Refused blood results: I had a full blood count... - Thyroid UK

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Refused blood results

Flower1703 profile image

I had a full blood count the other day I rang up receptionist at my doctors they wouldn't tell me my results just said needs to be repeated in 7 days does anyone know if this sounds right?

89 Replies

Once the Doctor has read them you are allowed to have them. Does your practice have online access available? Practices in England are contractually obliged to provide, other areas vary. Takes a while to set up but very useful and avoids having to wait for a printout or involving any staff member.

Ask for a printed copy of your results. Remind them you are legally entitled to them.

(if I phoned on a Monday, for example, I would say I will be in to collect on Wednesday)

Knip profile image
Knip in reply to PurpleNails

Ideally you are right, but sadly I cannot get my results easily. I have PAS online, but my practice does not take part in my records, or indeed, blood tests being shown. I can however, order repeat prescriptions, which is very helpful. The receptionist will give out information over the phone, but just recently, gave me my Thyroid tests result of a year ago. It took three attempts to get the accurate data and even then, not all the information is there. I have been told that my practice does not give print outs. It is frustrating...but I am not the confronting type, and the GPs are decent people face to face so I reluctantly put up with it. My son in London gets his online.

Yoll profile image
Yoll in reply to Knip

I always ask for a print out. It’s my right to have one. I do not ask the receptionist for the results she told me eve thing was fine when it wasn’t. I had trouble with the ending but eventually she sent me a copy.

PurpleNails profile image
PurpleNails in reply to Knip

My practice has their own user system with separate sections to “ask reception a question” and a “consulting room”, they now they now refuse other methods of communication & remove the ability to book appointments.

There’s also a dedicated section to order prescriptions & after submitting a request one time I received a message to order through online services next time which I though was odd. First you must obtain a username & code from practice. Some require ID presentation but if they “know you” they can provide immediately.

I eventually I worked out that at first only a basic access is supplied and within the app you need to request “enhanced access”. This is done by Account > manage online services > then add full clinical record. (Many say not available/ not supplied, but it would be clearer if it said not yet activated).

It tells you “If you are requesting access to your full medical record, we have one calendar month to ensure it is processed correctly to new GDPR guidelines. Please be aware that your full medical record will also contain your detailed coded record already”

Once this is processed I had access to notes, letters & test results.

If the practice doesn’t offer the service & is obstructive providing printout, I’d write a letter or email to practice manager requesting it.

I wouldn’t accept verbal or hand scribbled notes you need a printed copy, with a sample date & ranges (ranges vary between labs so essential).

Here’s a list of what happen to my children & me personally in the past & why not I’m militant about obtaining my test results.

1 Doctor didn’t order right test. Sometimes they order a basic test first or just one part of a group and if admin view and see it’s not “red flagged” it might never get noticed the right wasn’t requested.

2 Part of the blood draw wasn’t processed as the blood Haemolysed. Admin look at other results which were in range not noticing not all complete.

3 nurse drew blood in wrong bottle, but other results were ok, so probably not worth confessing & upsetting patient or re-arranging tests to be done.

4 Not all the relevant tests are included even when it’s their idea and after reminding 3 different sets of tests a certain item had not been tested.

5 the lab excluded a requested test or new protocol directs them to test a different item.

6 specialist instructs GP to conduct a certain test (iron panel). GP notes state “system won’t let me request this?” Will do ferritin as system will allow this.

7 Abnormal results are not abnormal enough for them to bother about. So “patient advised, satisfactory” When neither patient was advised nor or results satisfactory.

8 Abnormal hospital results don’t get followed up or sent to GP and are lost in the system. (My hyper wasn’t diagnosed for another 4 years after this happened). I was not monitored or advised at time.

Knip profile image
Knip in reply to PurpleNails

Crumbs, your message above is an eye opener! It has to be wrong that GP practices vary so widely. Our Practice Manager is quite aggressive. On one occasion I received information by way of an email referring to someone else's private surgery up country. How did a private hospital two hundred miles away get my details? I knew the person as it happens...but her name begins with a B and mine is near the end of the alphabet, so it couldn't have been accidentally clicked on from a list. When I reported this to the P. Manager she said it hadn't been a mistake made by the practice and they were in no way at fault. She wouldn't let me get a word in. She was raising her voice so loud that I told her that I was going to end the call because I didn't want to get angry with her...that quietened her down and I just put the phone down. I let it go and they sent a letter of apology to the person whose details had been leaked. I don't want to tango with her again. It left me feeling livid. I accept that mistakes happen but for her to be so rude to me was totally uncalled for!

