMV was still positive in 1999.
It never goes apparently
At least I've never had a cold sore so at least that herpes virus isn't happening. Small mercies.
