Don’t understand this weird feeling: Can anyone... - Thyroid UK

Thyroid UK

140,408 members165,187 posts

Don’t understand this weird feeling

morningside4518 profile image
2 Replies

Can anyone throw any light on this? Keep getting this weird slight burning feeling in my upper chest that makes me very anxious. I’ve just had an ECG which was ok. Dr was unsure what it could be as the symptoms didn’t go hand in hand with gerd/acid. Quite often goes after eating or sucking a sweet and don’t get it in bed. I do have very bad catarrh which I’ve had for years but is particularly bad at the moment. I feel generally a bit anxious and this chest feeling is contributing to this. One way to describe it is a feeling a bit like eating a menthol sweet. I would appreciate any help or advice. Thankyou.

Written by
morningside4518 profile image
morningside4518
To view profiles and participate in discussions please or .
Read more about...
2 Replies
SlowDragon profile image
SlowDragonAdministrator

Sounds like acid reflux

Extremely common when under medicated for thyroid

How much levothyroxine are you currently taking

When were levels last tested

Do you always get same brand of levothyroxine at each prescription

Essential to test vitamin D, folate, ferritin and B12 at least annually

Do you know if reason for your hypothyroidism is autoimmune thyroid disease also called Hashimoto’s diagnosed by high thyroid antibodies

For full Thyroid evaluation you need TSH, FT4 and FT3 plus both TPO and TG thyroid antibodies tested. Also EXTREMELY important to test vitamin D, folate, ferritin and B12

Low vitamin levels are extremely common, especially if you have autoimmune thyroid disease (Hashimoto's) diagnosed by raised Thyroid antibodies

Ask GP to test vitamin levels

Recommended on here that all thyroid blood tests should ideally be done as early as possible in morning and before eating or drinking anything other than water .

Last dose of Levothyroxine 24 hours prior to blood test. (taking delayed dose immediately after blood draw).

This gives highest TSH, lowest FT4 and most consistent results. (Patient to patient tip)

Is this how you do your tests?

Private tests are available as NHS currently rarely tests Ft3 or thyroid antibodies or all relevant vitamins

List of private testing options

thyroiduk.org/getting-a-dia...

Medichecks Thyroid plus antibodies and vitamins

medichecks.com/products/adv...

Thriva Thyroid plus antibodies and vitamins By DIY fingerpick test

thriva.co/tests/thyroid-test

Thriva also offer just vitamin testing

Blue Horizon Thyroid Premium Gold includes antibodies, cortisol and vitamins by DIY fingerprick test

bluehorizonbloodtests.co.uk...

If you can get GP to test vitamins and antibodies then cheapest option for just TSH, FT4 and FT3

£29 (via NHS private service ) and 10% off down to £26.10 if go on thyroid uk for code

thyroiduk.org/getting-a-dia...

monitormyhealth.org.uk/

NHS easy postal kit vitamin D test £29 via

vitamindtest.org.uk

SlowDragon profile image
SlowDragonAdministrator

Looking at previous post, you were only on 75mcg...that’s only one step up from starter dose

Unless very petite, many/most will need dose at least 100mcg levothyroxine per day, or higher

guidelines on dose levothyroxine by weight

Even if we frequently don’t start on full replacement dose, most people need to increase levothyroxine dose slowly upwards in 25mcg steps (retesting 6-8 weeks after each increase) until eventually on, or near full replacement dose

NICE guidelines on full replacement dose

nice.org.uk/guidance/ng145/...

1.3.6

Consider starting levothyroxine at a dosage of 1.6 micrograms per kilogram of body weight per day (rounded to the nearest 25 micrograms) for adults under 65 with primary hypothyroidism and no history of cardiovascular disease.

Also here

cks.nice.org.uk/topics/hypo...

gp-update.co.uk/Latest-Upda...

Traditionally we have tended to start patients on a low dose of levothyroxine and titrate it up over a period of months. RCT evidence suggests that for the majority of patients this is not necessary and may waste resources.

For patients aged >60y or with ischaemic heart disease, start levothyroxine at 25–50μg daily and titrate up every 3 to 6 weeks as tolerated.

For ALL other patients start at full replacement dose. For most this will equate to 1.6 μg/kg/day (approximately 100μg for a 60kg woman and 125μg for a 75kg man).

If you are starting treatment for subclinical hypothyroidism, this article advises starting at a dose close to the full treatment dose on the basis that it is difficult to assess symptom response unless a therapeutic dose has been trialled.

BMJ also clear on dose required

bmj.com/content/368/bmj.m41

bestpractice.bmj.com/topics...

Guidelines are just that ....guidelines. Some people need more some less

healthunlocked.com/thyroidu...

Being under medicated will frequently result in low vitamin levels

Low vitamin levels tend to lower TSH

Important to get full thyroid and vitamins tested

Not what you're looking for?