PurpleNails profile image
PurpleNails in reply to Knip

Sounds to me she was being overly defensive. Leaking personal information is a clear inexcusable breach, they are lucky if the other party didn’t complain further.

DJR1 profile image
DJR1 in reply to Knip

If you are in England your GP Practice is in breach of their contract with the NHS. You are entitled to view your records online including all test results. Have you asked the Practice for “Detailed Coded Access with historical access” It sounds as if you only have basic access and not applied for full access. If you need further info I am happy to help.

Knip profile image
Knip in reply to DJR1

Even getting a phone appt isn't easy. Again...the receptionists ask what it's about and since it's for emergencies only...get no joy. As Catseyes235 has said below they are gate keepers! I have a blood test tomorrow so will ask when I check in how I go about “Detailed Coded Access with historical access” . Fingers crossed. I'd happily pay! I shall need to write that down! Thank you for getting back to me, I do appreciate it.

DJR1 profile image
DJR1 in reply to Knip

There is an application form you need to fill in make sure you get that.

holyshedballs profile image
holyshedballs in reply to DJR1

you dont have to fill in an application form

DJR1 profile image
DJR1 in reply to holyshedballs

You need an application form and ID check for full access to GP digital records. Think the replies here are slightly out of order. The form is available at your surgery if you live within NHS England where it is mandatory to give patients access to records

holyshedballs profile image
holyshedballs in reply to DJR1

I refer you to the Information Commissioners Office guidance at ico.org.uk/your-data-matter...

Should I use an organisation’s standard form? Standard forms are not compulsory...

However, an organisation may ask you to use theirs.

Standard forms can make it easier for an organisation to deal with your subject access request. They can:

structure your request;

prompt you to include necessary details and supporting documents; and

let you know the best contact point at the organisation.

However, you can still choose another method to submit your request.

in addition:

Can I make a subject access request verbally?

Yes. You can make a subject access request verbally, but we recommend you put it in writing if possible because this gives you a record of your request.

If you are making a verbal request, try to:

use straightforward, polite language;

focus the conversation on your subject access request;

discuss the reason for your request, if this is appropriate – work with them to identify the type of information you need and where it can be found;

ask them to make written notes – especially if you are asking for very specific information; and

check their understanding – ask them to briefly summarise your request and inform them if anything is incorrect or missing before finishing the conversation.

However, even if you make your request verbally, we recommend you follow it up in writing (eg by letter, email or using a standard form).

What should my request say?

Do include:

a clear label for your request (eg use ‘subject access request’ as your email subject line or a heading for your letter);

the date of your request;

your name (including any aliases, if relevant);

any other information used by the organisation to identify or distinguish you from other individuals (eg customer account number or employee number);

your up-to-date contact details;

a comprehensive list of what personal data you want to access, based on what you need;

any details, relevant dates, or search criteria that will help the organisation identify what you want; and

how you would like to receive the information (eg by email or printed out).

Don’t include:

other information with your request, such as details about a wider customer service complaint;

a request for all the information the organisation holds on you, unless that is what you want (if an organisation holds a lot of information about you, it could take them longer to respond, or make it more difficult for you to locate the specific information you need in their response); or

threatening or offensive language.

Model letter

Dear Sir or Madam

Subject access request

[Include your full name and other relevant details to help identify you].

Please supply the personal data you hold about me, which I am entitled to receive under data protection law, held in: [Give specific details of where to search for the personal data you want, for example:

my medical records (between 2014 and 2017) held by ‘Dr C’ at ‘hospital D’;]

If you need any more information, please let me know as soon as possible.

[If relevant, state whether you would prefer to receive the data in a particular electronic format, or printed out].

It may be helpful for you to know that data protection law requires you to respond to a request for personal data within one calendar month.

