Hyperthyroidism

[Flower1703]

Hello everyone I'm new here, has anyone got hyperthyroidism?

[shaws Administrator]

We have some members who have hyperthyroidism. When they read your post they will respond.

[lynzpower]

Hello, yes I believe I do seems to be graves although I don't have medical proof of that yet but that's what I've been told. X

[Hookie01]

Hi, I did have hyperthyroidism due to Graves disease, had RAI just over 2 years ago.

[Flower1703 in reply to Hookie01]

What were your symptoms please if you don't mind me asking? And how long did it take to see consultant at the hospital?

[Hookie01 in reply to Flower1703]

High heart rate, I could hear my heart beat when I lay in bed at night. Tremors, always hot, loads of energy but would crash on the sofa after work where I had burnt myself out. Weight loss, trouble concentrating to the point I couldn't count properly and totally forgot how to make pasta!I used to get bad pains in the right side of my head from the neck up, ocular migraines. Would also get quite angry.Probably took a few weeks to see a specialist, can't really remember. My GP put me on carbimazole straight away. Tried to put me on beta blockers too but I refused them.

[Flower1703 in reply to Hookie01]

Did you have any muscular pain in your legs because the pain I have is quite bad?

[Hookie01 in reply to Flower1703]

I didn't really suffer with muscular pain as far as I can remember but I was very fit at the time, not sure if that made a difference. I know a lot of people do suffer with muscular pain though.

[Fruitandnutcase in reply to Flower1703]

I did, I used to have to sit down in stores and I used to lobe long distance walking but I just couldn’t do it any more.

[Hidden]

Hi Flower1703, I was diagnosed with Graves’ disease in 2012 with typical abnormal blood readings, with these symptoms: overheating, trembling hands, heart palpitations, muscle and joint aches and weakness, insomnia, severe weight loss, irritability, agitation , hair loss, itchy skin, restlessness, severe anxiety. I was put on carbimazole for 2 years, have never been diagnosed hyper again since. I have now had typical symptoms of Hashimoto’s for 8 years, but have never been given thyroxine because my bloods are always considered normal, except for 1 reading. It’s a long hard road unfortunately, but these other fellow sufferers on this forum are extremely helpful and reassuring, much more than any gp or endo. Good luck 🤞🏽 xxx

[Flower1703 in reply to Hidden]

I have all of them symptoms too any idea if the muscular pain go after treatment?

[PurpleNails Administrator]

Hey again

I have hyper from a 5cm toxic nodule. Confirmed by a radioactive uptake scan.

Found out later I’d had hyper levels 4 years before I was diagnosed.

My symptoms had developed very gradually and I hadn’t noticed, I had tachycardia, headaches, nails lifting off bed, zero energy & motivation, off the scale appetite. So much so I was extremely overweight and thought I had hypothyroidism.

[Flower1703 in reply to PurpleNails]

Years ago I had so much energy and after having 5 kids you think you'd be tired but everyone used to say to me im like a bionic women haha so I must have had it back then but now i can't even lift my head off the pillow sometimes, my partner has to take time off work all the time to look after the kids or my parents It really needs to do one now I want my energy back

[NIKEGIRL]

Hi. I have a Graves. 1 year. Super high levels. Lost a tonne of muscles. Hope u get answers

[Cavapoochonowner]

Hello, I have graves disease.Diagnosed Aug 2018.My symptoms were racing heart, no energy, profuse sweating and feeling hot, insomnia, adjitation, shaking hands and generally feeling shaky all over, extreme tiredness, aching joints and muscles, if I knelt down I couldn't get up, couldn't cope with stress at all, weight loss despite feeling hungry all the time.My GP put me on beta blockers (proprananol) I think I took them 3x a day to cope with the symptoms.They did help but I did wake in the night asking my husband where the toilet was and how to get there.I generally felt like I was in overdrive(which you are) but couldn't calm myself down.My GP couldn't prescribe carbimazole so I had to make do with the beta blockers. I was referred to an endocrinologist at my local hospital and the wait was 3 months on the Nhs.I did ring up the appointments call centre and said I would be willing to take a cancellation and I think they rung me a bit earlier.I was then put on 40mg of carbimazole to block my thyroid. I'm sorry to say that it did take a while to feel better.The carbimazole stops new thyroid hormone from being released but it takes a while for the excess in your body to go down. I'm still on treatment at the moment, a treatment called block and replace and it's my 2nd try at this.The best advice I can give is to read up on it yourself and learn as much as you can. This site has been invaluable to me and the people on it are so knowledgeable also write everything down dates , appointments ,blood results etc as many times I had to double check what dose I should be taking as I couldn't remember. Hope this has helped you.Best wishes to you.

[Fruitandnutcase]

I had Graves’ disease back in 2012/13.

I felt incredibly tired - beyond exhausted. I had felt ‘off’ for a long time and basically been made to feel like I was a hypochondriac.

Eventually I nearly killed myself in the car - I was crossing a junction on a dual carriageway, it was night time and as I got out a car came screaming down on me in the fast lane - I got such a fright and felt so ill next day I went to see my GP who fortunately knew exactly what the problem was. Was booked in for blood tests next morning and the day after I had a prescription for20mcg carbimazole a day, had an appointment with a consultant and was told to go for more bloods after four weeks. After four weeks there wasn’t much change so my consultant write it me telling me to get more carbimazole from my GP and take 40mgc a day. My hospital treats by ‘block and replace’.

By that time I had lost masses of weight in spite of going through the food cupboards like I was a locust, I ate everything and anything I could get my hands on - I looked better than I had done for years - on the outside.

Inside I was a mess, my hands shook all the time, I was depressed, exhausted and so short tempered - boy was I grumpy! My heart raced, it used to wake me up during the night as did the hot sweats and you could feel it just by laying a hand on my stomach - no need to bother taking my pulse in the normal way. I was always hotter than anyone else in a room. It was just horrible.

It took three months for my consultants appointment to come through - I was shocked about that but in reality there wasn’t anything to do other than to wait for the anti thyroid drugs to kick in. Once that happened I was given levothyroxine as well as the carbimazole. The whole process took exactly a year - which was what the first consultant I spoke to said it would take.

When I started carbimazole my pharmacist told me to take high strength vitamin C along with it which I always did.

I also read that I would put back the weight I had lost - I thought ‘no way’ but I did go back to my pre Graves weight.

Hyper is pretty awful but you will get there in the end. Just be a bit selfish and only do things you want to do, don’t feel you have to do anything. You are actually quite ill so get as much rest as you can, delegate, I know it’s not always easy but do your best to get as much rest as you can.