If you do not normally deal with these requests, please pass this letter to your data protection officer or relevant staff member.

If you need advice on dealing with this request, the Information Commissioner’s Office can assist you. Its website is ico.org.uk, or it can be contacted on 0303 123 1113.

Yours faithfully

[Signature]

DJR1 profile image
DJR1 in reply to holyshedballs

Yes this refers to Subject Access Requests.

Setting up a live access account to your GP records is completely different. It’s like setting up an online bank account with 24 hour access-you would expect the bank to check and process your ID. I have written many posts on this which will explain just click on my initials.

Subject Access Requests are a one time request for medical records and indeed requests can be written, verbal or via social media. It is a legal process and responses are time limited and information is historical only.

Online GP accounts give historical and prospective information with continual access.

Catseyes235 profile image
Catseyes235 in reply to Knip

Receptionists should not be deciding anything at all about your condition, how serious it is or what your problem is. They are not medically trained. That is the doctor’s job. I was a doctor’s receptionist once! My surgery used to have a receptionist who seemed to think it was her job to stop you bothering the doctor at all! Best contact the practice manager and make a carefully worded complaint.. good luck..

Foxylady11 profile image
Foxylady11 in reply to Knip

You can complain about your go practice online to cqc. It is very easy to do. You can either add your name for them to contact you or not.

Type in cqc complaints. More people should do this. As gov have told them to open up. But they are still refusing to. Makes me so angry.

Knip profile image
Knip in reply to Knip

I's like to thank everyone who has replied to my post in relation to accessing my blood results and other information online. I went this morning for my TSH repeat blood test...just that, nothing more, as I had hoped...and had another word with the receptionist about the problem accessing my information online. She confirmed that this isn't possible at our practice but when I pushed it she had the decency to find the practice manager and to ask her again. The latter has agreed that I can have a printout of my test results in future...once they have been seen by the GP...so thanks to those of you who urged me to do that. However, there are currently no plants to allow online access. I could also request a print out of my record but that would take time. I am not bothering with that at present because I always have copies of the letters sent by the various consultants I'm under. They can't email them through, but that's fine...I shall go and get them. This wouldn't have happened without the help of all of you on this site who urged me to push. That is a big step forward! One step at a time! Thank you again. I have previously taken in ID and signed the form so that wasn't necessary. I'm a happy bunny and will post my when my results come back. 👍😀

DJR1 profile image
DJR1 in reply to Knip

Do you live outside the NHS England area. I know Scotland, Wales and Northern Ireland are different but all practices in England must provide access and generally have systems that are able to provide it except a small number of practices that use VISION

Knip profile image
Knip in reply to DJR1

No, DJRI. I live in Hampshire. I can order my repeat prescriptions and see in the History which vaccines I have received online and that's it. Now that I can get a print out, I shall be happier. I shall be asking for the last three Thyroid tests when my results are back. That will span fifteen months. I have the one done before that because Rheumatology picked it up and wrote to my GP that he was concerned about my bones...I already have osteopaenia.

DJR1 profile image
DJR1 in reply to Knip

You are entitled to the full record access by Patient Access. Your practice is breaching their contract with NHS England. There is huge value in having access as it graphs TSH T4 etc .if you print out the contract from other posts and take it to the Practice Manager to discuss. Or you could contact NHS complaints who will direct you to the local team who will ensure access is addressed. Alternatively contact the Patient Access helpline who will talk the Practice through the set up. We must challenge those who continue to give us misinformation, it is entirely possible that the staff have no idea of their obligations or have no idea of the technicalities. Happy to assist as I have links into local teams.

Catseyes235 profile image
Catseyes235 in reply to Knip

If your GPS are decent then try and get a phone consult and explain you’d like your results. Sometimes receptionist can be like gate keepers!

Knip profile image
Knip in reply to Catseyes235

It's difficult getting a telephone appt at the moment because they state that they are for 'emergencies only'! The GPs are good, it's just getting an appointment That's the problem. As I have said to Catseyes235 above I will ask the receptionist in the morning when I have my bloods done at the surgery. I am appreciate that they will do those for me and that I don't have to trek to the hospital! Take care.

It used to be and I'm sure it still is that you are entitled to see your medical notes and that would include your test results but it was up to the individual practices whether or not they would let you have a photocopy of test results . I believe that they can charge for them but most do not. You could perhaps ask to see the result even if they won't let you have a copy. There must be some info about this on the NHS website. How very frustrating for you. Best of luck.

DJR1 profile image
DJR1 in reply to BonsaiKid

It is illegal to charge for any portion of the record. The General Data Protection Regulations in 2018 specifically removed all charges to health records.

SeasideSusie profile image
SeasideSusieAdministrator

Flower1703

We are legally entitled to our test results once the doctor has seen them. However, if they are repeating them in 7 days it makes you wonder if there is a problem, either with the results being out of range and they want to double check or maybe the blood sample was haemolysed and they need to repeat them with a fresh sample. It's a pity they didn't explain why they are repeating them.

My surgery is happy to release results once seen by the GP but if the GP wants to discuss them they wont be released before that appointment.

I understand thankyou

They should show up in the NHS app if you don't have the Patient Access app.

helvella profile image
helvellaAdministrator in reply to hackman

Just for clarity, "the NHS app" is only available in England. Not Northern Ireland, Scotland nor Wales.

Knip profile image
Knip in reply to hackman

I have the patient access app and it just says this practice does not participate in this.

PurpleNails profile image
PurpleNails in reply to Knip

Hey Knip

Patient access is a app provider. Have you tried to log into whichever operating system your practice uses. The main 4 are:

EMIS web

Micro test Evolution

TPP SYstmOne

VISION

At first only a basic access is supplied and you need to request access to full record within the system. This can be done in setting or services. For TPP for example it would be Account > manage online services > then add full clinical record. (Many say not available/ not supplied, & would be clearer if it said not yet activated).

It tells you “If you are requesting access to your full medical record, we have one calendar month to ensure it is processed correctly to new GDPR guidelines. Please be aware that your full medical record will also contain your detailed coded record already”

Once this is processed I had access to notes, letters & test results.

Knip profile image
Knip in reply to PurpleNails

Thank you PN. I will try this tomorrow. Bit whacked t the moment. God Bless, and thanks again.

Bearo profile image
Bearo in reply to Knip

Mine is the same - e- consult - patient access or nhs - enhanced access not available at this surgery (or words to that effect). I checked with receptionist if there was any advanced access and she said no.

PurpleNails profile image
PurpleNails in reply to Bearo

Are you outside England? Other areas vary but practices in England are mandated. She may be misinformed or deliberately fobbing you off thinking it might create more work for them.

Bearo profile image
Bearo in reply to PurpleNails

Yes, in England. I know we have a right to our own results but are you saying we have a right to access results online? Even if the practice has only just set up the basic online access?

PurpleNails profile image
PurpleNails in reply to Bearo

Yes, practices in England are contractually obligated to provide online access to your GP record. ( results, history & letters). Which operating system does your practice use? The most common is TPP SYstmOne. The app from different providers all have different features.

The practice should have a application form where you can request Detailed Coded Access, state on here you are requesting access to my historical record. Or you can write letter / email. You may need to present ID.

Staff were familiar with my contact email and sent username and passcode by email upon request. Then I requested full access within the system settings.

Once it’s set up and process by practice (they have a month to do this) the information is then available to view on the system or your preferred app.

Bearo profile image
Bearo in reply to PurpleNails

Thanks. It may have been up and running for less than a month. It may be e-consult if that is an operating system. Once in patients can continue with Patient Access or the NHS app.

PurpleNails profile image
PurpleNails in reply to Bearo

The main ones are:

EMIS web

Micro test Evolution

TPP SYstmOne

VISION

These are the clinical systems used by practice. The e consult would be to conduct video consults wouldn’t provide access to records.

Many GP practices across the country were already using FootFall. My practice expedited It when covid lockdown began. It’s website information / patient contact system. It should tell you on here how to resister & which system is used. It was designed to be an additional means of contact, now my practice refused contact by other methods.

FootFall does not require a unique username and password – whereas access to patient record does.

Hiya purple nails, docror gave me my results this morning told me I have low blood platelets that's why o need a repeat test done in 7 days.

Hopefully it’s a blip. I had high platelets. What were your other results?

Doctor only done a full blood count she said everything ok apart from low blood platelets they have to check them Thursday. Do u know if hyperthyroidism causes loe blood platelets?

In can happen In both under and overactive thyroid.

It’s a bit beyond my understanding. There’s been research articles posted previously on the subject all extremely technical.

Treating the hyper may improve the issue. Monitoring is the right thing to do. Try not to worry.

When you see you doctor ask what the plan is if they do not improve.

When mine were high the GP just kept repeating the test. I think he was hoping they would magically improve. I decided if nothing was going to be done except retesting there was no point in it & as I do not draw blood easily & have to attend hospital, I didn’t get it done. It might not have been be my smartest decision. Recently I had FBC platelets were in range.

For patient access i had to sign a document at reception for permission. I could then see test results on the online portal.

Receptionists can just be difficult, or you can ask for a printout to collect

As said above if a full blood needs repeated in 7 days there must be something needing checks, so you could wait until the next test is done then request both sets of results :)

Although we're legally entitled, they are also entitled to hold back on giving you results if they think there's a good medical reason not to. We discussed this recently on the AF forum. An example would be - if they thought it might impact on issues such as anxiety or other mental health issues. Keep at them if they're repeating the test. Maybe they'll be able to share both with you once done? With our practice (Wales) I can go and get a printout from them. It's also normal to request to have a nurse or similar discuss the results with you if you have questions.

they are making it harder and harder to get your own information ive had the same problems for the past five years ive given up on m drs good luck x

Knip profile image
Knip in reply to allen73

I'll post if I get any joy. Fingers crossed.

london81 profile image
london81 in reply to Knip

a simple way to resolve could be: write a letter to the surgery asking for your entire records, including blood results with ranges. they are required under GDPR to disclose this. it may not be immediately as obviously it takes time to copy the data and get it approved for release, but if you can get all results to date plus the next set in 7 days, then you have a good overview of your tests and results unfortunately a number of agencies and departments simply do not understand that GDPR affords individuals access and rights to their own data, no questions asked and no fee payable

writing a letter may overcome your issues with the manager ( i know exactly how you feel, i work in law and still have the same issues with obtaining results, but as i put it in writing now it’s easier)

london81 profile image
london81 in reply to london81

couldn’t paste the link but if you google this document all the relevant info is in there

bma
london81 profile image
london81 in reply to london81

see here

page
london81 profile image
london81 in reply to london81

page

x
london81 profile image
london81 in reply to london81

page

x

Thankyou everyone, im just so fed up now with my doctors, I've got over active thyroid with a large goiter which is making it hard for me to eat im down to 8 stone 10 from 11 stone 14 I feel so ill I have children which have to stay with my mum and I've been like this for 3 months now and the doctors keep messing me around, but my hospital appointment it until 17th July, I just want this to be over with now 😪

Is it the swelling causing swallowing issues? Ask for an ENT referral and ultrasound scan of thyroid. GP should do this urgently. Make sure they know how difficult things are. Waiting for endocrinology to refer will delay further as they will be looking at cause and treatment of levels.

Yes its the swelling, I've told the doctor I can't swallow my food and that I can only sleep on my side because its pressing against my throat i also have pain in the left side of my neck so the doctor put in another referral as urgent to see endocrinologist and ir wont be until 17th July. What is an ENT referral?

The pain feels like I got whiplash in my neck shoulders and going to the back of my head.

ENT ear, nose & throat specialist. I had a ENT referral first & endocrinology just after as the hyper levels became apparent. I had a scan and a naso endoscope. The doctors exact words were “ it’s no too squashed in there”.

The pain in shoulders extending to head could be joint / muscle pain from the hyper levels or medication, but compression issues from thyroid swelling or growth should be ruled out.

I have had a similar experience : I use PAS for ordering ‘scripts but they do not allow access to anything else .I requested a print out of my recent results - at first was told ‘had to ask the Dr’. Ask then, I said . That doctor was on leave, I was told . Ask another doctor, I said. They are MY results about MY health - please print them out . After being put on hold, I was told I could come and collect them.

When I got there, there was one sheet with only the THS and T4 result.

I need all of it please I said - and stood at reception until the remaining sheets were printed and given to me.

I couldn’t do this last year as no one was allowed to set a foot through the door - and I didn’t know until the other day how low my iron is - despite 2 phone consultations since last year .

Unfortunately there is a growing disillusionment amongst a lot of people about how GP surgeries

are run. There are always 2 sides to a story and we have endured extraordinary times. However, I find the practice of withholding information amongst GPs is ingrained - and defensive .

It’s so different in hospitals . During 4 years of breast cancer treatment I have been copied into every single letter, report, finding - had full histology and test results posted to me . Ditto orthopaedic information . It has been enormously helpful in allowing me to make decisions.

But the GPs want you to have zero input in your long term healthcare is my recurring experience of then .

Could you have a phone call with your GP to ask why the test is being redone ?

Wishing you all the best :

Flower1703 profile image
Flower1703 in reply to Fancymare

The receptionists ar my doctors are very ubrupt, when I spoke to her o did ask why they needed repeating she told me that she couldn't see anything on the computer just that I needed them repeated in 7 days, it is a bit weird why they couldn't tell me but I am going to ring them Monday morning and demand to speak to my doctor.

Fancymare profile image
Fancymare in reply to Flower1703

It is reasonable to ask for an explanationfrom your doctor . Good luck

Knip profile image
Knip in reply to Fancymare

I have no problems getting my repeat medications, but getting an answer to anything that I have typed into the box beneath the list ref my meds almost always needs me to make a follow call.

Hi, My gp surgery is now very good at giving me my results when I ask for them. A few years ago they would only give printouts if I needed them for a forthcoming endo appointment. They are now all fully available on line so I don't have any problems. Eight or nine years ago I had a vit D test - I'd been diagnosed with fibromyalgia and was in a lot of pain. My gp was very surprised I had never been tested, when I asked for the test. When I spoke to a receptionist about the result. She told me, " everything is fine - no further action." I asked for the actual result and was told it was 6. I asked what was the range. She told me, "greater than 11." I asked her how my result was ok. She then said, " oh, you'd better discuss it with the doctor." Since that incident, I've always asked for a printout of the results. If I wasn't seeing a specialist, I would make up some reason for wanting a printout. I always got one when I asked. Now I just look on line. Good luck

I wonder how you can give informed consent to a repeat blood test if you have not been told the reason for it? I would write to them ( or email) so there is a record and request the blood results and reason for repeating them.

That happened to me as well. I was told they 'weren't allowed' to give me my results. Imagine if that happened when taking our cars in for their Mots! Cars are treated better than us it seems.

I am told if you have the NHS app your blood tests results are on that. Which helps in terms of GDPR and the printed paper get into the wrong hands.

Uploaded it last night just waiting for authentication

Fancymare profile image
Fancymare in reply to Bunnyjones

I’m afraid each surgery can chose whether or not to allow test results on line - and my surgery doesn’t .

Did you obtain a username & code from practice for online services? Some require ID presentation but if they “know you” they can provide immediately.

I eventually I worked out that at first only a basic access is supplied and within the app you need to request “enhanced access”. This is done by Account > manage online services > then add full clinical record. (Many say not available/ not supplied, but it would be clearer if it said not yet activated).

It tells you “If you are requesting access to your full medical record, we have one calendar month to ensure it is processed correctly to new GDPR guidelines. Please be aware that your full medical record will also contain your detailed coded record already”

Once this is processed I had access to notes, letters & test results.

My practice has not enabled access to results - all I can see is repeat meds list and any appt dates with them - see attached screenshot Thanks for your information - I will request online access when I speak to GP 🙂 I am guessing they don’t do it for anyone?

Screenshot

In England practices are contractually obliged to provide online access to online record. Other areas vary. If your practice has it set up it should be available to all. Refusal on the basis that they believe access to your record will cause you harm or accessed by another individual should be reserved for exceptional cases.

The patient access app allows for GP & hospital record access. I believe? my area its not signed up to it so I can’t link to practice and see how it works.

There a number of operating systems TPP SYstmOne being the most common. It’s in this system I requested access. There many provider apps which which can be used all have different features. One might show tests in a better way than another I have several.

healthunlocked.com/thyroidu...

Above is a link about the systems.

If you search the posters other posts DJR1 there is much information about access & rights

DJR1 profile image
DJR1 in reply to Fancymare

If you are NHS England they cannot choose it is mandated within their NHS contract to give full prospective record access.

Fancymare profile image
Fancymare in reply to DJR1

Thank you

DJR1 profile image
DJR1 in reply to Bunnyjones

The NHS App relies on the GP giving access at Practice level it is not independent. If a GP practice has not set up Detailed Coded Access on the Practice system you will not see them on the NHS App.

I've just downloaded the NHS app and I still do not have access to my results on it. I'm making an appointment for my B12 injection for next month, so I will also ask my surgery, why I still don't have access, as I asked a year ago to be able to see my annual results on system online.

At first only a basic access is supplied and within the app you need to request “enhanced access”. This is done by Account > manage online services > then add full clinical record. (Many say not available/ not supplied, but it would be clearer if it said not yet activated).

It tells you “If you are requesting access to your full medical record, we have one calendar month to ensure it is processed correctly to new GDPR guidelines. Please be aware that your full medical record will also contain your detailed coded record already”

Once this is processed I had access to notes, letters & test results.

I requested via the manage online services over a year ago now and not followed it up, again only once to my GP and person who sorts this was off ill. Due to Covid I thought they had enough on their plate to pester ... but now I'll follow it up.

Thanks for the information.

Its a bit weird though because everytime i have a blood test done they will tell me what they are when I ring but the recent blood test they won't just said repeat in 7 days which I a bit odd 🤔

DJR1 profile image
DJR1 in reply to CoeliacMum1

Please request the application form for Detailed Coded Access to see your information. If you want your historical GP records WRITE ON THE FORM ….I AM ALSO REQUESTING ACCESS TO MY HISTORICAL GP. Historical record access is not covered by the application form and is available on request.

This recently happened to a friend of mine in the states, but more importantly they were told the reason. Somehow the transportation of the blood to the lab was delayed and after a certain amount of time goes by they cannot use those samples. Also if there are any issues at the facility they do a recall. Try not to panic. X🙏

If the receptionist refuses, ask to speak to the Practice Manager - they are generally trained on the law, and know the consequences of not complying.

helvella profile image
helvellaAdministrator in reply to serenfach

It is the duty of the person in charge to ensure that all staff are trained to recognise data requests and handle them properly.

The Practice Manager is already on dodgy grounds for not having done that adequately.

Bearo profile image
Bearo in reply to serenfach

Apart from mine. Wrote to the practice manager requesting historical access as well as current access. That was in January. No reply. Asked receptionist for historical printouts and was given one page with hardly anything on it.

serenfach profile image
serenfach in reply to Bearo

Write, email or phone your practice and ask for the name of the Data Controller (they have to have one). Then ask for the form SAR (Subject Access Request). Tell them you will be making a formal SAR, or alternatively, they can just give you your records.

If they do not comply, get in touch with the Data Protection people who can throw the book at them.

That's not legal. The are bound by law to disclose your results, at least in the US. Is it possible the sample was contaminated or not large enough?

You are legally entitled to access to your medical records free of charge with some limited exceptions.

See bma.org.uk/media/1868/bma-a...

Hi Flower1703,

That is absolutely rotten service from your surgery. By law you are entitled to a copy of your results, don’t call them and ask them for it though, send an email to the practice’s official email address and request a copy of your latest blood test results, and make sure that you send it to them from the email address that they hold and have verified on their system for you.

They should sent it to you within a couple of days at the latest.

Hope this helps 👍🏾

Flower1703 profile image
Flower1703 in reply to LiTai

Well I've rang them this morning telling them I im not happy so they've put me down on the triage list for a doctor to ring me

Flower1703 profile image
Flower1703 in reply to LiTai

I've just spoken to the doctor she has told me that the reason for the repeat bloods is that my platelets are low.

Yes but that’s not the reason they aren’t giving you your physical test results as per your request and more importantly that information should have been given to you by the doctor as soon as they realised they needed to do a repeated test instead of YOU having to chase THEM. Did they even tell you why they hadn’t alerted you to the low platelet count at the point that they told you that you needed another test?

Flower1703 profile image
Flower1703 in reply to LiTai

They've given me my result now they've told me that my blood platelets are low thata why o need a repeat in 7 days, I don't know why they couldn't just tell me the other day.

On the blood test forms here there’s a box toward the bottom that says ‘copies to’ and I always add my name and address and results always arrive in a big envelope via Australia Post

SlowDragon profile image
SlowDragonAdministrator

You need FULL thyroid testing

TSH, Ft4 and Ft3

ESSENTIAL to test TSI or Trab antibodies to confirm Graves’ disease…..autoimmune HYPERTHYROID

TPO and TG antibodies to test for autoimmune hypothyroid also called Hashimoto’s. Hashimoto’s frequently starts with transient hyperthyroid results and symptoms before becoming increasingly hypothyroid. Can have high TPO and TG antibodies with Graves’ disease too

If GP hasn’t tested thyroid antibodies you need these tested NOW

Link about thyroid blood tests

thyroiduk.org/getting-a-dia...

Link about Hashimoto’s

thyroiduk.org/hypothyroid-b...

Link about Graves’ disease

thyroiduk.org/hyperthyroid-...

Essential to test ferritin and B12 too

No it is not right.

You have a right to know what information an organisation hold about you. This includes blood test results. You can ask for this verbally.

I refer you to the Information Commissioners Office guidance at ico.org.uk/your-data-matter...

Can I make a subject access request verbally?

Yes. You can make a subject access request verbally, but we recommend you put it in writing if possible because this gives you a record of your request.

If you are making a verbal request, try to:

use straightforward, polite language;

focus the conversation on your subject access request;

discuss the reason for your request, if this is appropriate – work with them to identify the type of information you need and where it can be found;

ask them to make written notes – especially if you are asking for very specific information; and

check their understanding – ask them to briefly summarise your request and inform them if anything is incorrect or missing before finishing the conversation.

However, even if you make your request verbally, we recommend you follow it up in writing (eg by letter, email or using a standard form).

Should I use an organisation’s standard form?

Standard forms are not compulsory...

However, an organisation may ask you to use theirs.

Standard forms can make it easier for an organisation to deal with your subject access request. They can:

structure your request;

prompt you to include necessary details and supporting documents; and

let you know the best contact point at the organisation.

However, you can still choose another method to submit your request.

What should my request say?

Do include:

a clear label for your request (eg use ‘subject access request’ as your email subject line or a heading for your letter);

the date of your request;

your name (including any aliases, if relevant);

any other information used by the organisation to identify or distinguish you from other individuals (eg customer account number or employee number);

your up-to-date contact details;

a comprehensive list of what personal data you want to access, based on what you need;

any details, relevant dates, or search criteria that will help the organisation identify what you want; and

how you would like to receive the information (eg by email or printed out).

Don’t include:

other information with your request, such as details about a wider customer service complaint;

a request for all the information the organisation holds on you, unless that is what you want (if an organisation holds a lot of information about you, it could take them longer to respond, or make it more difficult for you to locate the specific information you need in their response); or

threatening or offensive language.

Model letter

Dear Sir or Madam

Subject access request

[Include your full name and other relevant details to help identify you].

Please supply the personal data you hold about me, which I am entitled to receive under data protection law, held in: [Give specific details of where to search for the personal data you want, for example:

my medical records (between 2014 and 2017) held by ‘Dr C’ at ‘hospital D’;]

If you need any more information, please let me know as soon as possible.

[If relevant, state whether you would prefer to receive the data in a particular electronic format, or printed out].

It may be helpful for you to know that data protection law requires you to respond to a request for personal data within one calendar month.

If you do not normally deal with these requests, please pass this letter to your data protection officer or relevant staff member.

If you need advice on dealing with this request, the Information Commissioner’s Office can assist you. Its website is ico.org.uk, or it can be contacted on 0303 123 1113.

Yours faithfully

[Signature]

Or you can sign up to an app. See other posts.

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